What would you like to learn about? - HealthUnlocked Blog

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What would you like to learn about?

386 Replies

Hi everyone,

We have a very exciting announcement for you. We’re launching eLearning Programs to all members of HealthUnlocked.

What is an eLearning Program?

Short, online and self-paced educational programs created for you by our expert community partners and non-profit health organisations, to help you manage your health.

We’re just getting started, so we’re sorry that most of you won’t have a relevant program straightaway - as this is a brand new addition we’ve added to HealthUnlocked. We’re working hard to offer programs to cover every condition and wellbeing topic. We just offered this technology to all our non-profit community partners and many are starting to look into it.

In the meantime, have a look at some of the available programs we have to offer now:

- Understanding Clinical Trials: healthunlocked.com/programs...

- Living with Lung Cancer: healthunlocked.com/programs...

- A Practical Guide for Dementia: healthunlocked.com/programs...

- Your Hearing Matters: healthunlocked.com/programs...

- Living with Stage 4 Chronic Kidney Disease: healthunlocked.com/programs...

If you know an organization that could benefit, you can tell them about HealthUnlocked by sharing this page.

And don’t forget to leave your program topic suggestions in the comments below or you can contact us on support@healthunlocked.com.

What would you like to learn about?

Read more about...
386 Replies
nmcv13 profile image
nmcv13

Asthma please! Still learning how to manage this condition 5 years from diagnosis, and it’s changing all time. Thanks.

Nicky

fibroglow profile image
fibroglow in reply tonmcv13

Asthma also &. Bronchitis thanks. x

Portobello profile image
Portobello

"An auto-immune condition: what it is and how to live with it." please.

Pacitto profile image
Pacitto in reply toPortobello

Portobello I would like this too x

Smckntsh3 profile image
Smckntsh3 in reply toPacitto

Me too as I have a number of them that are all similar & overlap.

Best diet & alternative therapy & supplements etc

Pharmaguapa profile image
Pharmaguapa in reply toPortobello

Great suggestion

volvox45 profile image
volvox45 in reply toPortobello

Yes please. I have a rare one (limited systemic scleroderma) and could do with more general understanding.

willemine profile image
willemine

I would like a pain management program (:

Pacitto profile image
Pacitto in reply towillemine

I agree pain control x

in reply toPacitto

Yes, definitely xxxx

Mum27 profile image
Mum27 in reply to

I agree pain management x

HevP profile image
HevP in reply towillemine

I agree, Yes Please x

Hbazzle profile image
Hbazzle in reply towillemine

Agreed!

74DM profile image
74DM in reply towillemine

Pain management and Diabetes

Seuzan profile image
Seuzan in reply towillemine

I agree!

Boombiddy profile image
Boombiddy in reply towillemine

I agree. Living well with chronic pain..

Paperartist profile image
Paperartist

Information on type 2 diabetes, explain bolus dosing, mixed dosing of insulin.

Suggestions on how to.manage taking multiple medications at different times.

Symptoms of Parkinson

Talk about early onset Parkinson

Things to know when rehabing you knee

Auto immune diseases

Reliable websites for getting help with your medication costs

The impotence of taking antidepressants regularly and on schedule.

chelsea1515 profile image
chelsea1515

I have severe scoliosis and don’t get much help or advice. I was always extremely energetic and mobile until I reached my late 60’s and now suffer breathlessness (apparently one lung is greatly reduced in size due to skeletal deformity) and lower back pain. I had tendon reconstruction of the hip muscles due to tears so am painfree there but am finding it really difficult to support myself even though I have kept my weight to 9 stone.

francesw47 profile image
francesw47 in reply tochelsea1515

thank you, I too have scoliosis and have no support. I would like to learn more about this in older age and how to stay mobile.

rltm profile image
rltm

Nutrition please. (1) optimising diet and nutrition for specific conditions - IBS, chronic fatigue etc. (2) general nutrition courses, and if possible geared around going towards veganism and ensuring you still get all the nutrients you need. In general: eating for wellness!

Nikksgramma profile image
Nikksgramma in reply torltm

Yes please. Information about proper diet for NAFLD/NASH. Also healthy weight loss for a lacto ovo vegetarian.

Knittingrunner profile image
Knittingrunner

Addison’s disease in particular managing exercise would be good as would Crohn’s disease.

Teddysdad profile image
Teddysdad

Hi, sounds like a good idea and I guess most of us are going to reply with whatever our condition is, so for me something on Prostate Cancer would be useful.

But also programs that compliment that i.e.

Pain Management

Diet and Nutrition

Complimentary Health

CBD Oil

Coping with a serious/life threatening illness

Keeping fit

and I am sure there are many more.

Personally I think short soundbites or items of information are better, so a 2 minute video and not 10 minutes, better to do 5 x 2 minutes. Likewise with documentation.

Hope this helps?

Phillip

SusieJo1948 profile image
SusieJo1948

I know you have a community for psoriasis but I would like to know more I have 4 different kinds pustular,erthrodermic,guttate and a little plaque it's a autoimmune disease. Would like to know why and what causes It. My immune. system is messed up bad 7 years ago the chemo finished it pretty well off.so I can catch anything going around. So I would like too learn about the immune system. Love susiejo1948

alphalogan profile image
alphalogan

Learn about living with restless leg syndrome please

ClareCrip profile image
ClareCrip

Supporting people with mental health issues would be one. I’d also like to understand more about conditions within the neurodiversity spectrum and again how to be a supporter/ally.

Annlorraine profile image
Annlorraine

High blood pressure ' kidney problems ' weight' sleep' fibramilga '

Please

pa259 profile image
pa259

Anxiety, Depression and Stress would be good plus Nutrition for IBD and general health

Mopsy1950 profile image
Mopsy1950 in reply topa259

Yes please I would love more knowledge on depression have been on meds for about 15 yr ,would be great to manage with 1 less med to take

Huffnpuffer profile image
Huffnpuffer

Information about Primary Immunodeficiency, and how best to live with it. I have CVID, my blood cannot make Immunoglobulin which leaves me open to serious infections from all bacteria, viruses, fungus, moulds etc. My GP knows nothing about my condition, and I only get to see my Immunology Consultant once a year, so I have no point of contact for help and advice. Any information would be wonderful.

Dempo profile image
Dempo

Gentle exercise for the over 60s for those suffering from Heart Failure/Angina.

Easy changes to your diet to reduce cholesterol.

Nurses2019 profile image
Nurses2019 in reply toDempo

That's something I would be really interested in as well

Hi. Diet & Nutrition + Cirrhosis thanks + Afib. 👍

foxglove profile image
foxglove

How much of. that we are told are essential really are

hearty1 profile image
hearty1

This sounds interesting. Will there be a charge for elearning? I woukd like to learn about Autoimmune Diseases.

Coronary Heart Disease : Atrial Fibrillation.

Rheumatoid Arthritis.

Coeliac : Food intolerances.

IBD: Safe food.

rainbow141 profile image
rainbow141

I would like to learn about Vulvodynia and Foot neuropathy.

Mopsy1950 profile image
Mopsy1950 in reply torainbow141

I too would be keen to know more on foot neuropathy as my husband has it and getting to stage we don’t know how to cope with

Fishing1949 profile image
Fishing1949

Latest info on all aspects of both wet and dry AMD.

micox profile image
micox

Degenerative lumbar scoliosis and stenosis - how far does it go? COPD; essential tremors; osteo arthritis; type 2 diabetes; peripheral neuropathy; single sided deafness; unipolar depression; ataxia.

Pacitto profile image
Pacitto in reply tomicox

I agree on all of these x

Amyskb profile image
Amyskb

Living with endo. Diet and other things that helps

trishj46 profile image
trishj46

Please more about pudental neuralgia----how to live with it!

teachersmate profile image
teachersmate in reply totrishj46

I agree. Various treatment options.including suppliments and alternative treatments.

MrsF75 profile image
MrsF75

Hi accurate information about Endometriosis, treatment options, including pain management, complimentary therapies and follow-up advice. Any help to challenge GPs and consultants, as well as unbiased pros and cons of medication. Thank you

kakikoki profile image
kakikoki in reply toMrsF75

same here please plus gum disease is it to do with the periodontal or endometriosis ? what to avoid in nutrition if we have endometriosis ibs and pcos .

Teanna profile image
Teanna

I have many health issues but still don’t understand how I can so many at one time. Understanding the medication and what damage they can do (I have Liver failure through medication). How consultants say one thing but report another???

Most of all, loneliness, depression, and fatigue.

SOLLYTHEGOLLY profile image
SOLLYTHEGOLLY

A course on dealing with health anxiety would be great.

smmmi profile image
smmmi

IBD-Ulcerative colitis.

Nutrition and Diet please. I've been newly diagnosed with a chronic disease Primary Biliary Cholangitis and Autoimmune Hepatitis. Any information regarding a healthy diet to protect my damaged liver would be most helpful!

RLSgirl profile image
RLSgirl

I'd like to see more info on nutrition and alternative health/medicine.

Also the topic of mental health dealing with your thoughts and emotions and how they affect your physical health and wellbeing would be great!

StreetPastor profile image
StreetPastor

Pain management

Financial help

Relaxation

Heavymetal profile image
Heavymetal

CREST please, I’ve been amazed at how many of my weird and wonderful symptoms are shared with other members even though GPs seem to know nothing about them. Thankyou

Cindy121 profile image
Cindy121 in reply toHeavymetal

Any of the autoimmune diseases related to scleroderma. I have Eosinophilic Fasciitis and most doctors have never seen it before.

Heavymetal profile image
Heavymetal in reply toCindy121

I’m sure my GP thinks I’m making things up so I am really glad to have joined this group; I’ve learned so much

Weeme53 profile image
Weeme53

Diabetes and diet please

I would like to know about migraines, treatment and pain management, as well as mental health issues for seniors.

homeward profile image
homeward in reply to

Especially if this includes a selection of the most frequent types and causes; and how they often evolve into others. Vestibular migraines appear to be insufferably common (he said, whilst suffering one). After 20 years of the blasted things, I am still learning… – and always several steps behind.

Damon1864 profile image
Damon1864

I would like to learn about skin conditions caused by medication

Neddiesegoon profile image
Neddiesegoon

Courses on understanding my blood results, and one on immunity in general.

