Sudden onset extremely High BP and Addisons....??

[Horsecrazylady79]

Hi just wanted to say hi to everyone and to see if anyone could shed some light and help me.... (warning, its a long one! Sorry!!) For as long as I can remember my BP has always been 90/60, apart from when I was pregnant and even then it didn't go about 110/90!!

I have Addisons Disease which is an adrenal insufficiency condition, and when first diagnosed I was also put on fludricortisone to stop my BP from dropping too low as I used to get attacks of POTS if I stood, turned or moved too quickly. But then in 2019 I had injections put into the base of my spine and I had a bad reaction, my BP flew up to 253/176 no word of a lie, I have the pics of the monitor somewhere! I spent the day in hospital with them pumping me full of BP drugs to bring it down. They managed to get it down to 158/117 and sent me home with medication and asked to reduce my Fludro but to keep an eye with the GP incase it tanked back down and I needed to go back on it. Unfortunately, after a couple of weeks I had to come off it altogether as it never came down, over the years I've tried many inc ramipril, and then most recently I was put on losartan which seemed to work from last spring to just before Christmas, still higher than it was before, but steady at 138/101 ish. Over Christmas I was really poorly, started with COVID then the flu and then a chest infection, my BP shot back up to 268/167, I couldn't move without my head pounding and feeling like something was going to explode out the side of my temple! Now I'm on amlodypine and Losartan. Its taking longer to work, its still usually hovering around 160/113. I get palpitations, irregular HB, my pulse is always over 110bpm, whereas before it was never really higher 68/75 even during or after activity as I was always very active until I had a slip disc and impinged nerves that got excruciatingly worse, and osteoarthritis in my pelvis as a result and also in my knees, now I'm not as mobile. I've also got Autoimmune thyroid disease, hemiplegic migraines, and a functional B12 deficiency.

Do you think my other conditions are impacting my BP even though they never have in the past? I'm lost amd fed up of not being able to breathe, feeling like my heart is going to explode out of my chest amd like my head is going to explode if I stand up or walk to quick after standing because of the sudden pressure build up.

Thank you for reading, sorry its a long one 😊

[Happyrosie]

I’m so sorry Horsecrazy for your problems - but I think they are way outside our competency here on this forum. The only suggestion I can make is for you to contact the charity Blood Pressure UK.

[Brisk61]

You do have a lot to cope with, undoubtedly your high B/P must be partly related to all those health conditions and generally what u have to cope with daily. If only it was possible for your consultant of rheumatologist, endocrinologist to get together to discuss your case u May see some results, u could always write to them and suggest it. I wish u lots of good wishes.