Aggie64

[Aggie64]

Hi Ime a newby Ime 51 in 2013 found a lump wen docs got sent to breast clinic had a mammogram then shortly after they called me in for ultrasound there they tuk biopsys it was so quick take me in a room n said I had grade 3 aggressive breast cancer so ad the op n lymph nodes removed went back for results said op went well lymph nodes were clear so the plan chemeo n 5 weeks radiotherapy as I thought something shown up in blood test so another ultrasound on my stomach no idea why 2 days later ct scan it was a Sunday then on Tuesday went back more nurses n doc in the room to give me worst news I cud ever imagine that breast cancer was in my liver and that Ime terminal lost the plot as you do that's all for now so emotional crying my eyes out bye for now writing it down as sort off hit me like a brick💕💕

[Hidden]

Hi Aggie64 I'm so sorry to hear your news. You don't say how you are feeling physically but, if you are able, enjoy yourself and make the most of every day. Do you have anyone with you? Tell your friends - I find that mine are so supportive and they keep me going during the worst times. Even if you don't actually see them, try and keep in touch by email or text. Failing that, keep posting on this site. Have you had a heart to heart chat with your breast care nurses or, maybe Macmillan nurses at the hospital? My best wishes and hugs are coming to you

[Aggie64 in reply to Hidden]

Hi chrissie Ime stable at moment just everyday struggles off 24 HR sweats n vomiting because I had 2 lots chemeo each time my bones are so bad had arthritis before but dear god there bad n ive found who's supportive and you deffinately find out who your friends are not impressed with few off mine 💕💕

[Hidden]

I am so very sorry to hear your news. I can only begin to imagine the shock you have had. I hope you have people around you who are going to give you the support you need. Thinking of you.

[Aggie64 in reply to Hidden]

Thanks I've got support off my girls partner me twinny sister n bris but mams got Alzheimer's so don't really AV much time to think about things and so hard to talk to people Ime really very private person and I found out who my friends are Ime stable at the moment meaning live day by day tumours in the liver are dorment on tamoxifen which is keeping me alive cud cum back anytime my doc was so happy how chemeo worked it was just to slow tumours down but done a very gud job xx thanks Ray's wife xx

[Hidden in reply to Aggie64]

Hi Aggie. You are right - you do find out who your friends are at times like this. I am glad you feel supported and that the Tamoxifen is doing its job. Take good care of yourself.

[Aggie64 in reply to Hidden]

Thankyou hope you are well to 💕🎀

[Rebec]

Hi Aggie64, so hard to understand all this as your lymph nodes were clear. How did the cancer got to the liver and bypassed the nodes? Are they sure that the problem with the liver is connected to the breast cancer? I have a friend whose husband has pancreatic cancer since 2011 and is still alive and kicking (his words). Because they caught it quite early, I imagine, they might be able to help you fight it. Don't lose hope. You sound like a fighter.

See how the treatment they suggest is going to work. There are all the time new ways to fight it.

Thinking of you and wishing you courage and strength to fight and conquer.

😚😚

[Aggie64 in reply to Rebec]

Yerr I was shocked my breast cancer is hormonal and travelled through blood apparently n Yerr it's deffo breast cancer in the liver Rebec I had chemeo therapy to slow tumours down which are now dorment so Ime stable but just gotta keep fighting to much to live for thanks xx

[Rebec in reply to Aggie64]

Your grandchildren are the ones who will continue to give you the strength to continue the fight. Great that the tumours are dormant. Such a good feeling that your doctor was amazed at your good result. Continue to amaze them by letting them be dormant forever.

Sending you a big hug!

[Aggie64 in reply to Rebec]

Thanks hunn💕💕

[Nicholjac]

Hi aggie

I cant say i know how u feel but i can imagine. I was on the exact journey as you in 2013 only i did go on and have the c hemo n radiotherapy

Did you have any treatment at the time how long have you been living with your diagnosis

Crying is good and normal and i am sure i would be doing lots if i was you .i know everyone says make the best of things and enjoy life and yes you have to but no one knows unless they are you what you are going through

I am sure all of us on here are happy to listen to anything you want to cry rant or shout about its not fair but i think lifes one long memory maker and i do things with friends n family that will create fantastic memories

How are you at the moment

Shout at me if you think im talking rubbish dont know if im saying right things but want to say something as i say not experiencing the same as you but understand and sending you a stay strong message

[Aggie64 in reply to Nicholjac]

Aww Thankyou how are you now are you doing well hope so .Ime stable at moment got diagnosed July 2013 had chemeo n it was just to slow tumours down in the liver but done better than they ever expected on tamoxifen which is keeping me alive they cud flare up anyday I fact my oncologist didn't even think I wud still be here I fight everyday my family keep me goin n my grandkids I have 24 HR sweats n chemeo I had 2 lots each time have messed my bones up had arthritis before the doc said chemeo made them so bad each day is a struggle but I will fight till we ever I have to Thankyou so much xx

[Hidden]

Oh I'm so sorry, what rotten news. Not surprised you are crying, we all would react the same but give yourself time and talk to a counsellor, it helps.

