Sunday afternoon we got the call..they thought they had a viable liver and could we get there right away.
I was absolutely stunned. I can't believe it happened..and here I am, four days later, writing on my iPad, from the transplant high dependency unit, a step down from the ITU.
I still cannot believe that it happened..that I survived, and that I'm sitting up in a chair!
They say say everything looks great thus far..
I just wanted to share our joy with you all. I've only been on the list for three months officially, and I have a rare blood type.
Does it hurt? Yes, like I've been hit by a bus....but everyday is getting better,I think.
Thanks so all of you for all the wonderful support, information and kindness, since I joined the group...
Especially to Scotty! My partner in crime, Mr. X for being a walking encyclopedia! Lololol and all of you..
I'll look back here as a I can, I still get very tired quickly
xxxxxxxxxxxx
Kimberly
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dckimberly
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The doctors nurses, all the staff have been just incredible...so attentive. In ITU there were two specialists in the room at all times.
The one thing I'm most impressed with is how good they have been to my partner...so kind to him, explaining everyine...personally, I think that care is equally important to the medical care!
I'm very pleased the staff were good with dealing with your partner and it's good that you mentioned it for others who read this. I know when I was initially diagnosed that was the thing that bothered me the most - inflicting this thing on her - so I know I'd appreciate it and be impressed if they understood how important that was to the patient.
More importantly as it's been a week I imagine you're gallivanting about feeling fabulous If not, pull your finger out and get on with it
Hope you're still feeling better and still recovering and getting stronger - and I hope you're making plans for your future and how to make the most of it.
Any plans to visit the states? I used to live in the NW.
Yes, I am out of bed, walking unassisted to the loo, and a wee bit in the corridors. I want to be doing more, but it seems the ascites is back, so that's hard. They also are still trying to get my pain uder control which is horrible due to the return of the ascites on top of the major surgery. But all in all. All is well. Lol.
The NW? Nice. I am an east coast kind of girl. The farthest west I've lived is Michigan.
So I read "and a wee bit in the corridors" and before it processed thought they had an area set aside in case you just need a pee. Which I thought odd but potentially useful!
sad reflection on how my brain works - I blame the drugs.
If you get bored there are loads of radio comedies and things on the BBC radio player - they're often pretty good too.
Congratulations! Wow it has been just a few days and you're typing from your iPad. Impressed! I had my transplant in May. I was unconscious for 4 days. I remember waking up pretty confused and I didn't have my phone for at least another 3 days. My transplant was urgent as I went through acute liver failure suddenly.
ITU are brilliant. I'm not sure which hospital you are in but I was in QE Birmingham and gosh I love them. In fact tomorrow I am going into ITU follow up clinic to discuss my journey!
Amazing. Fab news. A true gift of life. Recommend everyone watches Channel 5 "gift of Life" series currently on UK tv and then signs up everyone they can to the organ and/or tissue donor register.
This is absolutely brilliant news! Congratulations!
I kept the phone away from my husband (following all ops) as he had a tendency to want to call the police due to his ITU psychosis (kept seeing things)... So its wonderful seeing that you are able to send messages
Yay Kimberly...Unbelievable news for you🙌.I'm so happy everything went well for you. You must be exhausted hon so you concentrate on getting better OK. You need to keep your strength up. Your an awesome lady and your a wee fighter and i love you for that. You deserve another good shot at life and I hope this is it for you. Just awesome fantastic spectacular news, good luck and if you need anything just holla.I can get there in 10 mins. Take care of yourself.
Love you too, and thanks! I was so glad Tony was able to get ahold of you..I said, oh god, yes, pls contact him! Lololol. I forgot about everything I think...I still can't believe it!
Xxxxxxxxx
Kimberly
So pleased for you, I nearly cried. I'm starting with my assessments in 2 weeks and need to hear as many success stories as possible. Great.
Absolutely amazing news. Do your donor proud & take care of your new organ but also give this liver a damned good work out over the many happy, healthy years to come. Life is for living after all. Wishing you a safe & Speedy recovery. Love to you & yours.
Congratulations! Wishing u all the best for swift recovery. It's nearly a yr from my transplant after suffering sudden total liver failure & being given 48 hrs from diagnosis, was unconscious for 6 days after & was another wk before used my iPad! Was so confused. Your doing amazingly. Can remember being asked was I in pain my answer apparently was of course yes feels like my Cubs (am cub leader) hate me & have played rugby with me!
Hi there everyone. Well today was not my day. Terrible pain, and now I have a fever, so they gave me antibiotics, took blood, and a urine sample...ill have an ultra sound around 9am, and see the liver team again. Please pray for us, or send thoughts, but especially for my darling Tony who is exhausted... My poor wonderful, wonderful. Partner. He's at the end of his rope, contacting everyone one, updating, here all day...sighs. Such a great partner, I am a lucky girl.
Hope you're feeling a bit better, Kimberly. You've had a huge, complicated operation that its probably normal to have a few problems in the days following surgery. I don't post much here as I'm now on a forum specifically for AIH but I have followed posts here and you've always been positive in your comments, so carry on being positive for yourself! Hope you don't have to wait too long before you have some good news. xx
Hi kimberley, what lovely news and I am so happy for you!!! You were always so positive giving advice when you were so poorly and Im sending you lots of love.
Great, wonderful..........what more can I say.
Hope your recovery continues and look forward to more news from you xxxx
Dear Kimberly! You are great, brave! So nice You thought of us! Be well, let the pains leave with a next bus Begin patiently Your new life, so much joy awaiting You. Take care!
Wow thats fantasic news so great to hear that you got one. There will be a few ups and downs but stay positive and you will be living your new life very soon. soooooo happy for you, keep smiling x
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If not, pull your finger out and get on with it 
New liver
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im new , late stage liver sclerosis
