bungi16: Is there anyone else out there... - Bowel Disease Sup...

Bowel Disease Support

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bungi16

bungi1961 profile image
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Is there anyone else out there that feels like me? Feeling as if this nasty IBS/Diverticular Disease is slowly trying to kill you from the inside out or that you are being Tortured also with this chronic pain and discomfort and having chills,shivers,poison even venom going right through your body when this pain is bad and I sometimes can't sit stand walk very far and forever scared that when you go toilet that can be so forced when going it hurts things in your body that you didn't know you had and the next day you are so tender raw and sore that you just don't know what to do with yourself and being so scared that once you have been it might UNBLOCK your self to stuff you can't control and never knowing what med's to take to make it better? As I sometimes feel I am the only one like this and yes I do know that I am not on my own and feel selfish for thinking that I am!!!!

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bungi1961
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3 Replies

Yes like there's a bowel blockage. I paid to see a private gastroenterologist in UK and he was able to issue a NHS prescription for a drug which has helped a little. How were you diagnosed?

bungi1961 profile image
bungi1961 in reply to

I had 2 colonoscopies in a month 6/7 polyps removed why he couldn't of done it in one go I just don't know in 2021 then earlier this year had another colon scan and told it was unremarkable so why I have this Diverticular Disease and IBS I just don't know and I am P***D right off with it all now

Angrybelly profile image
Angrybelly in reply tobungi1961

I've had diverticular ibs disease for years. The medical term for this is SUDD or symptomatic uncomplicated diverticular disease. It is relative a new type of ibs because it deals with how the colon acts in some people when they have diverticulosis. The majority of people don't even know they have diverticular disease until they get an actual diverticulitis attack. Usually they get antibiotics and put on a bland diet and sent home. For some after these scenarios they get chronic ibs like symptoms lose stools cramping pain, urgency to have bowel movements multiple times. The truth is that for some one the sigmoid is damaged there's no way to turn back even if you have elective surgery. The signiud is the final holding place for stool where all the final account of water is removed and it is where most of the pressure exists. That's why it's the most common place for diverticula. The idea of lack of fiber is controversial. My doctor said he thinks it is due to genetics mostly and not due to lack of fiber except we do have a terrible diet in western countries. To continue once the sigmoid is damaged it thickens and is not able to prepare stools normally. Now you get gas pains, loose unformed stools diarrhea, constipation and cramping. This is chronic and you must manage with diet etc. I've tried rifaximin, mesalamine etc etc. Try to give your body natural fiber, and cut down on toxins. Drink a lot of water and herbal teas to reduce inflammation. Nothing else works except maybe surgery but that comes with other issues that may be worse.

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