Prolia and osteoporosis

Hi Batbara

I am sorry that I am not able to help you but the side effects you are experiencing is just the reason why I do not wish to have a shot(s) of prolia. I have enough daily bone pain anyway (osteo-arthritis)) and am not prepared to take the chance that I may well get more.

You could call the helplines but I would think that each patient would be different with how long any side effects would last if one was unlucky to experience any. It is early days for you so here is hoping the pain you are experiencing will disappear.

Certainly will keep you updated on my situation. What are you taking now? And why is it being withdrawn?

I called my rhumy and now waiting for a call back.i will contact you kaarina as soon as I hear back from Doctor.

Hello, from your posts, I believe you must be in the UK. Has anyone advised you of the side effect that Prolia has in some cases.....it can cause bone loss in the jaw, making certain types of dental work very difficult or impossible as far as implants, etc. in the future.

Prolia is usually given as an injection twice a year in the MD's office here.

One of my sisters is taking it now, but is looking to see if her insurance will cover Forsteo instead. Try asking your doctor about switching to Forsteo and watch her faint. It is very expensive (Retail cost is $2400-$3000 US Retail per 28 daily injections at home, about one month's supply, for up to 24 months.)

I have read several posts where it was provided only as a medication of last resort in England.....one woman was prescribed Forteo because she had so many fractures she was in chronic pain, deformed because her back could no longer support her. That just didn't make sense, as Forsteo can't help fix the fractures nor help with pain. It is focused as a very early medication after the first fracture is found, on working with the body to produce more new bone material to prevent the progression of fractures, not trying it because nothing else stopped the progression of the fractures.

I am in my third month of Forteo in the US, as it is the medication of first resort after the first osteoporosis fracture occurs. Its focus is to prevent future fractures, but does not mend old fractures, nor provide pain relief from old fractures. If you have a number of fractures, it may be of no help at all. I had fall last year, resulting in my first and only so far vertebra fracture which was mended in the OR with a vertibraplasty. This sounded the alarm for my doctor to put me on Forsteo. He wouldn't even consider anything else.

Forsteo is the only thing currently available to encourage one's body to produce more new bone material to keep up with the amount of old bone being sluffed off.

The other medications available try to get your body to hold on to old bone matter longer because your body is not producing enough new bone growth to replace the amount of old bone your body is sluffing off.

good morning, sorry to hear of your reaction, it can be pretty scary - I had severe shoulder and neck pain in the bones and muscles, ie couldn't move my head and neck followed by horrendous muscle spasms in my neck going right up into my head, this was with the weekly bisphosphonate, they have now prescribed a monthly dose which seems to be OK but I am still very 'iffy' about the whole medication situation for OP. I now include neck and shoulder exercises in my daily routine to help build up those muscles. Hopefully the multi-skeletal pains will subside. When I saw the rheumatologist re these pains I was told that they had never heard of anyone having this type of reaction - I say more!!!!!!!!!!!!!!!!!!

kind regards..........................

Well I heard back from the doctor and he said he has not heard of this side effect. He keeps telling me that of all the osteoporosis drugs out there this Is the one that shows the most bone growth. I wonder who is doing all the research. ( probably the drug companies that create the drugs).

Anyway, he said I should take my next shot in November and see how I'm doing then. I'm very suspicious of Doctors prescribing drugs, so I don't know if there will be a second shot for me. Guess I have to do more homework. Then I'll really be baffled and confused. Lol😂.

As for the pain in my neck, better but still have it. The shoulder and arm pain has lessened considerably.

Wishing you all good health.

Well I'm seven months out from my one and only prolia shot. Still have neck and shoulder soreness and some stiffness. Still sounds like Velcro neck, and My hair stopped falling out . I will be seeing an endocrinologist for a variety of health reasons including osteoporosis.

Started back at gym . Hadn't gone for sometime due to copd. I will slowly do some bone building exercises and eat calcium rich foods . Also will take vit k-2 in the form of mk-7. That's suppose to put the calcium in bones instead of going into arteries and soft tissues. Will see what endo doctor has to say.

Hope you all are doing well. I'll keep you posted!😀