Prolia and osteoporosis

Hello, I just got my first shot of prolia 10 days ago. I did have two small hives on abdomen for about 1 hr.5 days after my shot.then I stared having neck ,and shoulder pain and today I feel like some one punched me in my arm. The bone feels really sore. I did call my rheumatologist , and I'm waiting to hear back. I was just wondering if anyone out there had a prolia shot, had similar side effects. Also, if so, how long did the side effects last.

Thanks for any and all positive or negative responses on prolia. Barbara

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Batbara

in reply to Kaarina

2 years ago

Well it's been a month since my initial injection of Prolia.

For the last week I've now been very achy in my body when I'm sleeping and when I first get up in the morning. Almost seems like I got a shot of arthritis. After I been up for a little while it subsidies. I hear my bones in my neck creaking when I lift my arms a certain way. Also , I have woke up two separate nights sweating around my neck. That is very unusual for me . I didn't even have night sweats going through menopause.

I called amgem and spoke to one of there pharmacist and he was a little vague on some questions I asked. He said the medication is out of your system in 6 months, but there is no test that can conclusively confirm that. I don't really know my next step. Was even thinking of going to a nutritionist. It's a nightmare dealing with this bone problem . Your dammed if you do and dammed if you don't.

I will report if there are any other manifestation I think might be related to injection . Of course some things might be a coincidence , but I tend Not to believe that.

As always, sending good health to all!😀

Kaarina

in reply to Batbara

2 years ago

Hi Batbara

So good to hear from you but unfortunately does not sound so great with the side effects you are now having and I am sorry. That is my one biggest fear with these injections. I already have osteoarthritis and had numerous joint operations and am never pain free from from some OA aches and pains. The thought of receiving more discomfort as a result of taking Prolia which is what the endo suggested I start when I see him in August, is not really what I wish for at all. Trouble is what to take as I should be taking something for my dodgy spine.

I totally agree with you that it is a nightmare this OP and what to take. Not enough is known about these drugs which does not fill me with confidence.

On the plus side, perhaps the aches/creaking you are noticing at the moment will disappear in the next month or two. I sincerely hope so for your sake.

We are all different and some will not get these symptoms but for me, already with a history of bone pain I am really not keen to go down this route and will let the endo know my feelings (which he already knows) when I see him in August.

Please do keep in touch,

Gentle hugs

Kaarina

TommyJohn

in reply to Batbara

a year ago

I'm on my 5th year of Prolia and get various tingly darts of pain occasionally. I made the choice of enduring what I 'must' go through so I will never have to suffer another fracture. Bear in mind that your bones are (for want of a better word I'm going to say reforming or rebuilding) so it is only natural that they may feel stiffer or harder. From what I can gather, this creakiness can also be part of aging and perhaps arthritis.

PS my readings are from -4 to a high -5.5 and to add insult to injury I've now developed a friggin hernia.

Keep going and let us know how you get on. Also its not everyone that is suitable for Prolia so you can also count yourself lucky.

PPS. Why in gods name do us OPs seem to also gt other complications

Try to cheer up and remember - - -as my GP says, we may die with it, but we won't die because of it

Cheers

Tommy

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2 years ago

Hello, from your posts, I believe you must be in the UK. Has anyone advised you of the side effect that Prolia has in some cases.....it can cause bone loss in the jaw, making certain types of dental work very difficult or impossible as far as implants, etc. in the future.

Prolia is usually given as an injection twice a year in the MD's office here.

One of my sisters is taking it now, but is looking to see if her insurance will cover Forsteo instead. Try asking your doctor about switching to Forsteo and watch her faint. It is very expensive (Retail cost is $2400-$3000 US Retail per 28 daily injections at home, about one month's supply, for up to 24 months.)

I have read several posts where it was provided only as a medication of last resort in England.....one woman was prescribed Forteo because she had so many fractures she was in chronic pain, deformed because her back could no longer support her. That just didn't make sense, as Forsteo can't help fix the fractures nor help with pain. It is focused as a very early medication after the first fracture is found, on working with the body to produce more new bone material to prevent the progression of fractures, not trying it because nothing else stopped the progression of the fractures.

I am in my third month of Forteo in the US, as it is the medication of first resort after the first osteoporosis fracture occurs. Its focus is to prevent future fractures, but does not mend old fractures, nor provide pain relief from old fractures. If you have a number of fractures, it may be of no help at all. I had fall last year, resulting in my first and only so far vertebra fracture which was mended in the OR with a vertibraplasty. This sounded the alarm for my doctor to put me on Forsteo. He wouldn't even consider anything else.

Forsteo is the only thing currently available to encourage one's body to produce more new bone material to keep up with the amount of old bone being sluffed off.

The other medications available try to get your body to hold on to old bone matter longer because your body is not producing enough new bone growth to replace the amount of old bone your body is sluffing off.