Does any one have experience of this ? I've done an enormous amount of research to find 'scholarly articles' I'm prepared to take time to decipher ! There's very little out there.
I'm a mystery with no diagnosis- even a biopsy revealed inconclusive Pathology. It's been 6 years now and I try to remain positive but despair is creeping in. My fragile state of mind concerns me.......the Neurosurgical team just don't know what to do with me except suggest 'Inflammation' but Neurologist says a big fat NO.....so contradictions all round. I remain relatively symptom free and Neuro says they'll only treat me if scans change unchanged and I become symptomatic. Apparently "patent presents very well" .......must be the makeup! 😏
I'm desperate to share info with anyone who has a similar case - I'm happy to share more info 😊