Dilly_Dilly profile image
Dilly_Dilly

Under active thyroid please

RedApple profile image
RedApple in reply toDilly_Dilly

Dilly_Dilly, You can learn an awful lot about thyroid conditions (especially hypothyrodism/underactive thyroid) if you join the HU Thyroid UK community. Just mentioning in case you're not aware of this community :) healthunlocked.com/thyroiduk

rlanne43 profile image
rlanne43

Exercising for those of us with severe osteoporosis

embroy profile image
embroy

Something to improve Rhumotoid Arthritis?

Raelouise profile image
Raelouise

Gut nutrition.

Nutritional medicine.

TeresaMay profile image
TeresaMay in reply toRaelouise

Agree and how to manage diet for bowel control. Sounds ghastly!

lily49 profile image
lily49

I would like to learn how to manage stress that comes out of the blue when you have been coping with "other things " quite well,but you mind then thinks otherwise!

volvox45 profile image
volvox45 in reply tolily49

Hear hear. I thought I was doing fine but my heart thinks otherwise – constant ectoopic beats. I just don't know how to cope.

Evyb profile image
Evyb in reply tolily49

Beta Blockers may be required to control the ectopic beats.

AGDE profile image
AGDE

Hi Laura

Sounds a great idea. My choice would be “Managing Restless Leg Syndrome “.

Thank you and Happy Christmas

Agde

Mopsy1950 profile image
Mopsy1950 in reply toAGDE

Yes please

xjrs profile image
xjrs

IBS please

Fitness and nutrion please. Would really help me to start and to keep a healthy lifestyle.

Maryvic profile image
Maryvic

General eye education. What happens/changes with CRVO, AMD, etc.

Vertical profile image
Vertical

I would enjoy detailed information and discussions on Post concussion syndrome, back surgery options, neuropathies 😊

sandykk profile image
sandykk

Hi Laura - i am interested in any research and understanding of restless leg syndrome. This is so hard to control and live with and seems like very little research or help is available. Tis a condition that drives you insane, particularly sleep deprivation and inability to rest. I am also interested, like many others, in pain control especially in the elderly where pain such as arthritic pain is likely to escalate. Elearning programs seems like such a good idea.

Pottherb13 profile image
Pottherb13

I must admit it that I like beer, 2 years ago I was in hospital with acute heart failure, as I doesn't smoke my consultant said it was down to alcohol.

Going to the pub is an escape for me what else can I do?

carguy profile image
carguy

Stage 4 (metastatic) Prostate cancer

LeoJ profile image
LeoJ in reply tocarguy

Practical diet and lifestyle changes for those affected, particularly solos.

Remembering that the optimal diet is the Mediterranean choice and one suspects that 'Mediterranean' extends to lifestyle considerations too, for instance maintaining good social contact. Come to think of it, 'diet' is the wrong word and concept entirely and one should be referring to the particular lifestyle. So, go to it 'Health Unlocked' :)

BTW carguy, have you seen jimjimjimjim.com/

AMatureGal profile image
AMatureGal

Strength training 50+ year old women

SCMW profile image
SCMW

The online pain management course run by the NHS and mindfulness for health via BreathWorks. Even if it’s pointers to these.

Jonlaur profile image
Jonlaur

Chronic Gastro Atrophy, And why when you produce No acid, you still get the same burning pain and symptoms.

Anxiousarabella profile image
Anxiousarabella

For me it would be Anxiety/prediabetes/ gallstones/Ibs/hiatal hernia/vitiligo

For my husband would like to know how to talk to Dr when he has got so many medical conditions at once.

Are there any dr who can bring all his conditions together so that he gets better treatment?

2169 profile image
2169

Living with CLL please, still in the watch and wait stage but feeling like I've got flu everyday, how do I cope with it?

cllady01 profile image
cllady01 in reply to2169

Lydia, you might be interested in perusing: healthunlocked.com/cllsupport

and joining in the conversation, the support. and education in regard to CLL.

It is Britain based, and reaches out to all with CLL and their caretakers.

AllHis profile image
AllHis

I need an organized method for a proper diagnose. Once frustration sets in & your story gets too long, well, a diagnosis is but a dream. Can you help with that? Could we poll from physicians what it is that we need to say to be heard?

Really. I don't want to waist their time as much as my time. And I don't think everyone needs to travel to the Mayo Clinics for care!

Doggie123-UK profile image
Doggie123-UK

Hiya, I would like more information on coping with copd/emphysema please also diverticulitis, thank you

Mopsy1950 profile image
Mopsy1950 in reply toDoggie123-UK

That is another one for me as well being able to understand what different puffers do and apart from deep breathing what else can we do an learn

123PAT profile image
123PAT

I have 2 Auto immune diseases pulmonary binary silicocis and Sjogrens symdrome as well as type 2 diabetes. Anxiety, Depression, Hypertension, Low in Vit D3 and On Folic Acid long term. Would love to learn about any or all.

Halebopp profile image
Halebopp

My body and health have really been compromised by the medications I was on with my autoimmune disease. I now have CKD 3b, atherosclerosis, high blood pressure, high cholesterol, severe arthritis, & I’ve lost a lot of muscle mass, especially in my legs. Of course, not all of this (arthritis & kidney disease) are from the medication, but are a result of the autoimmune disease. What I would like to know is if there is anything - and what - I can do to maintain and reverse some of these conditions? My body is at least 10-15 years older than it should be,

ACritical profile image
ACritical

The importance of vitamins and minerals to the wellbeing of a person. GPs nowadays treat symptoms, they should look for deficiencies and offer people tests to keep us on the straight and narrow so we don’t develop serious illnesses and disabilities as a result of these deficiencies.

Kapral profile image
Kapral

Adrenal insufficiency and weight loss on steroids. Thanks

pamela22 profile image
pamela22

Hashimoto's thyroiditis

Gluten free diet

Fibromyalgia

Chronic Fatigue

Restless legs

Pain management

Diabetes management

This is a great idea to help us understand our conditions and improve our health.

Xxx

Trill profile image
Trill

Multiple Sclerosis if you don't have a forum already. Aspergers? Best advice would be coping with growing old: how to prepare for it; what to expect; how to prepare. Another topic would be family dysfunction? Stress is the over-riding condition we contend with too but that has a lot of coverage outside this forum. Still . . .

kau1 profile image
kau1

Hi Laura

It could be useful for all conditions to have suggestions on how to manage your appointment with your specialist. They have limited time with each patient so understanding how to maximise the time would be great. Perhaps some 'top tips' from doctors, nurses and specialists.

I also agree with other posts that learning about nutrition, exercise and managing financial concerns could be useful.

Supernerogirl profile image
Supernerogirl

Would like to hear about conversion disorders like functional neurological disorder please

helixhelix profile image
helixhelix

I think it would be good to do something to help people learn how to deal with the NHS and doctors. I’ve been using an HU forum for many years now, and really often people have problems knowing how to communicate with their doctors, how to politely stand their ground in the face of busy, busy specialists, and so on. People don’t know what their rights are - like getting blood tests results and medical notes. They don’t have a clue how to look at their results and what questions to ask, and they son’t know how to present their symptoms. Getting good healthcare is a partnership, not a contest.

KatieRL profile image
KatieRL

Dialysis and Transplant are treatments, not cures. Living with CKF (Chronic Kidney Failure).

Hopetohelp profile image
Hopetohelp

Essential thrombocythemia please

Hi

I would like more information on Nash caused by meds from my Drs over the years, fibromyalgia, facet joint please

in reply to

Just for starters e. This is like Christmas come early. Fill your Xmas stockings. + It comes with an e that eLearning. xxxx👍

in reply to

I thought I'd better not out too many in to start with 😏

esteloca profile image
esteloca

*LIVING WITH CELIAC DISEASE*

Or HOW TO LIVE WITH CELIAC DISEASE. Celiac is one of the hardest conditions to find help with!

It's almost impossible to find accurate information on any aspect of CD - including what it is which is ridiculous.

Registered dietitians in my experience know some basics but don't fully understand either. I had one who just read pamphlets to me. Another who walked around the hospital cafeteria w me insisting that anything with no flour was safe for me to eat! I could go on but I'll stop.

My doctors, a Hematologist, Gastroenterologist, Gp, Neurologist, Sleep Center doc. & 3 nurse practitioners all admittedly "know nothing" about Celiac disease.

I'm fortunate enough to live an hour away from a Celiac Clinic (there are only 5 in the US) however insurance won't pay for me to go because it's not medically necessary in their eyes.

Currently my liver enzymes are 4xs the normal level & my doctors have done ultrasounds etc trying to figure out why.

I googled "celiac and elevated liver enzymes" & boom! Completely normal (abnormal) response to accidentally consuming gluten.

I follow a strict gluten free diet the best way I know how but 2yrs later I'm still figuring stuff out on my own.

Other things I had to learn the hard way: I can't use the same microwave as my kids- they eat gluten. I can't use their toaster. All gluten free food actually contains some gluten which builds up in my system bc I cannot process it.

So much more.

Thank you for taking the time to read this if you did lol.

💖

And thank you for being so awesome! Idk what I'd do without HealthUnlocked.

in reply toesteloca

I am same, not enough done to educate us on how to change to a gluten free way of life. I'm still struggling and can go full days without eating if not feeling . There is nothing quick, easy and tasty for my husband to do for me . I was a fussy eater before diagnosis and i hate food now. Going out is a nightmare I am not the type of person that will eat to simply feed their body, if i dont like then i do without.

About 10 years ago i had an eating disorder and as time goes buy i can see me falling into old habits. I know i need to eat cause i have so much other things wrong with me but not now, i just can't eat what i find disgusting xx

esteloca profile image
esteloca in reply to

Oh no! I'm so sorry to hear that. I know it's awful.

I'm usually around if you ever want to msg me.

Hang in there & keep trying. Sometimes that's all we can do.

I would like to hear any info on the newest treatment info on Plaque Psoriasis and PMDD

Emuscroft profile image
Emuscroft

More on Thyroid problems and compromised immune system please

Ellai e M

Shell567 profile image
Shell567

How maintaining healthy boundaries (online and offline) is vital to good physical and mental health, particularly the latter.

