What is happening to me

[Joschua]

Hello everyone! Haven't been here for a long time due to feeling not great. I have cirrhosis, and be diagnosed with cancer to. In the last few weeks Im experiencing something which scares me. Its at night. I can not sleep so Im taking a sleeping pill which helps. The problem is that in the last few weeks Im experiencing 2dreams which are not really like dreams. Im lying in my bed sometimes watching something on you tube before getting tired Turning Video off and just lying there waiting to fall asleep. Suddenly from one second to the other Im suroundet by blackness but still feeling myself. Like today. Im than getting really scared and realise that I have to wake up which is really hard. One example today Ifelt my daughters arm pulling me and saying something like if I need help. The thing is she is not even near me. Im feeling myself standing next to my bed but its completely dark feeling my daughter next to me helping me to wake up. Than suddendly I reach a point where I manage to wake up gasping for air. Than I turn the light on and fight to fall asleep for the rest of the night. Its scaring and those "dreams" are happening more often. Maybi Im going crazy or my brain is overloaded with toxins because my liver is not working .

Does this sound familiar to anyone here.?

This maybi sounds wired or strange but Im trying to explain something in english which is not my language. Anyway Iwish all of you a very happy new year. I hope Im not uppsetting anybody which is not my intettion.

All the best Yoshua

[DancingEyes63 Moderator Caregiver]

Hello Joschua. I'm so sorry you're experiencing these things. I don't really know what to tell you. Have you been diagnosed with HE due to your Cirrhosis and cancer? You mentioned that you thought it might be caused by toxins. My husband has Cirrhosis and liver cancer and he also has HE (Hepatic Encephalopathy) caused by build up of toxins in brain. He takes a couple of medicines (Lactulose and Rifaxin) to help. It's made so much difference. He was confused, having nightmares, mood swings, even hallucinations due to this. The medicine has helped tremendously. Maybe ask your liver Dr or GI about it. I'll keep you in my prayers. Sharon

[Joschua Patient in reply to DancingEyes63]

Hello thank you. Im first was diagnosed with hep.c cirrhosis and last year cancer. Yes Im taking lactulose and will ask my liver specialist actually tomorrow about other medicines. Im experiencing also confusion etc. Around to many people Im getting so confused that Im disapearing into my own room. Sanctuary! Its good that my family understands this. Having my own room helps Sometimes I think off liver failure or coma.......?Thank you for responding and will let you know what the Doctor says.

All the best for your husband. Have a happy new year.

Yoshua

[DancingEyes63 Moderator Caregiver in reply to Joschua]

Happy New Year to you also. I'm glad that you have a place to retreat from the world. Being around too many people makes him nervous. He also takes something to help his nerves. Maybe ask Dr about that when you talk to him. When he gets nervous, the confusion seems to get worse. 💖🙏🙏🙏💖

Sharon

[Joschua Patient in reply to DancingEyes63]

Yes exactly when Iget nervous confusion is rising. Thanks Dancing Eyes63 you really helped me. Iwill let you know what the Doctor says tomorrow. Joshua

👍

[Joschua Patient]

Hello Sharon just to tell you that Ihad my Doctor Appointment which lasted 5 Minutes. So Ihave an date for a CT Scan in March. He did not even remember who Im. Annyway Im taking lactulose which I can buy without prescription . The health service is not very good here but better than nothing. Will now wait till march. Anyway all the best for you and your husband. Thank you for responding it really made a difference to know that hallucinations and confusion can appear. Livercancer is a beast as you wrote in an other post. Till an other time

Joshua