Well for those that don’t know, I was listed at Kings back in March this year. I have since moved up north and Leeds are now my nearest transplant centre. So I went to see them the other day, they were happy to accept all my Kings results meaning I didn’t have to do a full assessment again but they asked me in for a couple of tests and to meet the team etc.
I’ve just had the phone call from them as they have had their meeting to discuss all newbies and they are accepting me on their list. Phew.
Brings it home again, she remarked that my UKELD is now 60, last I knew it was 58, and said I’m obviously very poorly and would need fortnightly obs. Don’t get me wrong I know I’m not well, I feel it, but you just get used to it, it’s not until somebody in the medical world enforces what you kinda know that, at least for me, makes you realise.
Along the path we continue...
(Don’t tell anyone, but I’ve got a feeling it’s gonna happen soon 🤫)