PaulD1960 profile image
PaulD1960

I have several due to my wifes ongoing conditions

MRSA

High Blood Pressure

Diabetes

Arthritis

Just for now, this means so much it's a wonderful thing you do please keep it up

Seaforth-2468 profile image
Seaforth-2468

i would like learn about coming of long term medication and how to cope with the withdrawel symtons of certain medications

KatieRL profile image
KatieRL

Transplant - how to live with the effects of immunosuppressants.

Hellebelle profile image
Hellebelle

Hi, more information about mental health conditions such as dementia, anxiety etc. and neurological conditions such as parkinsons MSA etc.

With thanks

Helen

Wenhaz profile image
Wenhaz

I would like e-learning on:

Bowel cancer

PMR

KetoDiet

Nutrition

Autoimmune disease

Fitness for the elderly

helvella profile image
helvella

One topic keeps cropping up on numerous forums for which I have never found a specific HU forum. That is iron-deficiency anaemia.

We have Sickle Cell Society, Pernicious Anaemia Society, Haemochromatosis Society UK and Living with Sickle Cell Disease.

The best I have come up with is irondisorders.org/ but that is a bit heavy going.

Daisydreams profile image
Daisydreams

Hi,

These are my suggestions below.

How to eat well with Crohn's and Insulin controlled Diabetes when both diets are conflicting.

Diet and Nutrition

Complimentary Health

Counselling

Coping with a serious/life threatening illness

Keeping fit

Depression

Stress

Anxiety

lizashfield profile image
lizashfield

Hi. Living with chronic pain.

Living with fibromyalgia.

GinaD profile image
GinaD

How about Functional Med- how proper diet, proper movement and stretches, meditation , etc, can transform one’s health. All of these certainly certainly helped me.

Daffodilia profile image
Daffodilia

PMR Gallstones Gemini Heartbeat

RaphaeliteGirl profile image
RaphaeliteGirl

ADHD in adult women, *please*. 🙏🏼

It’s a very specific and rarely reported nuance.

Many of the requests on here such as anxiety and stress management, while absolutely valid, have literally hundreds of thousands of help and support guides all over the internet already. It’s awash with them — reinventing the wheel seems rather a waste of your focus when there are new vistas to explore...

ADHD in adult women is woefully lacking in research and guidance - even in dedicated ADHD forums - most research focuses on children or if you’re lucky, adults generically. Women’s ADHD symptoms are markedly different to these client groups and women are crying out for a quality programme such as this.

Thank-you! 🙏🏼

Run123456 profile image
Run123456

Post surgery rehab to exercise focusing on red flags and what to expect.

SAUK profile image
SAUK

Thyroid conditions

Manu2015 profile image
Manu2015

Can u plz add a program about fibromyalgia

Tyrose profile image
Tyrose

Living with sickle cell anemia please. New medical breakthroughs about the disease, and just relevant information for adults living with the condition and how others can help. Thank you!

rosiebell profile image
rosiebell

Excercises, following major surgery, ie kidney removal, and when to start them. Thankyou.

walkthisway profile image
walkthisway

Comprehensive fitness for over 60s - cardio, mobility, strength, diet, mental health - targeted advice

ashy83 profile image
ashy83

Aura migranes and anxiety that people get from living with them

poohbear2608 profile image
poohbear2608

mind calming information linked to insomnia.

Eliotf profile image
Eliotf

LauraHU,

I am interested in several issues and I have several different issues:

Chronic Lymphocytic Leukemia

Dermatomyositis (skin & muscle) autoimmune

Lichen Planus (Oral) autoimmune

Hypothyroidism/Hashimoto's autoimmune

cllady01 profile image
cllady01 in reply toEliotf

Eliotf, have you visited HU's healthunlocked.com/cllsupport?

Our members are either coping with CLL or are caring for a CLL patient.

Eliotf profile image
Eliotf in reply tocllady01

Cllady01,

Thank you very much.

I am already a member of that group.

cllady01 profile image
cllady01 in reply toEliotf

Sorry, I didn't recognize your name. I hope you are able to ask and get information there--in regard to CLL.

Eliotf profile image
Eliotf in reply tocllady01

Very much so. Since I still work more than full time & am pretty stable medically I am mostly a ‘lurker’ chiming in only once in a while

cllady01 profile image
cllady01 in reply toEliotf

that is great to hear! (I should have checked your profile and would then have known you were a member there. I hope all continues to be a slow-go CLL for you with not problems.

Eliotf profile image
Eliotf in reply tocllady01

Thank you very much

Eliotf profile image
Eliotf in reply tocllady01

Look at my profile & you will see I am a member of many groups

betterpath profile image
betterpath

Dealing with depression, overcoming PTSD, recovering from eating disorders, and managing borderline personality disorder.

sashaming1 profile image
sashaming1

Diet & MS

Brain Injury Rehabilitation

UTI Home-remedies

Tinnitus

Reducing Prostate size

Preventing KIdney Stone Home-remedies

kerry213 profile image
kerry213 in reply tosashaming1

Look up Anthony William, Medical Medium. He has 4 books. He covers just about everything on your list.

Clarijohn profile image
Clarijohn

Living with angina, please. Particularly during the winter. Thanks

John

lincolnj8 profile image
lincolnj8

I'd like to learn about paying for Zytiga

Yachtgirl profile image
Yachtgirl

Gut health and the gut brain connection please

SMMi profile image
SMMi

would like to learn about bowel diseases, particularly Ulcerative Colitis.

Jetguy211 profile image
Jetguy211

Quick and easy healthy cooking for one...

Jetguy211 profile image
Jetguy211

Living with Essential Tremor...

NanaFifi profile image
NanaFifi

Learning to live with chronic pain.

kerry213 profile image
kerry213

Natural healing with food and herbs.

Data-nerd profile image
Data-nerd

Hi Laura

I would like to offer a tutorial to people interested in learning how to graph and interpret meaningful changes in PSA test results

I have published and article on this topic and have developed a user friendly manual that I am willing to share with your readers

You can contact me at

Pfadtag@gmail.com

Or by calling me on my cell

917-566-2013

You can access the article in question at Www.Oncogen.org Volume2/#2

Camelliared profile image
Camelliared

Tinnitus started after taking heart meds.

Ailsa67 profile image
Ailsa67

I would like clear information on Osteoporosis. I was diagnosed with ore osteoporosis but no advice given and I was left to find things out myself. Information on what to do, what supplements to take and where to find the best ones and an exercise regime to help too.

I have managed to improve my prognosis but with no help from the NHS. I had to spend hrs looking it up and asking others. No advice on diet or supplements was given at all.

Happydogs4France profile image
Happydogs4France

My hubby has ipf, and we live in France. His medical treatment is second to none, but unlike the UK we have no clinics for help and advice, other than the hospital. Would certainly like help with managing this condition, as a helper and for hubby.

rosewine profile image
rosewine

Pain management, exercise for fibromyalgia, fibromyalgia symptoms and management.x

Cressy profile image
Cressy

Osteoporosis please.

bahai-dot-org profile image
bahai-dot-org

MTHFR

bahai-dot-org profile image
bahai-dot-org

Isochronic tones/sound healing

bahai-dot-org profile image
bahai-dot-org

Hepatitis c natural remedies

PaulRosedene profile image
PaulRosedene

I can see you have had a strong response. For me it would be asthma, eczema and nutrition.

gailyb profile image
gailyb

I would like to learn how to manage my Fatigue and brain fog.

in reply togailyb

Yes, definitely!! Xx

Evyb profile image
Evyb in reply togailyb

Yes, me too, came on following a General Anaesthetic and then Chemotherapy ten years ago.

Floralqueens profile image
Floralqueens

Hi Laura. I would be very keen to learn more about the benefits and impact of exercise/gym classes for RA sufferers.

Brookey profile image
Brookey

Hi Laura, ISC (Intermittent self catheterisation) please.

Baildon profile image
Baildon

All the previous suggestions are excellent,I’m interested in nutrition,it’s effect on the body and it’s wellbeing with a particular interest in maintaining eyesight

curt504aa profile image
curt504aa in reply toBaildon

MD mac degeneration is a good one, googling take the typical nutricals; lutin, etc.

A recent connection to mac degeneration is mycotoxins, mold sensitivity. No single books or resources, but the prevention follows cleaning ones diet and environment up. Its shocking to find how much mycotoxin is in our food chain.

Dave Asbrey, bulletproof.com had huge mold poisoning problem so talks alot about avoiding mycotoxins. Search amazon.com also.

Especially things that are dried after harvesting; peanuts (nuts), coffee, tea. Very very moldy unless you google and buy products that are tested and processed to avoid mold... One aspect of eating and living cleaner and healthier. How much is written about Ben Franklin loosing his eyesight,, nothing right? Because he and the generations prior didn't have this problem nor heart attacks or cancer... Eat how our great great grand parents ate.

Kazzykaz1 profile image
Kazzykaz1

•Impact of physical health on mental wellbeing.

•Sports nutrition.

•Foot health.

viajar profile image
viajar

1. Liver

2. Nutrition anti-inflammatory

3. Keeping the balance as we grow old

4. Food as medicine

5. Prevention in general

Zeftonic profile image
Zeftonic in reply toviajar

I like that 👍

curt504aa profile image
curt504aa in reply toviajar

Start reading the Paleo book authors, Intermitant fasting as well. Google intermitant fasting now has a huge google foot print. Buy food closest to the farmer, at local farmers market. Lower or eliminate gluten/corn.

The cancer book authors actually are good resources since they ultimately solve run away inflamation; Dr Nasha Winters, etc. The wholeistic Dr's books are decent.

Only mentioning as 1 in 1000's of helps: bulletproofexecutive.com click start here. Asbrey's books are good, reading / read all. Also authors on Paleo and now Intermitant Fasting are finding some great science AND efficacy. Whats old is now new. LOL

Loub37 profile image
Loub37

I would like to learn more about managing hashimoto's & other autoimmune disorders. Also gastrointestinal problems too.

