Looking for Clinical Trials for Metast... - Breast Cancer India

Breast Cancer India

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Looking for Clinical Trials for Metastatic Triple negative breast cancer

9 Replies

Hi

I am looking to get my sister,34, enrolled for MTNBC clinical trial. Can someone please help me where its being done please.

Thank you

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9 Replies
MsLockYourPosts profile image
MsLockYourPostsTeamBCI

Are you looking for a specific study? If you go to clinicaltrials.gov and type in Metastatic triple negative breast cancer, then modify the search to intervention and recruiting there are many trials listed. If you further modify the search by country (bottom of the page to modify the search) there is one study that comes up in India. I am not a medical person, so I am not in a position to advise you about this study vs traditional treatment, but it would be worth your sister talking to her doctor if the location is doable.

Pat

in reply to MsLockYourPosts

Hi Pat,

Thank you so much for this information. Will certainly make use if this and look through

Thank you

Harry

sumeet_shah profile image
sumeet_shahAdministrator

The right person to help you with clinical trials is your Medical Oncologist. Ask them, where can you locate clinical trials going on in your city's vicinity and they would know it.

Hi Sumeet

Well done that too, no where in India as such. And getting enrolled in us is not that easy as we are shot of time and the trials we are looking for have stopped enrollment in the second phase. The third phase trial will be there with in Six months. Still trying.

Thank you so much

God bless

Harry

MsLockYourPosts profile image
MsLockYourPostsTeamBCI in reply to

Are you looking for a specific treatment protocol? A phase three trial usually involves being randomly assigned to either the trial drug or a protocol which is considered to be standard.

If your sister is not in the US being treated here would be very expensive at most locations. Many trials cover the trial drug(s), but not other costs related to the trial - labs and other testing required as part of the trial but considered to be a part of standard treatment for example. NIH (the National Health Institute) would be the exception - treatment is free for everyone in a trial there.

I hope you are able to find the treatment you are looking for.

in reply to MsLockYourPosts

Hi,

I agree, first of all an enrollment is not easy and second of all one needs a lot of money for even if u get enrolled. Well if we get the right sort of treatment, we are ready for the over head expenses... Have a meeting with my onco on the 7th to discuss this matter as the pet ct is a day before.... If that's the only choice we have then we might go in for all... God be with us all..

Thanks for all the information and wishes

Harry

sumeet_shah profile image
sumeet_shahAdministrator

Yes, agree with you there. Trials are far and few in India. There are barely some institutes, were trials are conducted. The number of such institutes just reaches double figure. Tata Memorial Centre, RGCI, Adyar, to name a few.

India has a phenomenally long long way to go when it comes to medical care and there is an extreme level of red tapism which makes me accept the fact that improvement is very difficult.

Anyways, I do hope you get what you are looking for. Personally, since I am a surgeon, I am not in touch with anyone conducting trials around and so I Would not be able to help.

Hi,

Thank u so much for all your support and help... The Almighty will certainly show us the way. Jab dawa kaam nahi aati tab DUA kamaal dikhati Hai... I am a total believer.

Thank you sir

God Bless

Harpreet (Harry)

Hello Mr. Rohit,

Thank you so much for your reply and support. I do understand what you have said about the expenses,but I will definitely call you and know about the whole procedure and the mathematics too...

Thank you so much

Harry

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