Teiparatide

[Jemima48]

Hi, I'm just starting my second year on teriparatide. When I first started, I used to get dizzy spells about an hour after injecting and had to lie down until they'd passed. The notes say this is a common reaction and I started injecting at night, as advised. Now I'm getting quite frequent dizzy spells at any time, even just before an injection is due, and often feel tired and 'druggy'. I'm wondering if the teriparatide has an accumulative effect, though this is not mentioned in any of the literature. Has anyone experienced similar symptoms? Thanks.

[Teriparatide2024]

Hi Jemima48. I had the same issue with Teriparatide. Dizziness. But as time went on, I started to get palpitations just after injecting. And I began to get very down.- depressed. Friends told me that. So after seven weeks, I stopped the treatment.

I’m now scheduled to start with Denusomab 🤞🤞🤞

[Jemima48 in reply to Teriparatide2024]

Thank you - sorry you reacted so badly, but helpful to hear I'm not alone. I've also been told I should move onto denusomab when I come off, but am scared about the bad experiences some people have reported and the fact that, apparently, after the first treatment there's no going back? Alendronates did me no good when I was on them, so I'm told zoledronic acid is unlikely to work either.

[Teriparatide2024 in reply to Jemima48]

Apparently we get up to 3 injections (18 months) before we have to make that decision. So I’ll see how I tolerate the first and/or second injection…. And it’s still ok to stop then. However, then what? - it’ll be Zoledronic Acid…….

[Darkchocolate1]

Four hours after injecting it I got horribly dizzy then it progressed to sweating and room spinning and then I fainted. I quit it after I fainted a second time. My side effect sheet states that happens to some people. I am now being pressured to take Prolia. Still scared of side effects.

[Jemima48]

I know, there seem to be risks whatever you take (or don't ). Thanks for replying.

[Jemima48]

Just as an update, I rang the ROS and the nurse said that teriparatide can cause both anemia and ear problems, so advised me to see my GP to get those possibilities checked out before coming off too soon. I find these specialist nurses more informative than my rheumatologist!She also mentioned strontium ranelate as a good medicine to move onto instead of denosumab (which they don't recommend you start till uour late 70s as uou shouldn't be on it for more than 10 years). My rheumatologist said it was no longer available, but she explained that it isn't at the moment but should be next year.

Hope some of this is useful to somebody!

[ROSModerator Partner]

Hi Jemima48

Dropping by to wish you a very warm welcome to our community 😊 It's great to hear you had a positive experience with our helpline - we really appreciate you sharing this with others. Our community is a place to connect with others who understand, so thank you for joining us here!

Wishing you all the best,

Lulu

ROS Moderator