Lou

curt504aa profile image
curt504aa in reply toLoub37

Hi Lou, I just listed to yet another great talk by dr Nash Winters (googlable and a great book on amazon. Forget that its about cancer, its about "health"). She said hashi is 99% a gluten/celiac problem. Stop iodine, stop all grains/corn anbd read lables gluten is lurking everywhere. ALSO stop seed oils (they are inflamatory) like canola, sunflower, saflour etc etc only 100% olive oil. So much olive oil is cut with canola BTW. Buy direct from olive growers to be sure. In general clean clean clean up your diet. Autoimune/inflamation will start to drop after a month, minimum.

Your gastro smacks of gluten as well.... ;(

Loub37 profile image
Loub37 in reply tocurt504aa

Thanks Curt504aa, that's very helpful. I will look into this. Always so much to learn!

Lou

Ovingite profile image
Ovingite

I would love to see something on blood cancers and in particular the mechanics of MPNs.

Jalanutan profile image
Jalanutan

I would like to see a program dealing with emotional and problem solving coping strategies, for those suffering physical and psychological issues.

Kind regards

Jay

Nelly1 profile image
Nelly1

Pain management please

TG21 profile image
TG21

Cholesterol lowering. How to manage this and to explain the relationships between fats saturated, unsaturated, transfers etc.)

curt504aa profile image
curt504aa in reply toTG21

No answer will fit into a single reply. This is a list of learnable terms via google. Eat followingn Paleo principals Dave Asbrey's experoience and website is useful; bulletproofexecutive.com click start here. Eat food that is whole as close to the farmer as possible, go to local farmers markets. Forget about the disinformation about fat!!! Dig out your great great grandmothers cook books (in effect). As a help it is possible to drug free management of colesteral and in parallel inflamation is all posible through changing what you (we) eat, think, and connect with our fellow friends (connections). IE a wholistic approach to health. Colesterol is but one issue that has been co-opted into a profit center twisting both its benefit into a problem leading to a series of follow on problems if you follow all of the wrong advice; diabeties, chronic systemic disease (FM, RA, cancer etc).

HealthUnlocked is all about breaking the dis-information cycle. :) What is found to benefit the many (us) is more likely to be more efficacious then what benefits the few (corporate interests).

Please could you help so many of us struggling with the infantry stages of understanding of 'FND' and Nead. The labels are like ketchup, for many of us we need to be able to check the ingredients. With FND what I struggle alot with is the understandable loss of support available. I feel trapped, as hospitals, doctors and gps struggle, not only to understand, but theirs such little understanding. I haven't posted on here for a long time. But I've been deteriorating with my health, historically every 3 months. And whilst my wait for London feels like I may not even make it, physically & emotionally the doors are closing in, the general consensus seems to be, that as their not specialised, that it's easy for them to dismiss looking into what is happening. My symptoms I understand why there is not yet a framework or guideline available, as until enougth research is done, it's obvious that their is little that specialists can be confident to advise others on. Yet I've questioned a reasonable answer to my gp, if it were possible she could phone London as if she has no idea and neither fo our local neurologist, just maybe london have come across this. I know & seen how much pressure & financial constraints are available to the nhs yet I sometimes feel if this was a different disorder , one wouldn't be sent away to deal with problems like stopping breathing, or other issues, that really arnt things left to chance or hope. Go private some say, but I can't imagine there is anywhere yet. My trust is on hope that even if I can't be the one to of beniffed, that what is learnt from my deteriation could help others, but one sad thing I feel is, in 10 years, others will gasp to know just how hard living with a condition like this is. I struggle to formulate my words or thoughts yet I'm glad I saw this, I hope that my two pennies worth may help not just I, but others, itll help those in the field understand or identify patterns which could help in understanding. Itll not only help me but the friends and family who anxiously hope that we, meaning all others I read on here struggling to understand, to give them hope bot concern, it's hard awaking to symptoms no one knows about, ...the other thing is others like professional turn to me for an understanding yet I've no guidebook I've no answers but I do try to explain, the unexplainable. Who knows but if the professors could follow these threads there expand on the brick walls we all face, there could be breakthroughs, sadly my experience is of understanding, that until I am seen, they obv can't comment on my health as they need to see me first. Sadly how will I travel to london for 3-4 hrs, I could last year, sizuring all the way, but now another year on, I'm trying to come to terms with no one knows why I stop breathing as short as 10 mins of a journey. To begin to come out of a seizure to here one first aide paramedic say to a paramedic who only came on board when the crew realised they had not been told about my health, I hear the words, thanks for travelling on board, she would not of made it, would she, and the paramedic who was never properly ordered for replied, no, ....that level of fear would escalate the anxiety of anybody. I end by saying to live not knowing how long for, to be trapped by professionals not being able to be involved, as I'm classed to complex even just to be given emotional support, despite the hopefull request I could have some trauma therapy first .....when calls declined....wouldn't that not concern anybody. So I sit alone, where this time last year, i was being told that there was no funding available and I'd have to leave the complex nursing home, and to return to a home that hasn't my daughter here, nor anymore my car, or work outfit or the daily, one could say mothers meeting, or school run, out of term catch ups, and isolated as my wheelchair nor health would no longer enable me to visit the friendship, which have been lost, as they lost me to a traumatic event which happened in 2017, and I'm still waiting to be able to open up about feelings I'd never had before, this is why, an opportunity to not expect but maybe read responsive from would be invaluable...we can't be Google doctors ...yet what does a neurologist in a hospital do when they diagnose you, regardless to if you have access to the internet do?..... they hand you a piece of paper with a website, and send u away, so until our only hope if understanding is based upon google searching, then I think this would be such a positive Avenue to take I hope a page could come available....who knows it may double the understanding of the current research....I'd rarther be a Guinea pig then imagine any one else going through what I have.than k you for considering setting up this option. Hope's & wishes for all on here to have a stable and supportive network around you. Thank you. L x

HissingSid profile image
HissingSid

None of the listed programmes are of any use to me. Tinnitus is not a hearing loss but a hearing obstruction and an annoying one at that. My most recent audiograms show that I have mild hearing loss which will get steadily worse the older I become. I have no other serious health issues apart from high blood pressure which is being treated by medication.

Zeftonic profile image
Zeftonic

Anticoagulant injections...a Very long-term use

And does body resist after years of use...

Something like that

lroz57 profile image
lroz57

Living with Non-diabetic peripheral neuropathy.

Mopsy1950 profile image
Mopsy1950 in reply tolroz57

As with my husband ,would be helpful for more info as they are very painful ,have been trying to find something to help

lroz57 profile image
lroz57 in reply toMopsy1950

Do you take gabapentin?

Mopsy1950 profile image
Mopsy1950 in reply tolroz57

He has been on them before ,but depressing thoughts so he doesn’t take anything now but is getting bad nerve pain now

Pharmaguapa profile image
Pharmaguapa

Autoimmune disease, including nutrition for autoimmune disease (e.g. AIP diet)

Would also be useful to learn about online patient advocacy & how to support other patients online

LEEJUNFAN profile image
LEEJUNFAN

Hi there,

FND please, so I can actively learn more about this debilitating condition, and be able to help my wife more, who

has FND.

I've learned a lot by looking after her, but I'd like to know more.

Thank you.

Regards.

Tony

Annah33 profile image
Annah33

Progressive Supranuclear Palsy and Lupus many thanks. I was diagnosed with PSP just a year ago and with Lupus 6mths.ago. so any help with both would be appreciated.

TonyiaR7 profile image
TonyiaR7

Topics on Multiple Scelerosis to improve quality life, e.g., MS Gym or improve cognitive skills, walking.

Zareda profile image
Zareda

Lyme disease....more specifically how to manage chronic or post treatment Lyme disease when doctors tell you there is no such thing!

Hi Laura, i would be interested in cervical myelopathy how we manage to live with it x

stoneyrosed profile image
stoneyrosed

Hi I would like to learn how to handle and self help myself regarding Atrial Fibrillation, it is a complicated condition and can relate to heart,digestion , vagal nerve and other bodily sensations such as stress and anxiety.

curt504aa profile image
curt504aa

How to find great Dr where patients rate as highly effective, measured by outcome (absolute measure) and outcome vs cost. In a cost run away system that additoinally has lost all connection to effacy, knowledge gained at HU and Dr Google still falls short if putting it into practice needs getting someone with a Medical License to sign off on the needed steps.

Dizzy64 profile image
Dizzy64

Awareness of Dystonia, so few people know about it as I did until diagnosed.

How to manage living with pain and tiredness as I also have a chronic spine condition, please.

Hells55 profile image
Hells55

Pain Management l feel I need this so badly

in reply toHells55

Hi

It really depends on who you see with pain management, 2 I saw were as much use as a chocolate fire guard!! The last couple have been better. Take care Lynne

Ilovephotocall profile image
Ilovephotocall

Type 2 Diabetes please

Activity2004 profile image
Activity2004 in reply toIlovephotocall

Have you checked out the DI and DRWF groups on HU?

healthunlocked.com/diabetes...

healthunlocked.com/drwfdiab...

wrightfan profile image
wrightfan

Do more on Plasma injections. How long do they last before you have to get another injection.

R2B_John profile image
R2B_John

It would be wonderful to provide access to learning programs for those patients that are involved and want to: become advocates....participate as an advisory panel member.....work with research to provide the patient perspective.....learn more about the inner working of clinical trials.....how to best find relevant (to them) clinical trials......etc.

I have done all of this, but had to figure it all out on my own. There needs to be a better way!

Gabi8125 profile image
Gabi8125

Live with endometriosis

Babyr1996 profile image
Babyr1996

Living with low blood pressure and understanding the affects on day to day living

Lhendrie11 profile image
Lhendrie11

Migraines and other stress related illnesses

clabi profile image
clabi

I will like to learn about why lam having sleep disorder more than 20 years, and hypertension.

