Why is there so much inequality in the NHS? I have friends with malignancies who have access to a a named specialist nurse - this specialist nurse (not a Macmillan nurse) had access to their notes and importantly, also to their medical team. The specialist nurse had the time to go though the diagnosis as often as they wanted on a 'one to one' basis and to give advice, literature etc. I am newly diagnosed with cirrhosis (progression from fairly long standing fatty liver disease and then NASH). When I asked my hepatologist (at a top London hepatology clinic) if there was a specialist nurse I could speak to / make and appointment with - I was told that there was only specialist nurse provision if I have an infective hepatitis.I have every bit as much of a life-limiting disease as my friends with malignancies, but no access to my own specialist nurse. Why is this?
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