Hi currently experiencing what I think is yet another episode of HE. Brain fog coupled with sleep disturbance, dehydration and loose stools. Struggle to drive at times due to the sensory alteration. I've still no diagnosis of anything after over four years of symptoms, only thing noted was an enlarged Liver on a CT scan in early 2012, and even that has been questioned as being subjective. All bloods in range since, all other scans normal. Yet, in addition to the "HE" I've had/got itchy legs, low blood sugar feelings (which never run concurrently with the "HE", always one or the other), pain in spleen area after colds and/or vigourous cardio vascular exercise....occassional pain in Liver area. I was also a HEAVY binge drinker for 20+ years, though I've been dry for over four years now. So, enough reason to believe its serious & very, very much likely to be Liver related IMO. Medics dont really want to know until if/when the bloods go awry. I'm currently getting bloods checked every 12 months, on that basis next I'm next due in April 2016. Not a nice position to be in really.
So, Im currently trying Lactulose indpendently as an OTC medication to see what it does as its a relatively benign medication. Just asking for people out there suffering/who have suffered with HE how do/did you take it as I know it can cause nausea etc if taken neat and in what quanitites did you have to take Lactulose for the fog to clear? Did it clear totally or did the Lactulose just take the edge off the HE? Do/did you take it constantly or do/did your episodes subside etc?
Please reply with your experiences