Hi new member took alot for me to join.

[Mongy90]

Last 2 years have been hard. Two broken ankles still in pain but trying to get through it.

[Met00]

Sorry to hear about the fractures. It must be hard to stay mobile and active with painful ankles. Are you on osteoporosis medication? Did they run tests to check for any underlying causes?

[Mongy90 in reply to Met00]

I am taking alendronic acid which has a lot of side effects and needs dental supervision I had to push for a dexa scan after doing some reading.

[Met00 in reply to Mongy90]

What were your t-scores?

[Mongy90 in reply to Met00]

Hi my t-score -2.8 lumbar hip-2.5 do you have osteoporosis.

[Met00 in reply to Mongy90]

Yes, I was diagnosed 10 years ago. I don't take any medication, but haven't had any fragility fractures. I posted recently about my latest REMS scan results (REMS is a private alternative to DEXA, uses ultrasound rather than x-ray). I've kept my bone density stable for the last 5 years.

[Mongy90 in reply to Met00]

That's good been a rough road for me I was in hospital 2 weeks,found out 6 months later they knew I had osteoporosis and said nothing. I had to see occupational health at work he told me I should have been put on medication. So I pushed my Doctor for a Dexa was persistent till I got one, and finally medication.

[Met00]

Your scores aren't that bad. Have they run blood tests to check for causes?

[Mongy90 in reply to Met00]

Just had blood test 2 weeks ago nothing. My maternal nanny had it also apparently it's hereditary.

[Met00 in reply to Mongy90]

Did they check parathyroid and coeliac?

[Mongy90 in reply to Met00]

No they haven't checked that.

[Met00]

I would recommend going back and asking for parathyroid, vitamin D and calcium to be checked in the same blood draw, plus coeliac, thyroid and a full blood count. Hyperparathyroidism is a fairly common cause of osteoporosis (because it takes calcium from the bones) and can occur with normal blood calcium levels, but doctors often fail to test for it. Two people in my osteoporosis support group have recently been diagnosed with it after specifically requesting the blood test.

[Mongy90 in reply to Met00]

Wow knowledge is power I will certainly be asking for that Thank you

[Met00 in reply to Mongy90]

You may need to be assertive. If your doctor says your blood calcium is normal, point out that it's possible to have "normocalcaemic hyperparathyroidism".

[ROSModerator Partner]

Hi Mongy90 ,

Just wanted to wish you a very warm welcome to our community Thank you for joining us here, and for posting - we agree, it does take a lot of courage to do so

Just to let you know we have lots of information and support for living with osteoporosis on our website: theros.org.uk/information-a...

We hope that you're able to continue to connect and share with our wonderful members - it's really important not to feel alone in our health journeys.

Wishing you all the very best,

Lulu

ROS Moderator

[Freshair24]

Hi just wanted to sympathise over the broken ankles . I am currently nearly recovered from one ,it's slow and painful, but I'm getting there. I have had good physio advice and have an ankle brace to support if doing a longer walk on uneven ground. Anyway hope you are well into recovery ,your fractures sound worse than mine

[Mongy90 in reply to Freshair24]

Hi my left ankle broke in 3 places and dislocated my heel, I am 2 years down the road and in pain referred back to hospital. Maybe they might remove the 3 plates and pins just have to wait for appointment Thank you