Diabetes with end stage cirrohiss

[angse]

I am going for assessment to king's college hospital on 4th September my heptologist says transplant now my only option basically I read a post saying if you are diabetic you can't have transplant my heptologist knows I am type 2 and haven't said anything does anyone have any information on this please

[Bermuda1]

That's not true, I don't know where you read that.

[angse in reply to Bermuda1]

Thanks it was on internet last time I start looking around on that thanks for replying

[Hidden]

My husband had type 2 diabetes and was listed for a transplant , good luck 😊

[angse in reply to Hidden]

Thank you bluebells given me hope

[Hidden in reply to angse]

hi, will be thinking about you and hope your assessment goes well x

[Hidden]

I was diagnosed with type 2 diabetes in 2003 and had a transplant in 2011. Your understandable concerns are a challenge to this and other communities that we need to remind ourselves of. Hope all goes well with your assessment.

[angse in reply to Hidden]

Thank you mike for advice thanks for getting back

[Hidden]

good luck with you assesment ,,yes alot of disinformation given out there ,,,all the best Matt

[angse in reply to Hidden]

Thank you can't wait until Sunday to go in to king's college

[Helloliver]

Hi, firstly good luck with the whole process, we wish you all the best.

I echo the previous replies, Type 2 diabetes is not a contra-indication for transplant - so long as you do not have severe diabetes related complications.

Type 1 - I believe is a relative contra-indication according to the guidelines but I presume it is related to the greater degree of diabetes related complications associated with this, and the effects / risks of post transplant medication.

My husband had type 2 diabetes and has just had his transplant and is doing well. We wish you all the best.

H x

[angse in reply to Helloliver]

Thank you for advice that has cleared a lot up for me I now have an easy mind

[Hidden]

I was diagnosed as type 2 10 yrs ago and had my liver transplant on 8 March 2016. My blood sugar levels where just above the borderline and my treatment was diabetic diet.

However since the op I had a lot of problems with sugar levels being sky high. so it was very difficult in controlling the diabetes and was put on insulin. It was my worse side-effect problem. Now 6 months later My sugar levels are the same as pr-transplant, so it is looking good.

So don't worry you will have a specialist team monitoring you all through your treatment.

[angse in reply to Hidden]

Thank you at least you came through with your courage hope all is well with you now

[LAJ123]

My type 2 diabetes was diagnosed about three months after becoming seriously ill with my failed liver. Immediately put on insulin before each meal and before bed. Four times daily is a lot together with all that finger pricking as well. My glucose levels ranged from 31 - 2 mmol/l. At 2 mmol/l I collapsed during a hospital appointment.

I found life really hard with the added burden of diabetes on top of my end stage liver disease.

Fast forward 9 months. Liver transplanted on the 11th March this year. Blood glucose post transplant meant I was put on a sliding scale for the insulin doses. Within a week I didnt require any insulin at all as my levels were normal. Two months later my HbA1c test came back; Within the non-diabetic range (31)! I am to go back to the diabetic clinic in a couple of months were I expect to be discharged as non-diabetic.

This NOT to be taken that it will happen to others post transplant. But I did want to share that it CAN happen. Please don't have false hope, but at least know it might happen to you or anybody else diagnosed diabetic after liver failure diagnosis.

By the way the only obstacle due to diabetes pre-transplant was that during my assessment process I had to have an extra test on my cardiac function. This was a "stress echo-cardiogram" which is a cardiogram that everybody has but this time after extreme exercise either on a treadmill or a drug induced stress on the heart.

Hope all goes well.

Jim

[angse in reply to LAJ123]

Hi Jim I can't imagine what you must have gone through thank God you seem OK now thank you for replying

[pear-shaped]

Hello Hun,

I have been thinking about you and wondering how your recent appointment went...

I'm relieved that they have decided to list you and hope you feel reassured by all the responses to your post.

How is the ascites now?

Please keep us updated about on how the assessment goes.

Pear

[angse in reply to pear-shaped]

Hello pear Ascites gone down a bit not as bad as it was but haven't been on so much as been quite unwell feeling better now going to kings on 4th September for 4 days assement bit nervous when I saw my heptologist last month it took hi 2mins if that to say I need transplant he said the HE was so severe which it is I become a total lunatic with no memory of it at all so pear how are you doing x

[pear-shaped in reply to angse]

My dearest Annette,

We are struggling to get his hernia operation booked... It seems one thing comes up then another...

Apart from that he seems to be doing really well.

I do hope that the assessment is successful and that they call you in very quickly for the transplant.

Yours truly,

Pear

[Wass71]

So glad to hear you don't have long to wait now for your assessment. Try not to worry, everyone is always so positive about the specialist teams that deal with transplant. They will do all they can to ensure you are informed and comfortable with all that has to happen. I hope your daughter or someone will be with you to help take on the information for you.

Thinking really positive thoughts for you.

Very best wishes

Elisa x

[angse in reply to Wass71]

Thank you Elisa for replying I feel so much better now with all these positive responses I get from all you wonderful people

[angse in reply to Wass71]

Yes Eliza my daughter is driving me there as live in Kent and cannot use trains or anything by myself at the moment very wobbly since I got Ascites so she can come in with me as I am concentrating so much my mind goes blank she will also ask questions that I may forget to ask. Annette

[Wass71]

So glad to hear that Annette, its great she is able to support you at such an important time. I think going to the transplant Dr appt might also make her appreciate how unwell you are ( if she hasn't fully grasped this lately with how many hospital visits and assites and HE you've suffered). I know you've said before your daughter has a child with additional needs ( I think I've remembered that correctly) so I know she has her hands full, but now you really really need support so relieved you are getting that.

Will be thinking of you, if you're able let us know how you get on.

E

[White-feather]

Good luck! You've been through enough, bless you. 😘

[AyrshireK]

So glad you have finally got a date for assessment - my goodness they've taken their time over it. I'll be thinking of you next week. Hope it all goes ok and that you finally get listed at the end of it. You deserve it after all the trials and tribulations you've gone through with this horrid disease.

Rooting for you and thinking about you.

Love from Katie xxx

[angse in reply to AyrshireK]

Hello Katie I to am so pleased I'm halfway through will fight on whatever let you know what happened at assessment what ever they do love Annette

[Dulux]

Hope everything goes well with your assessment, I did mine a little over a month ago. It's all pretty straight forward, you'll meet lots of people from the medical team. I was on Dawson and the nurses were good, the food is okay, it's not a lot of fun being in hospital when your not I'll, I paced about a lot, they will come and fetch you at random for the tests, so get a good book and chill out.

[angse in reply to Dulux]

Thanks for advice haven't clue what transpires during assement rang kings this morning as told in letter to confirm bed and was told they would call back before 12noon so waiting. Annette

[Dulux]

I got called in without warning at 18:30 on a friday night!

Don't expect much sleep tonight, you will most likely be visited by every man and his dog, I had to tell one Doctor my entire history from the beginning of my condition.

I suspect you'll either be on Todd or Dawson ward.

The ward managers appear to have a distinct lack of geography as I'm 2 hours away from Kings.

I hope you've had or get the call soon.

[seffefe]

Hi All, I wondered to read and am so happy to see that how every one got consern and responded so well to support Angse with good information that definitly encouraged her. A bless for all in this network,I have also learned much out of it. Good Luck