Transplant

[angse]

Me again received letter from my gastroenterolgist or I should say copy that he has sent to my heptologist at kings he said I need an OLT assessment am I right in saying it's assessment for transplant. Annette

[Hidden]

Hi Annette, yes it is. It will involve a few visits or a short stay in hospital where they will check a whole range of things before coming to a decision about you going on the transplant list. Best wishes, Mike

[angse in reply to Hidden]

Thank you Mike for your help. Annette

[Wass71]

Annette, given how unwell you have been this is a good thing. I'm just shocked that the Dr didn't discuss this with you!? Finding out like this, is not the way you should receive such news!? I hope you are able to get some support from friends or family so you don't have to dwell on this on your own. 

Wishing you well, best of luck. 

E

[angse in reply to Wass71]

Thanks wass71 yes I thought it odd he did not discuss it with me, yes I do have family support and I really hope I can have it done I will get some if not all of my life back. Annette

[RodeoJoe]

I think it is. That's actually great news!

All the best and Good Luck!

[angse in reply to RodeoJoe]

Thanks Rodeojo I still can't believe it mind you I have been very sick like all of you on this site.  Annette

[RodeoJoe in reply to angse]

Well at least for me the transplant was the start of what I would now call a normal life. 

[angse in reply to RodeoJoe]

Hi rodeojo may your health continue. Annette

[Jahida]

Great news!

[angse in reply to Jahida]

Thanks jahida just hope when they do assessment they put me through.  Annette hope you keeping well !!

[gamesmaker]

I do not know what is involved in the OLT assessment - but good luck. I will be thinking about you. Let us know how you get on.  Thy doctors do not always read their own letters - I only found out about my HE from the copy letter to the GP. I was so cross about that - I wrote to the consultant!

[angse in reply to gamesmaker]

Makes you angry gamesmaker doesn't it when you have to find out information by letter.  Annette

[pear-shaped]

Dear Annette,

This is splendid news!

Please make sure you can take someone with you as well as write all the different assessments/appointments and. Times down. Also make sure you know what preparation is needed for them as some assessments will expect you to remain nil by mouth etc. 

If you do not have anyone to take with you - then contact the hospital voluntary service - they are able to give a person to support you...

Best wishes Hun,

Pear 

[angse in reply to pear-shaped]

Thanks pear will bring someone with me that is for sure thank you for advice.  Annette

[grumps]

Great news keep strong.....as our sons consultant at Blackpool said when he arranged for QEB to move things forward for assessment and now on the priority liver transplant list.. you were on a country lane, early consultation re liver transplant,  then you go on the B road, seeing going to see the Transplant Consultant at the nominated Transplant Hospital. then the A road, Transplant assessment.  Then the motorway to the successful  transplant.

Not sure which hospital your referred to but QEB's web site directory for liver gives full details  for the assessment process

Good luck & be positive with all your family & friend with you for support...its a long hard road but you can do it

Your now on the A road still lots of miles to go but you will make it

Regards

Chris

[angse in reply to grumps]

Thank you Chris I will do it yes no matter how hard and rocky the roads I will be positive, I will be going to Kings College in London as that is where my heptologist is and they are good transplant hospital, butterfly's in tummy though thanks for advice it really helps. Annette

[AyrshireK]

Got my fingers crossed for you Annette, that's what we've been waiting to hear.  At least you will get a very thorough assessment of what is going on & what this dilemma is with the heart murmour etc. etc. ?Hopefully the decision will be taken to list you at the end of the assessment.  Feel like we've been on the journey together the last few years so fingers crossed you make some progress now.

We are ticking along, no changes in hubbies condition, no changes in latest U/S so just plodding along.  We see consultant locally in May and back to Edinburgh July for endoscopy and consultation.

Wishing you all the very best, Katie xxx

[angse in reply to AyrshireK]

Thank you Katie very nervous just hope they will list me as gastroenterolgist said in letter liver deteriorated very quickly in 6 months but I intend to be positive and strong and get through this, glad things have not got any worse for your hubby keep well Katie. X

[dckimberly]

Yes. And thank goodness. Now they will set it up, like Mike said! 

At Addenbrooks you go in for three days (used to be five! ) they do all these tests, then Friday afternoon, or the third day your in, they come to you and let you know the outcome of the testing, and also of the meeting they had that morning. Normally they asses a few people at a time, then the team gets together at end of testing to decide if it's time.

They will explain everything to you. 

I elieve it took two months for me to be scheduled in for all the testing. 

Good luck sweet girl! 

xxx

Kimberly

[angse in reply to dckimberly]

Thank you Kimberly I just hope I can have one, and I really appreciate all support do not know what I would do without it bless you. Annette