Big big ((( hugs )) to you Kimberley . Get well soon . โค๏ธโค๏ธ๐นX
Hi !'ve been thinking about you, so glad to read your post, if there is anything I can do let me know, all good at this end, no hepatic encephalopathy which I'll now refer to as HE . Much love ๐๐๐๐
dckimberly Aw you must have been completely out of it My hubby did the same - he had several pic lines to treat MRSA in his bone post op. Hospital not happy with him - they scanned him as it goes near the heart. All of it was out really recommend you get a scan to confirm yours is out.x
I'm going in for a blood iron wash on Tuesday and that will help as my red cell blood counts have been 61, 6.3 & 6.5. My spleen eats them up so quickly!
I did not sleep for two days after HE this past week, was afraid that I'd wake into another episode, or worse, coma.
It seems as though I yanked the whole pic line out, in two pieces..this one was really long.. over 17 digit lines and that was outside of my body, not even the part inside! The nurses had been shocked, each one at how long the pic line was prior to my yank out. Sighs. So.
But I've finally slept now and am finishing Christmas wrapping and packing for everyone across the pond.
My newest craft books are getting finished. It's good to be creative!
The LYX coordinator said they could get a nurse to come in on the days I might be alone, so I'm not a risk to myself or others during an HE episode.
After this last time, I think yes, it's time.
I will never ever get a shunt again. Ever.worst choice I'd ever made. I always feared one, but the doctors were just sure I would not get the hepatic enchalopothy (HE) , because I had been so very sick before and never had it.
My drain specialist warned me against it. She was right.
I hated the ascites, but the memory loss is too much too bear. My mind, even when I was drinking was always like a steel trap. I guess pride goeth before the fall, huh? My ego about my brain got the best of me. Lesson learned. The mind is a precious thing, a fragile thing.
Thank you to all!
There was no need to respond, but thank you!
Cheering all of you on!
The good news is I'll be out of assessment by the 23rd of December, and my main liver doctor is overseeing it. I guess she is not going to Scotland for the holidays. So I feel safer knowing she will be in charge of my care. The holidays can often bring the skeleton crew out..but I think I'll be fine. I was at Addenbrookes last year just after the tholidays and it was great! ๐ As great as it can be! Giggle.
Cheering all of you amazing inspiring and supportive friends on!
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