4 years plus, post transplant

[freddie76]

Post TRansplant

Hi

Anybody out there developed problems nearly 5 years post transplant.?

My husband was transplanted December 2011 due to Alpha 1 Antitrypsin Deficiency which had caused cirrhosis and HCC (liver cancer).

Some of his early symptoms pre transplant have returned and we have been told his liver is enlarged.

Waiting for CT Scan told it would be within 2 weeks.

Anybody else had this problem at this stage post transplant?

[RodeoJoe]

No, but I'm nearly two years post transplant and so far so good. Would you mind keeping us informed on what the diagnosis is? I'm sure many of us post transplant would be interested.

Thanks

[Bolly]

I believe Alpha Antitrypsin is genetic, so assume he will still be genetically predisposed to a repeat of the liver damage caused to his own liver prior to transplant. Was this discussed at all during his transplant assessment and treatment?

[dckimberly]

Sorry to hear this!

I'm not sure about that far out. Bolly mentioned it being a predisposition?

But do please let us know, like RodeoJoe said.

I myself am ten months post transplant and am having problems. From my understanding, most often if there's going to be a problem, it's can most often occur around the 6 month mark, post.

Not that there can't be issues at any time, there just seems to be a better chance then.

I do hope they are able to sort it out.

I'll be thinking of you, and looking for your posts.

Cheering you on!

X

[freddie76]

Hi Bolly

We were led to believe that having a new liver which is producing the Alpha 1 should have prevented further damage. Now I am beginning to wonder.

Can't wait for the 22nd to find out what is going on. When the consultant examined him after we had pointed out some problems he said he couldn't feel anything untoward. Since then his GP has said his liver feels enlarged and his Dermatologist has put in writing that his abdomen is distended and liver and spleen both are enlarged.

Gonna be a long 10 days!t