I’m coming to the final month of teriparatide. I’ve had no follow up from the bone clinic at all. The teriparatide was prescribed the day before first lockdown and it took 2-3 months at least to sort out getting it delivered so there was quite a delay starting it.
i went back to look at the original letter from the clinic. One thing it says which I didn’t pick up on at the time is to repeat the dexa after 3 years.
Now obviously I need to be followed up quite urgently now, for some reason I’d assumed they would get in touch but I’m now thinking I’ve completely dropped off the radar due to lockdowns.
Also - how on earth am I supposed to make a decision about what to do next without a clue whether the teriparatide has done anything and if so what? The consultant was very high and mighty and seemed to expect I’d do whatever he advised without questioning in any way but he soon found out I’m not having that.
So I want an urgent clinic appointment and a repeat dexa very soon. Just to make it more complicated I was given massive doses of antibiotics for cellulitis and now have c diff (which the GP refused to test for because he was also high and mighty and pretty insistent I needed urgent tests for bowel cancer.. only got tested when I insisted and not a word of apology when he rang me to say I’d tested positive).
Not feeling massively positive about my health care just now.