Scottishterrier profile image
Scottishterrier

HI Laura hu

I would like to do the E-Learning about Dementia my father was diagnosed with PV about 3 years ago he is on hu I have ET jak2+ since 1994 I am also on hu I since diagnosis my father has been in poor health he is in the hospital yet again been going on since May he had a seizure was put on Antibiotics but because of them has contracted c diff and Dementia would like to know could it be due to pv he is 79 and also if I can learn as much bout dementia as my and I are going to care for ourselves instead of getting a carer I know will take its toll on my health have already lost stone and a half much to consultant's concern

Best wishes

Scottish Terrier

WorriedLou123 profile image
WorriedLou123

How to maintain weight loss and consume low amounts of sugar long-term

cljones profile image
cljones

Yes diet and nutrition would be good. Also how to pay for drugs not covered by insurance. How do you get the help you need to do basic things like get your house cleaned when you can't afford to pay someone. Services available through medicare.

iagra profile image
iagra

Hearing, dementia, autoimmune disorders

Great beginning for the learning programs. I am particularly pleased to see one on Clinical Trials. I am Research Ambassador for NIHR and firmly believe that part of our care of our long-term conditions lies in Clinical Trials and our involvement in them. If we want cures or better quality of life, we are well placed to play our part in making that happen.

Non-alcoholic Fatty Liver Disease is important to many as it can impact on medicine use and, ultimately, lead to fibrosis. As there is no real drug treatment, management of the condition would make a good subject for a learning program.

Paul12 profile image
Paul12

I gave access to free health e-learning courses on Udemy - May I post the free links here?

hjh88 profile image
hjh88

Resilience training would be great! So many long term health conditions require this.

Otherwise some stuff around understanding scientific papers and research, supplementation and navigating the NHS!

Arsepain profile image
Arsepain

I'd like to learn how to mentality cope with pain! I'm struggling big time. I'd like to know why men get treated quicker than women? Why does anyone have to wait months for relief of chronic pain. I take 6 tramadol a day and I'm still struggling. I can't cope 😪

Role of vitamins and minerals in achieving optimal health.

Diet and the gut microbiome.

Understanding your blood test results.

2Entropy profile image
2Entropy

Osteopenia treatments that do not cause development of poor bone quality, perhaps found in a supplement.

Sjogren's Syndrome - Secondary due to cancer: tests to diagnosis, treatments with least harmful drugs

Blood pressure AND pulse numbers considered safe for woman over 50

Blood cancers: Myeloproliferative Neoplasms

Discussion with helpful ideas on how to deal with local doctors who are dismissive of problems brought to their attention about our conditions, even after being diagnosed by Specialists in the disorder(s).

1Ruby profile image
1Ruby

Underactive thyroid, pre-diabetes, menopause and depression - ways to help myself and best nutrition for me with these conditions and help to lose weight.

MaSet profile image
MaSet

Hypothyroidism pls

Rin9 profile image
Rin9

How to live with pmdd.

conwayinkzn profile image
conwayinkzn

Chronic medication and long term side effects (specifically epilepsy and liver related)

Quette6 profile image
Quette6

I am 6 months post-kidney transplant. I'm fortunate that I haven't gained weight since my transplant as many do. However, I am starting to lose weight with lifestyle changes and implementing exercise. I feel like there is very little information about Nutrition and Exercise out there for post-transplant patients.

My needs have changed, but most information is either a slightly modified version of the dialysis diet, or the standard AHA diet plan. I have found that neither of these are sufficient and could be improved.

I am determined to give my new gift a body that it can thrive in, and I'm sure others out there would be interested in learning more information that can help us all.

Stevebridge profile image
Stevebridge

Sciatica and it’s pain management

Seuzan profile image
Seuzan

Dealing with the menopause & related mental health issues that can accompany it.

It is a living nightmare for many women and there needs to be more support & info for women going through this chemical / hormonal upheaval - not everyone wants to take HRT - other more natural strategies should be more readily available.

Pernicious Anaemia .. I'd like to know if sublingual B12 melting tablets help inbetween injections.

Also, how often should a doctor give shots .. this seems to vary greatly in every country. I'm in Australia

in reply to

B12 in UK - Partner gets a shot every 3 months but it's not cutting it for her PA. I'm on 100mg tablet daily re Cirrhosis.🤔

BenThom-Wood profile image
BenThom-Wood

Channelopathy as my current consultant isn’t as hot on it as say the Royal Brompton hospital. If I don’t speak directly to them, I’d like to know more about my condition & amiodarone.

Hidradenitis Suppurativa, everyone should learn about. It’s such a messy disease,. MRSA and infectious diseases.

Magz117 profile image
Magz117

This seems a brilliant idea. I would like to learn more about living a heart condition and getting the right advice on improving/maintaining heart health.

in reply toMagz117

That is a very good idea. I have been trying to help my husband and I have been successful but it has been so hard. When we got out of the hospital, we did not have any guides but to trust a safety vest. Moreover, the panic of losing him. I woke up at night and got so happy when I heard him breathing. All I can tell you, low sodium, water. He checks his blood pressure three times a day, he also has a heart rate monitor. The hospital did not offer any rehabilitation programs or anything. Not even a visit to a Nutritionist. Everything would have been covered but when you do not know......

Next week, we are going to start an exercise program. Now, since he is better the insurance does not cover. But, it is ok. He is alive and here we are fighting a day at a time. Good luck!

ladyanne09 profile image
ladyanne09

How to live after mouth cancer, the struggle to eat normal foods

Cricket1951 profile image
Cricket1951

I would like to learn more about coping and manage with pain ,PD,crohns and sleep

Franlee profile image
Franlee

Eating disorders, my daughter is suffering.

Jules18 profile image
Jules18

I'd like something on pain management (including managing side effects of pain medications)

Type 2 diabetes - how to manage with diet particularly for newly diagnosed.

Finding ad accessing clinical trials for secondary breast cancer/other cancers

Alibob1969 profile image
Alibob1969

Coeliac Disease would be great. Understanding the way it affects the body, not just the diet you need to follow.

teresahunter profile image
teresahunter

Sticky blood please

Joharris profile image
Joharris

Enthesopathy

suecom profile image
suecom

Hello Laura

You have so many replies !!

The main problem I have found when managing health conditions is the conflicting advice. "You can't do right for doing wrong" when trying to do the best to help yourself with diet, nutrition and exercise...

Pain management I think has to be top of the list as it's a symptom of so many different conditions. I also liked the suggestion about help with managing medications, especially if you wake up sleepy and forget if you've taken a particular tablet, as we do so much on autopilot/routine.

There are a lot of illnesses caused by inflammation, and auto immune/ allergic conditions, so it would be nice to get some sensible attainable suggestions which would help.

Its a great idea, it sounds like a lot of work to set up but it will be really helpful.

Thank you

Sue

karenna profile image
karenna

How food can reduce pain please.Also, specifically sciatica/fibromyalgia.Thank you.Let me know if you will be doing this please.Thank you.K.Law

RxMe profile image
RxMe

How about alternative therapies for CTD?

asthmatim profile image
asthmatim

I would like to see e learning programs on........

1. Bronchical illnesses

2. IPF

3. A targeted program for Brittle Asthma type 1 and 2.

4.COPD Asthma.

5. Horrific OSA.

6. Eczema.

7.GORD.

8. Post nasal drip.

9. ESBL and how to live with it.

And the last one is for my Mum,

10. R and O arthritis how to deal with having both of them at same time.

Thanks.

Felis profile image
Felis

I would like to learn about Sjögren’s an auto immune disease.

Celtic27 profile image
Celtic27

Hi Laurahu it's great to see a positive change at hu! Can I suggest that the program about dementia could also include help for those who care for dementia suffers as my father has dementia and all I know about it is the bits and pieces I've picked up along the way! Your help in this matter would be most helpful!

Fizzy35 profile image
Fizzy35

Cancer of the oesophagus

Your site has helped me look after my husband this last 13 months in ncluding chemo problems/ surgery/ complications/diet/ weight loss and there are SO SO many different problems as every single patient is different

And Pancreatitis please ? Have read everything on the net but advice on diet/ pain management/generally coping ?

Love this site thank you all so much

St12 profile image
St12

I need to learn more about inflammation. My doctors can't seem to help.

Xenom0rph profile image
Xenom0rph

Great resource. I’d love to learn more about liver conditions, cirrhosis in particular, nutrition and the impact of how your chosen line of work impacts your whole array of health markers.

Demitria profile image
Demitria

Hypothyroidism (under active thyroid)

& Hyperthyroidism (over active thyroid)

So much of our bodies rely on that small little butterfly shaped organ and once this organ fails it causes endless symptoms which are so hard to sort out because it causes other illnesses/conditions.

I am under active and medicated. Been like that for 3 years now. I am still trying to learn and would love a better knowledge of this horrible disease.

Cheers for listening x

orangecity41 profile image
orangecity41

More info on CKD diet. Also ways to slow down progresion things to do and what to be aware of.

Barrett's esophagus and hiatal hernia. Two things I was not familiar with. Thank you. Anyways, this site has been wonderful for me. Thanks for your efforts.

Aktop profile image
Aktop

Nutrition , healing naturally with herbal medicine and nutrition.

Glaciera profile image
Glaciera in reply toAktop

I doubt they will even want to acknowledge the possibility of healing ourselves naturally and with diet. How would they make money from selling us those magical pills then?

Crochetattic profile image
Crochetattic

Sarcoma cancer......gastritis...... palpitations and anxiety

jes46 profile image
jes46

I'm interested in women with recurrent low grade bladder cancer. Would like to hear about any new development in treatment. I am presently on chemo infusions of gemcitabine followed by docetaxel once per month. I have had 7 turbts with recurrences of the same superficial cancer coming back, but not progressing into anything invasive. BCD did not work for me.

Sylvia2711 profile image
Sylvia2711

Lymphoedema and chronic pain please! I keep try to master how to live with few condition but pain is always something which I cannot find a way to manage!

Timeflies5 profile image
Timeflies5

Wonderful...ty! Maybe a class on the role of spirituality in coping with a chronic disease process. Finding peace and purpose in the midst of chronic illness.

Thank you! 😊

orange33 profile image
orange33

More information concerning Periferal Nueropathy and the connection with Rhumatiod Arthritis. GP and RA Docs seem to ignore this life changing condition.

Also Pagets(spelling may be wrong) disease.

Magsyb profile image
Magsyb

Hashimoto underactive thyroid please. This has such an impact on every cell in the body and therefore on your daily life. The impact on digestion, and therefore absorption causes us to develop deficiencies, intolerances etc.

And adrenal fatigue, how to recover so you can lose weight. If the adrenals are impacted, and they usually are, it is impossible to lose weight.

Handel profile image
Handel

Hi Laura.

