I have just been diagnosed with auto immune hepatitis after developing jaundice. It's all a bit scary as I am only 28.
It's all very new to me and I am not sure if anyone out there can offer advice or relate to the symptoms I seem to have experienced?
Unfortunately not much seems to be known about the cause. Does anyone have this condition too, that I can speak to about it? ( re symptoms, looking after your liver, what could cause flare ups, research into the condition etc.)
I've been told it could be genetic? My aunt & cousin have another auto immune disease (rheumatoid arthritis), that could be caused by the same thing. Does anyone have any similar stories of auto immune diseases in the family, or what they think could have caused their condition?
Has anyone had any underlying health problems prior to their diagnosis?
I had gum disease, meibomian gland dysfunction (dry eye syndrome) & what was believed to be IBS for the last two years.
Just before developing jaundice, I had extreme tiredness, was very low in energy, overemotional & depressed. Did anyone experience any of this too?
Has anyone else had IBS like symptoms with their condition? No matter what I tried eating, it always made me feel worse, so I rarely ate. I got terrible pains & discomfort after eating anything. I lost lots of weight over 2 years. This flared up again just before I was admitted to hospital.
I'm concerned the IBS like symptoms could flare up again & affect my eating & deteriorate my health. Has anyone experienced similar problems to this with auto immune hepatitis & do you have any helpful advice on how to prevent it coming back?
I still don't feel 100% yet, I get easily tired and feel discomfort in my side at times. Is anyone with auto immune hepatitis working full time? Do you find it difficult to cope and get easily tired, or is it manageable?
Does anyone know what kind of research is being done into auto immune hepatitis and if anyone suffering from the condition can be kept updated on it, or even get involved with helping research into the condition (besides fundraising)?
If anyone can give any helpful advice or information, it would be much appreciated. Many thanks