Subarachnoid haemorrage

Hi I am 37 and a year ago I suffered from a suspected subarachnoid haemorrhage. They never found the cause of the bleed. I am interested in any support from anyone who has experienced a haemorrhage. I suffer terrible head pain, fatigue, sensitivity to light and poor concentration. I really hoped I would feel better by now and although I am improving it feels like it is taking forever. Any advice you can give me I would really appreciate it

4 Replies

  • Hi, I'm 34 and I had a subarachnoid haemorrhage almost 3 years ago. I had a seizure which was followed by a blinding headache with sickness, pain, weakness etc. After various scans at the neurology unit in Oxford it turns out I had a ruptured blood vessel near the base of my head, caused by an AVM (arteriovenous malformation). Recovery took a few weeks although it was a good couple of months before I was feeling well enough to go back to work. I still have the AVM but I'm working with some wonderful neurosurgeons in Liverpool and we've just completed a series of embolisation treatments to stabilise it. How long have you been having these symptoms? Are you due to have any scans to try and find the cause? My advice right now is take your time... stress and worry certainly won't help :o)

  • Thanks for replying it's been a year now. I have been discharged from neurosurgery because all my scans showed no abnormality it was only through a lumbar puncture that they found a bleed. I know I have been lucky I just can't believe it's taking so long to sort itself out

  • I had my subacchnoid December 2014, with complications I was in and out of hospital for six month. Never found my bleed either but it was brought on by a heavy sneeze. Apart from initial bleed I was fortunate that it's been pain free although head colds still make me feel uncomfortable. Still troubled by fatigue despite retiring from work and able to sleep every afternoon. It helps being 58 now that I could draw down on my pension, I do feel for you. I was told 12 to 18 months for recovery so you are still course, good luck to you.

  • Thank you very much and good luck to you as it's a challenge to live with