Pain management would be really useful as would

Stress and depression

Thank you xx

12Marley profile image
12Marley

Living with long term chronic pain syndrome, also neuro function disorder thanks

Malcolm

Vanna101 profile image
Vanna101

What I would really like is information on medications available to treat Atrial Fibrillation, differences between rate and rhythm control, and the differences between anticoagulants

Magz117 profile image
Magz117 in reply toVanna101

That would be very useful to me too

Funkyfaerie profile image
Funkyfaerie

Nutrition and healthy eating. The benefits of individual fruits and vegetables, so we can help ourselves!

UK-Sparky profile image
UK-Sparky

Great idea Laura! I would like to learn more about diet and supplements to know how to spot a fad from a fact. To also share learning on emotional wellbeing (stress) how to recognise, face up to and tips for managing,

Charlie50 profile image
Charlie50

Managing cognective tissue disorders,pain management and getting the

best /understanding consultant /gp appts and jargon.....

Bailey09 profile image
Bailey09

Learning to live with fibromyalgia, restless leg syndrome, anxiety, depression and chronic pain, fatigue

Thankyou x

silverfox7 profile image
silverfox7

Mines more of a general comment. Firstly I like the list HU have already suggested but for me the main reason I’m on here is because of the interaction we have with fellow sufferers and therefore knowing we are not alone. I wouldn’t want that opportunity to be taken away from us. Many of the comments are basically what we have now, asking specific questions so that’s not an issue but a bit of how to go about things could be useful. I’m specifically thinking of what to ask in reviews, the key issues and how to approach the experts that may or may not actually be experts! In some ways we have become too knowledgeable but that can also be detrimental, thinking mostly of those recently diagnosed who want to jump in at the deep end because they have heard about it without trying the basics and working up on their particular route which may not be best for them so some sort of reaching a crossroads guide

Shar0n profile image
Shar0n

Diet and exercise for cancer patients/survivors.

ju-ju- profile image
ju-ju-

Hello,

This is great! Is there a link to all of the e- learning? I work with alot of GP's and it would be great to share and promote this.

So my ideas are:

Living with asthma- help with staying well.

Promoting wellness- an all round holistic wellbeing taster.

C25k- basics of learning to run and how it all works.

Healthy eating guide.

Staying active

ezabella profile image
ezabella

I'd like to learn about:

1- Understanding Clinical Trials for CLL/SLL

2- The Role of CD 38 Positive in the disease, and any inhibitors for CD38+

3- Lymphoid Organs involvement (Liver & Spleen) and the treatment options

Thanks Ezabella

Laura,

I'm interested in pain relief and have already posted about problems with headaches and foggy head after codeine sulphate but I'm interested in CBD oil now and a reliable, trusted source of information please.

Regards Vic

kevfromfev profile image
kevfromfev

Hi Laura, I would like primarily diet health/fitness, not just related to running forums, impressive as they are, secondly alopecia - thank you

PDS1 profile image
PDS1

How to manage meds to get the best possible treatment/outcome

PDS

susieq051 profile image
susieq051

Would like learn more about Giant Cell artertis , polymyalgia rheumatica other vasculitis disorders as well as autoimmune problems how they can be managed. Pain is a big issue.

Shazzzy profile image
Shazzzy

Mindfulness and pain management please

BriarGirl profile image
BriarGirl

I would be quite interested in information on collagenous colitis. Thanks so much!

Mich-1 profile image
Mich-1

Pain Management and Fatigue Management please. Thanks

marilynmcl profile image
marilynmcl

Connective tissue disease and Idiopathic Pulmonary Fibrosis please.

Amanda-87 profile image
Amanda-87

I’d like to learn more about CMPA and Severe chronic constipation I’m still learning how to manage these conditions as my 4yr old has recently been diagnosed cmpa and has always suffered with severe constipation x

Having recently been advised of a heart failure due to issues witht e ledt ventricular, i find the issue si am having to understand is dietry considerations in terms of managing things i had never even condisered before. Managing salt and fat is one thing, but when you have to manage your potassium levels as well (keep them low or raise the levels) - with very little infomation out in the web, and what info there is contradicting what needs to be done to manage fat and salt levels - it all gets a bit confusing. Some one else threw in another term the other day and i couldn't be bothered to reach for my Latin Dictionary to understand what it was or meant - just another phrase that is making my head spin in all of this world of managing your heart, and kidney, and sleep, and exercise and...

Did I mentione exercise? Try to undertake exercise to manage my heart but that does not impact on my arthritic knees is another maze I am trying to make sense of...

Any help gratefully recieved.

jowalk6 profile image
jowalk6

I had a cardiac arrest at home, thank god I made it. I had a defibrillator implanted and since then a cardioverter. Would love to be able to talk to people on similar journey

Glaciera profile image
Glaciera

In all honesty I am sceptical. Which you can understand, there are millions of people here being lied to, kept in the dark and ignored.

There are many things that NHS denies and many doctors fail to acknowledge for they make a hefty amount from those unfortunate enough to experience many physical to invisible illnesses; from reccommending them drugs which even further destroy their livelihood of getting better to commissioned drugs which have no positive role in helping the person overcome the illness but instead cause many undesirable side effects, often causing a further development of problems down the line.

What many could use is the truth about viruses, toxins, chemicals, autoimmune disorders and associated conditions. How to treat the root cause and not just cover up the symptoms.

Topics like EBV " Epstein Barr Virus", Adrenal fatigue, Hormonal imbalance, Endometriosis, Polycystic Ovary Syndrome, Insulin Resistance, Depression, Liver, Brain and Gut related issues. These are all linked believe it or not. So how about educating people what they can do to heal themselves and support their immune system instead of suppressing it.

More awareness is needed of the anti inflammatory diet, suppliments, to acknowledge these issues that cause chronic pain and become a huge burden to live with, often resulting in loss of life.

ck722 profile image
ck722

Controlling PSA with rectal cannabis.

For some of us, it is a miracle drug. No high, not a cure, but life prolonging.

PurpleDee profile image
PurpleDee

Advice on diet with Hypothyroidism. Pain management.

SquirrelsHolt profile image
SquirrelsHolt

Golly Gosh Hidden i bet you never expected such a HUGE response ..... 257 replies so far! EXCELLENT isnt it. I'm generally interested in all things lung related so that is a vast subject. Count me in on joining in though. Good idea.

Wishing you and all at HU a very Merry Christmas 🐿💕

Isiepie127 profile image
Isiepie127

Mental Health and Chronic Migraines

Boombiddy profile image
Boombiddy

I agree with those who suggested one on chronic pain.

I really benefited from the INPUT residential cognitive behavioural pain management programme at Guys & Thomas' Hospital in London. It was over 20 years ago and I still use what I learned there every day. I wish everybody with chronic pain could have it.

Re. pain experts who might advise or contribute: I would recommend

Charles Pither who developed the INPUT programme, Helen Clare Daniel who wonderfully helped me when she worked at the INPUT programme.

If you don’t think you can comprehensively cover “Living well with chronic pain”, (as people don’t want just to survive), you could make a start with “Myths about chronic pain”, which could help dispel unhelpful notions which make it worse, and with advice and info that can be put into practice to make a real improvement in people's lives.

I wish everybody could have what I had but failing that, it could make a big difference to a lot of people to have a resource here that they can use.

That's my two penn'orth.

completely-zero654 profile image
completely-zero654 in reply toBoombiddy

Whatever you had wish I could have, been in and out of pain clinics had injections to no avail and have ended up on all sorts of different tabs, incl MST, and OraMorph to top up. Nothing else just keep taking the pills, started 20 years ago and no signs of getting better, in fact worse if anything.

Thanks for asking this question, xxxx

Denyse1956 profile image
Denyse1956

Understanding MGUS and Multiple Myeloma

Coconut2020 profile image
Coconut2020

Hyperthyroidism and graves disease anx ovarian cancer.

PurpleSE profile image
PurpleSE

Eating for wellness. Nutrition information regarding auto immune disease please.

Weakwillednomore profile image
Weakwillednomore

Coping with digestive problems. Eg constipation

Coffee_cake profile image
Coffee_cake

I know some of these have been mentioned already:

IBS, pain management and staying healthy when unable to exercise/move and in revocery from surgery

Lindy14 profile image
Lindy14

Practical help with maintaining a healthy posture. I've had a knee replacement and the weakness in my knee muscles have resulted in me beginning to look like the Hunched Back of Notre Dame!

Also practical help with Epilepsy. I've had it since 1962, but luckily my fits are reasonably well controlled now. I must say that I do have some arguments with doctors I encounter, including GPs. This is often about how MY condition presents. Also some pharmacists seem a bit ignorant about medication used to treat the condition. An example involves the use of generic medication and the Brand versions. One I took for quite a time had to be given as the Brand version for it to be successful, but some pharmacists refused to supply it even though it was written as the brand version.

Social issues are probably relevant to many health problems, I feel that this would be a useful one to cover.

Anyway, enough of me "rabbiting" on.

Lindy14

completely-zero654 profile image
completely-zero654 in reply toLindy14

Hello Lindy14, I too look the same but my condition is different chronic back pain, and I look like a very very old witch who is bent double only my bum sticks out as the pain is in my spine. Would also love to get my posture back again, but not holding out any hopes.

Jolly good question though and am pleased you have asked this. xxxx

Gut and mental health and JIA (Juvenile Idiopathic Arthritis), my granddaughter who's 3 has JIA Uveitis which affects her eyes please. Also being able to control Gut and mental health, also the joint aspect of JIA with diet, exercise and any natural supplements.

Moomin8 profile image
Moomin8

I would like to learn about exercises to keep my joints fit around my RA

Vixen04 profile image
Vixen04

Sjogrens Syndrome as its so huge in range along with sero Negative RA and FM. I have all 3 and it's hard to tell what condition it is that's causing the pain,! Many thanks xx

Breathless1943 profile image
Breathless1943

Severe chronic stomach pain,Perennial I think.

Chronic back pain, have been to Hospital chronic pain clinic, but need extra help and any ideas that might help, take everyday 30 tabs and have to top up with OraMorph to combat pain. Have an inoperable back condition. I am 57 years old and have no life with this pain, it really isn't any fun although I do try and say it doesn't hurt when it's hurting like hell. Stress brings it on more and I have nothing but stress at this present time in life.

