I have been ill now for 3 yrs March, I started off with a chest infection which didn't clear up, was put on inhalers and eventually saw a specialist in the Oct 2010, gave all the symptoms of extreme breathlessness, coughing, wheezing, chest tightening, couldn't believe when he as much said it was all in my head, came out thoroughly depressed. I was put on lots of different drugs by the specialist, 3 different inhalers, prednisolone, 2 x ant- acids, (they found I had a hiatus hernia), carbocisteine, loratadine for inflammation of lungs, plus antibiotics when I get a chest infection, also 3 different strenghts of painkillers as I get occasional pains in different parts of my chest and back.
So, I bet you are thinking, wow, thats a lot of meds, I bet she knows whats wrong! Well, I don't, this will sound really stupid, taking all these tablets and not knowing why, I tell you, its not for want of trying, every visit, and they are about 4 - 6 months I ask them what is the matter, oh, they come up with other conditions they have found but not the most important one.
I saw the specialist the othe day, got quite emotional, bad day for me, struggling with my breathing, not being able to walk up the stairs with out using my ventolin, and having upped my prednisolone to 20 mg a day and still not working. I said to her I wasn't happy with using all this meds and not knowing what the problem was and the meds keeping it at bay, she then says she wants me to come back on Wed to see her boss as they are wanting to get me off the steriods after 3 yrs of use and to go onto an anti-cancer drug that will help me get off the steriods, they say they are going to have to monitor me more and do more bloods because of possible damage to liver and kidney.
Hopefully on Wed I will get some answers, but I doubt it, they don't seem willing to give a name to what I have!!