I was diagnosed with stage 1a, grade 2 IDC - had lumpectomy with clear margins, now on tamoxifen and about to start radiotherapy. I’m 34 years old with a five month old and a : year old, so I’m struggling a little bit! I’ve not had any side effects from the tamoxifen but I’m so so worried about everything I’ve read about it. Does anyone have a positive story about tamoxifen?
Tamoxifen - any positive stories?! - Breast Cancer Haven
Hi, sorry you have had to start this journey. I had the same as you, but Grade 3 IDC and had the lumpectomy and full axillary clearance. I was started on Anatrazole for the 5 years and had 15 sessions of radiotherapy. I didn’t find radiotherapy too bad, just got a bit tired and a little bit of redness. I used E45 cream which I kept in the fridge and most of all I listened to my body and rested when I needed to. Just had my first mammogram and all is ok. There is a light at the end of the tunnel and stay positive and I wish you all the best as you start the next stage. Please keep us posted of how you are getting on. Xx
Hi Syudbx. Anyone would be struggling just having two young children, never mind having breast cancer and going through the treatment. Don’t beat yourself up, take all offers of help, I’m sure you’re doing an amazing job.I have been on tamoxifen for 2 years now. It’s not great and I have quite a few side effects. However, I know that’s not the case for everyone. Some people have no side effects at all and I hope that’s the case for you. Ultimately, it’s a life saver. I hope all goes well with the rest of your treatment and you can get back to just enjoying your babies. God bless.
Hi it is sad to hear someone as young as you with BC, I too am sorry you are on the journey with us.
My hubbys cousin was on tamoxifen for ten years, now on an AI as she is older, she had very little problems to be honest with it.
I was 52 when I was diagnosed and post menopause so was put on an AI letrozole and I have been lucky, no noticeable side effects to be honest.
Hi how flipping awful - 5years of all that! You poor thing I am having t at the moment in chemo and have those symptoms so know how at times it makes you feel old before your time - my joints is knees so a right crock bumbling about. Sending big hugs! I did hear recently that acupuncture is amazing for hot flushes and it’s just 2 needles in your leg - worth asking local hospice. Sending tea and empathy
Oh my goodness it must be a very stressful and tiresome time for you all the ladies here are willing to offer support ..i had a lumpectomy nearly 2 years ago and 16 sessions of radiotherapy and take tamoxifen ..i have had very few side effects.initially slight hot flushes and some joint ache .however it seems that when i started to get my meds from a different chemist and it was from a different make/brand they disappeared...so my advice would be if you do get some unpleasant symptoms try a different make ..i hope you continue well with your recovery xx
Hello. I am so sorry you are having to go through this especially with a young baby to look after. I had a similar diagnosis and the same treatment as you and am now a year and bit down the line. I delayed starting on the Tamoxifen until after my rads had finished as I felt it might all be too much for my body to adjust to in one go (Onc agreed it was a good idea). Radiotherapy was not too bad, I just made sure I rested when I could. It was during the school holidays but the children were great and left me in peace . Try to rest when the baby sleeps don't be tempted to run around doing chores as the priority is you and your wellbeing. Also make sure you drink lots of water throughout the day. With regard to the Tamoxifen, I have not found it too bad at all. Initially I was given the Wockhardt brand but I found it made me feel quite low. I did some research online and found that the brand Teva seems to be popular so I asked the chemist to order those for me. I definitely noticed a big improvement in my mood and have had few side effects. I find taking the tablet first thing in the morning works best for me. Good luck with your radiotherapy, you are almost at the end of your treatment, accept offers of help and be kind to yourself..:there is light at the end of the tunnel. Xx
I've been on Tamoxifen for 5 months, and I have found that a lot of the side effects - like moods, sleep disturbance, achiness, night time leg cramps etc are quite transitory. they havn't become permanent - yay!
I did however, switch to taking tamoxifen in the morning - instead of at bedtime - and my sleep went back to normal
Firstly I'm sorry to hear that your on this journey, it's a difficult one to follow. I had stage 2, grade 2 IDC with node clearance, I underwent a mastectomy with immediate reconstruction, I didn't have radiotherapy but had 6 cycles of FEC chemo and now on Tamoxifen. My kids were 5 and 1 and I was 35 when diagnosed, it was hard going and extremely tiring but they kept me going to be honest when I just wanted to lie in bed and ignore the world around me.! In regards to the tamoxifen, I struggled with hot flushes and a Chinese for the first 6months but it wore off and now I'm 2yrs into taking it and have no side effects, unfortunately it seems to effect everyone differently.
Sending you lots of positive vibes and I hope all goes well with the rest of your treatment
I’ve found these posts alone have helped me realise I’m not losing the plot. I was told my side effects were severe from the Tamoxifen (insomnia, joint pain, hormonal, leg cramps). It seems that a lot of you have experienced the same). Thank you so much!! I have just changed the brand, so fingers crossed the symptoms will reduce or even go away.