Always here to listen and support where I can. Take care xx

[Aggie64 in reply to Hidden]

Thankyou xx

[Lindakelly]

Hi, I am so sorry to read this, it made me sad. But I have also read all the replies you have had and I can't say anything else other than endorse what everyone else has said.

I have no idea how you must feel ( my lymph nodes were clear too and I have had chemo, mastectomy and radiotherapy in 2015) but to enjoy each day as much as you can and to believe miracles happen all the time. There are new drugs on the market all the time. You have already shocked your medical team with your response to chemotherapy and Tamoxifen. Onwards and upwards😘

Where are you having your treatment?

Linda x

[Aggie64 in reply to Lindakelly]

Finished my treatment while ago just on a lot off meds Linda I had my chemeo in lilac centre in 2013 just AV ct scans every 3 months really think sumone lukn after me lol hope so xx

[Lindakelly]

Hi again Aggie,

Yes someone is looking after you and it's YOU! along with all the support and love there is out there for you! Even from folk who have never met you!

So is it Hinchingbrooke where you have your care? If so do you know about the Hunts Community Cancer Network?

Linda 😘

[Aggie64 in reply to Lindakelly]

No I live in town called Prescot Linda near Liverpool I go hospice on a Wednesday only for couple off hrs but gets me out xx

[Lindakelly in reply to Aggie64]

Ok. A it of a distance from here! But glad you have some support.

Linda 😘

[Aggie64 in reply to Lindakelly]

Thanks Linda 😀

[Maureen1968]

Im really sorry to hear that aggie thats how my mam dies it spread to her liver you just keep fighting my mam passed away just before her chemo be strong hun xx

[Aggie64]

Sorry to hear that Maureen really am found out when I got dig odes when you have to go through both sides off family that me nan had it to thoughts are with you scared out me mind but my motto is to keep fighting sure ya mam was same hunn 🎀🎀

[Aggie64 in reply to Aggie64]

Diagnosed

[lovesradio]

Dear Aggie64 just sending you luv n hugs from Scotland. You got horrible news and crying is good for you. So pleased for you that chemo/tamoxifen is working to keep tumours dormant at present so live life as best you can with the support of your family and your true friends. This forum is a great place to rant to your hearts content if you need to xx

[Aggie64]

Thankyou n I try me best to enjoy life lol planning me wedding at min that's keepn me goin 😍😍

[Hidden in reply to Aggie64]

What a lovely occasion to look forward to. Sorry I didn't get back to you yesterday as my phone playing up. Thinking about your pain - I also have arthritis and my treatments have made things a lot worse - hopefully you have medication for it or pain management. I am going to try Reiki again soon which worked wonders before I had my 2 hip replacements. More hugs

[Aggie64 in reply to Hidden]

Gud luk on the rekei do ya think it works chrissie hope it duz for you ive had 1 hips dun to we're falling to bits arnt we lol sometimes ya don't AV time check your emails thanks again hugs back

[Hidden]

It certainly worked for my hip pain but haven't had reiki for a long time so will have to see. It is not for about 3 weeks but I will let you know how I get on

[Aggie64 in reply to Hidden]

Aww Yerr let us know sorry only just replying to you been bit off 🎀

[Hidden]

This is a very delayed response. I had my reiki but, unfortunately the first one coincided with my last day of radiotherapy so it was difficult to tell properly whether it helped. I certainlt felt better as regards the pain and I could stand tall which I can't normally due to the pain. I had 2 more sessions but,again, I was still suffering from side effects of radio treatment. I have just had a week's holiday with all the family in Spain and the warm weather and sunshine did me a power of good. While we were there, most of the aches and pains disappeard and my energy levels were back to normal. Now I am back home to the cold and wet weather, they are all back again!! I will certainly try the reiki again as I am sure it does me good. Hope you are feeling better

[Aggie64]

Hi aww glad ya had a lovely time on ya hols probably dun you the world off Gud my bones are so bad seem to be getting worse week by week Christie just been bak oncology gunna AV another ct scan don't AV to go back till end off July for results but ime just so tired to just found out border line diabetic n lowest ya can get on vit d deficiency need a Gud tonic or a Gud kick up the Arse just need sum energy hahaha . I need to try n find sumwere that does recki prob spelt it wrong don't go hospice now as new people were going n supposed to be for 12 weeks n I was there for about a yr so can't moan but really miss it there's nothing to do feel like been left on the shelf because ime stable aww well keep goin we have to planning my wedding is keeping me busy hope you are okay take care chrissy 🎀🎀

[Hidden]

Good to hear from you again. How far away is your wedding? I find it is always good to have something to look forward to. Hopefully this good weather we are having (assuming you are in the UK) will give you more energy. It has certainly given me more energy after my radiotherapy. Big hugs x