So would love to see/hear more regarding chronic pain.

Thank you xx

Boombiddy profile image
Boombiddy

I would also like to see something re. Mast Cell Activation Syndromes and Mastocytosis.

You could explore the possibility of a mutually beneficial collaboration with UK Masto to design a programme to give much needed info and advice.

Boombiddy profile image
Boombiddy

A friend with Parkinson’s tells me many Parkinson’s consultants are very out of date in knowledge and treatments. Up-to-date knowledge and advice for sufferers and their carers could make a big difference.

Boombiddy profile image
Boombiddy

How the NHS works. Who passes what info to whom. What general ‘rules' and assumptions and etiquette.

How to communicate effectively with doctors. Especially with complex needs.

Some patients have multi-system conditions and several consultants for aspects of the same condition - but very fragmented care.

Help with knowing how the system is structured could help with that.

Weakwillednomore profile image
Weakwillednomore

Also diverticular disease

Feathe profile image
Feathe

I d like to know how diet affects our physical and mental health and how illness can be reversed through diet. I also want to know the benefits of meditation and exercise on mental health. Finally, I want to know more about psychology and how distorted beliefs like " what other people think of you is important" affect mental health and ways to break distorted beliefs and connect with true beliefs.

Chrissycl profile image
Chrissycl

How to manage the drugs for Rhumatoid Arthritis and all their side effects

MEZZ1 profile image
MEZZ1

Mezz1 would like to see more information on airway obstruction, it's a nightmare having to go out, as I get choked to death with peoples cigarette smoke, smoke from fires, peoples potent perfumes,and shower gels ,ect going shopping,standing in queues with all these toxic chemicals is killing my airways and lungs. Been told it's more to do with my asthma than copd , I can't lift things that are too heavy as it leaves me struggling to breathe.

xol623 profile image
xol623

How to get the best out of medical appointments - preparation and what sort of questions to ask. With current waiting lists we look forward to our appointments for months, sometimes with very high expectations. The medical staff only have a limited amount of time, naturally, and have many patients to see each day. So what can patients do to get the best out of it, bearing in mind that the information given might be scary/life-limiting/include lots of long words etc.

thestorm profile image
thestorm

Many of us might like to read tips on how to better communicate with our many GP's, Doctors, and Specialist. As I have experienced, conditions and symptoms to communicate to Doctors can become a full time job for the patients. This adds tremendous stress to people who are trying to get the most out of there appointments, that take months to get. Not all health care professionals communicate or share with each other. That makes for brain-fog, and patients walking away very discouraged and frustrated often. Doctor assistants do not relay information to other clinicians either, and we all see them or speak to them if the Specialists are not available. It would be greatly appreciated if there was some true properties to help us all navigate these systems better . Please. help us through these challenges. Thank you. Blessings, peace, thestorm

debwill1427 profile image
debwill1427

I am a survivor of a TBI for 39 years and believe that education is knowledge, understanding and awareness for all.. Those who live with an invisible disability or disorder are not "visible" to others and suffer behind a "normal" exterior.. Only those who have suffered such a challenge know how and what it feels. like. I feel that our knowledge and experience are ahead of the Textbooks, Lectures, Research and Treatment available throughout the UK.

RandyM profile image
RandyM

I would like to see the subject of loneliness and social isolation in the elderly. I have a lot of friends who live a life of a hermit and have no desire to mingle or engage with others. Most of it is caused by depression and feeling old and unwanted. Thanks for the great ideas!

dubstepMaul profile image
dubstepMaul

Hi Laura. I would like to see a program for managing chronic lumbar spine pain (I have anterolisthesis L4-L5, LSTV, and arthritis).

Also one for chronic debilitating migraine

smartie67 profile image
smartie67

Mental Health please, and Lymphodeama thankyou

Joedev profile image
Joedev

Advancements in HER 2+ Breast Cancer treatments .

Evyb profile image
Evyb in reply toJoedev

Yes please, much needed.

lgd333 profile image
lgd333

Hi Laura,

I've had epilepsy for over 46 years now and there's many people who need constant advice, support and more information on how to live their lives with epilepsy... This is a detailed subject but would be appreciated.

I advocate and educate many in groups on Facebook and also run my own motivational page for those people with epilepsy. I am also an Ambassador on Carenity UK which has a great range of health conditions.

Thank you!

bobbybobb profile image
bobbybobb

How to handle the medical profession assertively, a step by step guide, when appointments are coming up. This would be good as patients would learn how to ask the essential questions. Learn how to question and not simply sit there and nod their head at the doctor. Tips on how to come across as confident and not easily fobbed off so the medics know that your polite but mean business.

Marco123 profile image
Marco123

Prostate Cancer is very common and may be a good one to cover.

bazcranleigh profile image
bazcranleigh

I suffer from Pulmonary Fibrosis and Bronchiectasis. Some while ago I believe that you had a CD relating to Pulmonary Rehab. It is easy to get out of the Rehab habit and perhaps a permanent on-line location where one could look up procedures would be well appreciated.

Crystalbowl profile image
Crystalbowl

PHN -post herpetic neuralgia pain following shingles pleas.

Colourfull600 profile image
Colourfull600

Joint pain stiffness fatigue problems putting coat on no energy inflammation. Really painfull joints.

Dolphin500.

lancashirerose profile image
lancashirerose

skipped heartbeats, pounding heart especially after eating... info to stop my worry and panic it causes!

lancashirerose profile image
lancashirerose

Arthritic changes - fingers getting lumpy and painful, changes in hip joint

Evyb profile image
Evyb in reply tolancashirerose

Yes, painful fingers with bony lumps and bumps getting worse seemingly all of a sudden too.

Colourfull600 profile image
Colourfull600

How to cope with a husband who has copd and is distant about his condition and still smokes and dosnt listen when people try to help him.

Dolphin500.

Isthis profile image
Isthis

Mental health. Anxiety and OCD

Megbird profile image
Megbird

Diabetic and Low carb diet

Megbird profile image
Megbird

Understanding High blood pressure, causes and prevention please

Gastritis - living with. I have watermelon gastritis caused by systemic sclerosis so any help info on either would be good. Thank you.

Debi x

6TIMES profile image
6TIMES

Coping with loneliness and isolation

StreetPastor profile image
StreetPastor in reply to6TIMES

Hmm support groups 🙂💕

lilley22 profile image
lilley22 in reply to6TIMES

Supporting this person’s suggestion fully. Nowhere near enough discussion on this subject. And, can I add, not just for the young - it very much affects older people too (by which I’m talking from early middle aged upwards).

To the person who suggests support groups - fine - what support groups? Where? Who will start such groups and run them? City based groups are no good for rural areas like mine. It does need a lot more discussion, I feel.

DF2019 profile image
DF2019

Mindfulness and other alternative therapies which work extremely well if well presented and received by participants.

Pinkladytracy profile image
Pinkladytracy

Fatigue management

footgo profile image
footgo

Good day LauraHU

Firstly a great idea, thank you!

I would appreciate more information on the following please.

I am an 80 year old male.

After taking Prednisolone since 2007 l now have very brittle bones,Osteoporosis, revealed from a recent DEXA scan. I was booked for an infusion on the 3. August. 2019, first available date, 31. March. 2020. This l believe halts the bone deterioration for approximately twelve months? This type of treatment is it invasive? What can I do to help my bones, if possible become stronger, diet, non invasive medication, gentle exercise as l have had sixteen operations, (seven major joints) l am not able to do very much. I have successfully weaned myself off of Prednisolone over the last ten months. The ‘fog’ is gradually lifting and the weight gain reducing.

Diet to reduce my CRP?

Reduce Tinnitus?

Autoimmune problems?

Rheumatoid Arthritis?

Osteoarthritis?

Multivitamins?

Enlarged prostate?

Sensitive stomach?

Thank you so very much.

A very happy Christmas with a happy and healthy 2020 to all those great people at healthunlocked. com.

Jaybird19 profile image
Jaybird19

Spinal stenosis and athritis of hip ---exercises to give more support.

My sister has Transient epileptic amnesia ----any advice for this.

Busie profile image
Busie

Hi, would love very much to learn more about living on dialysis and the best diet for one with IBS

Jantayl profile image
Jantayl

Bladder retention is health issue for me. Currently doing ISC. How long can this go on? Also PMR/GCA. 2 years on and tapering

Philippastcarin profile image
Philippastcarin

I have PBC , heart disease, osteoporosis, and I’m pre diabetic.

What’s good for me

What’s bad for me

An exercise program

Self hep.

Saassii profile image
Saassii

The Ehlers Danlos Syndromes and other connective tissue disorders

Mast Cell Activation Syndrome

Environmental Illness from mold and water damaged buildings

Activity2004 profile image
Activity2004

How Diabetes and Epilepsy can cause issues if a person has both together.

MalcolmJD profile image
MalcolmJD

End of Life / Palliative Care, and i dont just mean those who suffer from cancer, but moreso those who dont, like myself

lilley22 profile image
lilley22

Rheumatoid Arthritis

Understanding blood test results and treatment plans

Creighton profile image
Creighton

Adult ADHD especially non drug treatment PLEASE🤕

Scamp56 profile image
Scamp56

Medical marijuana - pros and cons about what it helps and doesn’t help.

Over50s profile image
Over50s

Hi, I would like to know more about vitamin D deficiency, vit b12 and folate deficiency.I've been suffering from vit D about 2 years until the GP discovered low vitamin D. Unfortunately, because I've been supplementing b12, my blood tests looks I'm in normal range but I have still symptoms of deficiency . My surgery said don't test homocysteine and MMA because I'm in normal range. I want to know more about this things because I'm out of work and still unwell . Thanks !

geewisdom profile image
geewisdom

Starving cancer with different treatment options such as Hyperbaric Oxygen.

cleocat profile image
cleocat

Exercise to help breathing. I have mild COPD and want to do what I can to help myself. Merry Christmas everyone!

