2 weeks to the day since being listed, we got the call. 20 exciting blue light minutes later we were at the Royal Free. Now less than 3 hours later Jim, who I may not have mentioned, l love more than anyone in the world is in surgery.
Please think of us.
Lucy
Written by
LAJ123
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Fingers crossed for Jim. I was doing the the same thing you were exactly three years ago today but in Addenbrooks. You have nothing to do for the rest of the day but look after yourself! Jim is in good hands but you are unlikely to see him until tomorrow.
Surgery time varies but my husband was in surgery for 7 hours. Then straight into ICU. They woke him up the next day and when I saw him for the first time it was a miracle. I had my original husband back and the sick one was gone!
Then into high dependency for a day or two followed by the normal ward. He stayed in for nearly 4 weeks post transplant whilst they fine tuned his medication. During this time he took every opportunity to walk the ward trying to get some level of fitness back.
Convalescents took about a year. Now three years on we haven't looked back. We thank the donor and his family every day and bless them for making the biggest sacrifice anybody should have to make. It gave my husband life and for that we are eternally greatefull!
Amen to that, my husband had his transplant one year ago. Every day we are thankful to the donor's family to givenhim snd me, a second chance at life. We are so blessed.
Fantasic news Lucy, Soo jealous I never got the flashing blue lights just a very nervous drive from my husband lol. You've got to be strong now and positive for the both of you it will be a rocky road but you will get there with determination. As the saying goes dont try to run before you can walk. My thoughts are with you both in an excellent recovery. Keep smiling Ruth xx
Hello everybody,sorry for the silence. Jim is now three weeks post transplant and doing better than we could ever hope for. Been home now since the 29th (his birthday !) Mobilising well and more easily every day, pain is quite well controlled and all the oedema has disappeared which is such a relief as it was hard to believe such swelling was possible. The medications were raised before discharge as a jugular biopsy showed signs of rejection - a three day course of IV prednisolone sorted that out. There are the inevitable side effects from the meds but endurable and perhaps will be modified at the first clinic on the 5th April. We both thank you all for your positive thoughts and messages. Of course our thoughts and gratitude go every day to the donor and his/her family. Will continue to update in the hope that others facing the waiting and surgery will know the end result can be amazing. XX
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