Teriparatide 'Help'

[Rooruby]

Hi I had my 1st teriparatide injection Tuesday at 10.30am with nurse. After 15 mins felt shaky and hot but after that ok. After 4 hours felt really tired that night slept differently to normal wKing up alot. Yesterday I did my own injection at 7.45pm as I wanted to change it to evenings. Felt OK went to bed around 10pm again kept waking up. By 7am this morning had terrible headache and nausea and neck really painful. I don't think I can continue like this so my question is will these side effects ease of and how long also I'm concerned about people saying they faint as I drive alot so it's quite scary. Any help appreciated

[Motown_1960]

Hi Sorry to hear the injections are making you feel so bad . I’ve been on Teriparatide for about 7 weeks now like you I inject myself at night . Two days before i started the injections I ended up having shingles which wasn’t pleasant. It does make me feel slightly nauseous and I’ve only woke up once feeling sick during the night. I think we’re going to have good days and not so . I hope you persevere with the injections and feel better soon Take care

[Rooruby in reply to Motown_1960]

Thank you I have been exhausted all day after being sick this morning and have a headache. I have managed to eat a little . I going to keep up with injections until after weekend to let my body adjust if the headache goes I will feel better so fingers crossed.Are you still unwell after 7 weeks or manageable side effects now x

[Motown_1960 in reply to Rooruby]

Hi are you taken anything for the headaches? I’ve been not to bad . I’ve given myself a few bruises . I hope you feel better soon. You can let me know how your doing x

[Rooruby in reply to Motown_1960]

I did take paracetamol this morning then was sick. Headache worn off now and just done 3rd injection fingers crossed I will wake up ok. I have to keep it up as I too have spine fractures. I hate this osteoporosis. I have not managed the bruises yet lol hope your now doing ok after the shingles that is awful I have had that near my eyes ut was awful. Have all your side effects gone and how long was it until you felt better.

[Motown_1960 in reply to Rooruby]

Yeah was certainly a shock to be told you have osteoporosis . My doctor told me I’ve just been “unlucky “ as all my bloods have came back normal and no family history. I started having pain in my back and front . I was beginning to think I had another fracture then the spots appeared after a week, which I still have but not as painful. I’m still a bit anxious before I injected myself , but I think it’s only natural to feel that way . I’m just trying to keep active and stick to a healthy diet.

So far I’ve been okay so hopefully that will continue. x

[Rooruby in reply to Motown_1960]

Same as told unlucky glad your getting on with it. I will keep trying and let you know thanks for the help xx

[Rooruby in reply to Motown_1960]

Same as told unlucky glad your getting on with it. I will keep trying and let you know thanks for the help xx

[WhiskyPrincess1008 in reply to Motown_1960]

This is the first I have written anything and I am not sure if I am doing it in the right place. I am now on my 5 th month of Teriparatide. When I started it used to give me a feeling like pins and needles. Now I don't experience any side effects like that. I do get wee bruises but I think some days I do the jab better than other days. I am told I have very severe osteoporosis. I was also told it had to be hereditary to be so severe. I was a walker and it was a big part of my social life with my 2 best pals. I am starting to accept that is a thing of the past. Hope your side effects start to improve.

[Dancingdina in reply to WhiskyPrincess1008]

The injections are considered to be more effective than taking the weekly aledronate tablets and when your bone density improves walking (using walking poles on rougher ground ) would be beneficial

Keep up healthy diet with calcium, magnesium, vit d, boron also recommended

[WhiskyPrincess1008 in reply to Dancingdina]

Thankyou for your reply. That is good to know xx

[Rooruby in reply to WhiskyPrincess1008]

Glad your doing ok now I feel better this morning just severe back pain. I to have severe T Score -4,7 no one in my family have it so they said I was unlucky I used to walk miles and was very active. Since the fractures I have not been as mobile but do try to get about . Good luck with your journey xx

[Rooruby in reply to WhiskyPrincess1008]

This site is so helpful glad you posted xx

[WhiskyPrincess1008 in reply to Rooruby]

Thankyou xx

[Motown_1960]

Yes please let me know . Fingers crossed you wake up tomorrow feeling much better . Good night x

[Rooruby in reply to Motown_1960]

Night x

[Rooruby in reply to Motown_1960]

Good morning sickness has gone today just a niggling headache which is manageable although my spine is in alot of pain today but to be honest I'm so use to backache. Thanks for your support xx

[Motown_1960 in reply to Rooruby]

I’m so pleased to hear your not feeling as sick today Take care x

[Rooruby in reply to Motown_1960]

Thank you xxx

[Tagliatelli]

Just to reassure you. I have been injecting for about 5/6 months and I’m okay on it.

[Rooruby in reply to Tagliatelli]

Thank you x

[Salmon20]

Good morning Rooruby

I have been injecting Teriparatide for 18 months

In beginning I did feel a little odd wasn’t sure was it because I was so nervous Mine was sudden diagnosis from severe loin pain to osteoporosis over night I had multiple spine fractures

I was lucky as when I saw consultant he advised me to drink at least 1.5 litre water daily and it helped with headache I still get a little discomfort in by bones from time to time but nothing like original pain

I just had DEXA scan and bone density increase by 16% So hopefully you can hang in there as it definitely works

I have had no issues with driving

Wishing you good luck and speedy recovery

[Rooruby in reply to Salmon20]

Thank you for the positive reply My head is just niggling today nothing like yesterday it was awful I could not even stand. I also drink lots of water. Today my spine is so painful but like you say we have to try and push through this. So happy you have a 16% improvement xxx