Top Tips with Diet for Pre Diabetics

Low Carb Diets for Patients on Prednisolone

Argee profile image
Argee

Caring for and living with someone who has dementia

Scottishterrier profile image
Scottishterrier

Thank you Laura HU anything to help me learn all I can about living with someone Dementia and outbreaks off c diff my dad has PV and been in and out off hospital since May with Seizures and outbreaks off c diff caused by Antibiotics given to him by the hospital he was admitted to they thought it was a brain infection and pumped full of wrong antibiotics causing numerous outbreaks of c diff I suffer ET jak2+ and in trouble for weight loss he is back in hospital he had been out for 2 weeks which was longest ever he had been out of hospital do not know if he will be home for Christmas

thank you and Merry Christmas best wishes Scottish Terrier

JeannineMarie profile image
JeannineMarie

I would like to learn more about interpreting blood tests / analysis. I have CLL/SLL and have massive amounts of blood work done. FISH and other chromosome tests can be overwhelming in trying to sort it out is mind boggling.

Nancy99 profile image
Nancy99

Healthy aging

aurazul profile image
aurazul

Neuroborreliosis,Lyme brain,Lyme disease in general and co-infections please

Greyone profile image
Greyone

Hi LauraHU

My big interests are Stress, Anxiety, Sleep, Work/Life Balance, staying healthy for retirement, health matters for 50+ & self-care.

I'm 57, have recently experienced several life events that can be summed up with the above list.

BTW. It's a bit late in the day for me but I'm going to have a look at "Practical Guide for Dementia" to see what I missed.

Thx again.

Greyone profile image
Greyone

Hi

Am I correct on thinking that the eLearning programs you produce are aimed at suffers specifically and not necessarily carers with responsibility for sufferers?

Do you plan to extend your eLearning to include those who help support of care for sufferers?

in reply toGreyone

That would be an excellent idea, as most patients want to educate themselves but something for friends & family would be a good way forward.

harmony2 profile image
harmony2

Pacing. Help to get off energy “roller coaster”.

Learn to get a handle on what constitutes:

(a) doing what I can without making myself worse; versus

(b) “over doing it” and having postexertional malaise.

Thank you for asking :)

madmargaret profile image
madmargaret

hi Laura, I have many health issues related to underactive thyroid also stenosis, ankylising spondylitis, intestitial cystitis IBS, a small hernia ,lumps on my neck (not large enough for FNA) No treatment offered. Not proven but mentioned Acromegaly,I no nothing about this condition, but odema has been mentioned in the past and have a large frame with glandular swellings, dismissed by GP.

Now I am interested in alternative therapies such as mindfulness, cognitive therapy, accupuncture,

EFT Need to find availability if avalable on NHS. Thanks mad margaret

olive2709 profile image
olive2709

Help family /partners understand RD in plan words

PNIAuthor60 profile image
PNIAuthor60

Resiliency -what it is and how to recognize it in ourselves as a topic would be appreciated so that our recovery could be balanced

BobBaker profile image
BobBaker

Great idea! It would be good to learn about the genetics of rare diseases or maybe point to existing resources.

Bob Baker

BWS Support Group

slive profile image
slive

REOCCURANCE of prostate cancer which was taken out in a operation in 2001 , I completed 39 radiation therapy treatments at 21str century oncology regional center. I think its in remission since june 19 2018.. I still see ad urologist on and off for psa testing..

Vicky2708 profile image
Vicky2708

Treatment options for Endometriosis

orangecity41 profile image
orangecity41

I would like to hear more about CKD diet, (pre dialysis). Also for future information on home dialysis (heard that on Medicare they are proposing that will only pay for home dialysis).

Paprika60 profile image
Paprika60

Auto Immune Condition please. What are the new pioneering successful Gnome immunotherapies?

I would also like to learn how to read and understand blood tests results. Doctors always spend a while looking at the computer screen in consultation and discuss blood test results but never explain what they mean, due to lack of time I suppose. Just basic understanding of all the standard blood tests done for auto immune condition would be very helpful please.

Thank you!

anapmf profile image
anapmf

I would like to hear about Menopause and hormones to supply.

Mimigirl19 profile image
Mimigirl19

Chronic migraine. I’ve suffered for over 50 years from this condition. Also widespread osteoarthritis. Thanks.

Happyhare profile image
Happyhare

Dear Laura,

I would like to know more about my conditions- I have fibrosis of the lungs, which is a result of the low dose use of nitrofurantoin an antibiotic used to prevent urinary tract infections. I have also been left with bronchiectasis, which is difficult to manage. I would especially like to learn about:-

*what scientific advances are being made in this field, especially if the new drug being used for cystic fibrosis can be used for fibrosis of the lungs and bronchiectasis.

*How best to manage the bronchiectasis- information is out there but it is patchy. It would be great to have a go to place for good reliable information and tips, including videos of how best to drain my lungs.

*Clinical trials and how they work.

*What is the best treatment available out there? How to ask relevant questions of health professionals in order to access it.

Texan0262 profile image
Texan0262

Neuropathic pain-Different drug treatments

Lyrica, gabapentin and other successful treatments

of all kinds that work for this condition

specifically- Occipital Neuralgia

cosmetics profile image
cosmetics

Macular Degeneration, please. Thankyou.

Geetal profile image
Geetal

I have only skimmed through the info on Clinical trials. The answer I want may be in it so If it is I apologise now.

What is the lowest number of people that makes a clinical trial viable? I appreciate this will depend on the type of test so maybe a range. I cant think of the correct term but sometimes results are presented in terms of large groups of volunteers rather than true clinical trials. As we have so many members of the Forum could we not do some surveys of our members and report on the results.Surely someone would take notice if our sample was large enough to warrant our doing statistical analysis on it?

Frimley profile image
Frimley

Exercises to help following heart failure

Coping with Mental, Emotional and Physical health when unwell

Bereavement, harrassment, bullying, living alone when unwell - contacts for care etc.

Coping with multiple chronic illnesses.

Varina8 profile image
Varina8

I need to learn more about spondylarthrosis in the lower back. Daily pain when standing or walking even sitting. How to keep muscles strong when the painfree position is lying down. I think the problem is outworn small facett joints between vertebrae. Anticoagulated for PAF, problem with painkillers. Concerns many older people. I cannot continue with yoga or walking

Traccee profile image
Traccee

I'd really appreciate learning all I can about cognitive behavioral therapy. Are there different types of cognitive help groups?

I " think" I was in a cognitive behavioral therapy group about 25 yrs ago. But I'm not 100% sure . In thus group we did simple steps such as reading & saying words & looking words up discuss them and writing them down. Then putting them in a sentence. All openly discussing what each person thought the word to mean and how'd everyone use it.

I also remember talking about different types of parenting styles. etc.

Iether way I want to know the ABC's of cognitive behavioral therapy, & what's to gain/ walk away with learning. & What skills does c.b.t. teach as a constant use daily bettering lives.?

slive profile image
slive

PROSTATE CANCER METAISE TO PELVIS AREA PROSTATE WAS REMOVED 2001 AND CAME BACK IN 2016...… I HAVE. HAD 39 RADIATION THERAPY TREATMENTS AT 21ST CENTRY ONCOLOGY LOCATED CONWAY S,C IN REMISSION AT PRESENT TIME VER I would not recommend this treatment center they do not give enough information about the treatments...…………………SILVER.........

JosephBritain profile image
JosephBritain

Hello, I would like to learn about psyche and psychoanalysis. Thank you.

Traccee profile image
Traccee

"FAST BURNING THROUGH SYSTEM/MEDICATION"

Hello, I've done all I can to find out what's a best fit for medication for my ADHD. Specialist-therapy-my sychiatrist-dna testing. After a yr & 1/2 of different meds. I'm on ER ( extended release) 3 ×'s a day. It helps but I know it should be better.

I guess my question is, why does this happen? Why hasn't any meds. Been created for me & others like myself? The dna test was helpful to some degree.

It also was not accurate enough & I tried meds. It " suggested" those weren't for me. I wish it worked for me as it does in a "regular" ADHD person. I don't like having to take it , never mind 3×'s a day. I tried to go without for yrs at different times in my life.

I don't work that way.😭 Seems as long as this has been around. There should be more info. To help us understand. Thanks

Katz0rz profile image
Katz0rz

Endometriosis

RandyM profile image
RandyM

Hi Laura,

Living with and managing Chronic PAIN would be very popular.

WinB profile image
WinB

Hi Laura and All, I was reading what people suffer from and although I have had Epilepsy since 14, puberty, and at 63 I had an SAH 4 ..I feel so lucky just felt I had to put something down and to the person who has COPD , my Brother has it also and he sings a lot and hearing the music still coming from him makes me so happy and opens his chest. So All who are suffering Good luck All and Bless this site xxxx

Philippastcarin profile image
Philippastcarin

I’d like to learn about PBC and what I can do to help myself

Skrtjg profile image
Skrtjg

GCA and PMR

Timeflies5 profile image
Timeflies5

Hello...would you know if any other elearning programs have become available at this time? Thx 🙂

meathleinster profile image
meathleinster

Nutrition advice, with special emphasis on CKD as I am finding it impossible to get the services of a renal dietitian through my doctor.

Eliotf profile image
Eliotf

I have several topics: Dermatomyositis, oral lichen planus, CLL, hypothyroidism/hoshimoto’s

The mental effects of having open heart surgery

madfox profile image
madfox

I would like to know how to live and cope with Interstial Cystitus and IBS. There seems very little help out there for both osf these debilitating illnesses.

Pamvicdave123 profile image
Pamvicdave123

I have multiple health problems, but I’ve just been told I now havePBC does this sound familiar to anyone as I was told I have it and given a thick leaflet to read ??? I have no idea what to expect and what I’ve tried to find out actually frightens me

Felis profile image
Felis

Dry eye management please

InspiredWoman profile image
InspiredWoman

I'd like to hear from cancer survivors. My mom had lung cancer. Specifically want to know about coping with treatments, and how family members can help.

Also, always looking for relevant and educational advice on anxiety.

janetnelson profile image
janetnelson

I would be interested in learning about treating muscle cramps and joint pain. As a rookie athlete, I want to learn how I can take care of myself. Since I stay alone, sometimes the cramps and pain haunt me throughout the night. A friend suggested warm water baths. I want to know what more I can do to relax after heavy training sessions. Thank you!

toms22 profile image
toms22

I agree pain management x

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