My husband has had COPD for 6 years but for the last two he has been getting steadily worse. He has been in hospital twice this year with pneumonia but the problem is we don't think we are getting the right support from our GP. He has given him hundreds of steroids and antibiotics this year (we did not know he had to carry a blue card around with him) he has not been given bone protecting tablets either, we found this out by going on the web.
We found out he is entitled to a community care matron, again by going on the web.
We have had to buy a wheelchair, back-rest, grab handles for the bath, seat for the bath-room, urinals, trolley with wheels which he cannot use due to poor walking ability, and a walking stick.
The GP referred him to the specialist, but after 6 weeks we had heard nothing then found out the doctor had forgotten to do it, by that time my husband was again in hospital with pneumonia. He is now awaiting appointments, for bone checks due to the steroids, heart scan, oxygen therapy, adrenal gland checks. When we had not heard about these appointments we rang the hospital and was told the registrar had not yet signed the letters (3 weeks after the appointment).
We cannot get attendance allowance because my husband is not incontinent, I have re-applied three times and keep getting turned down I have lost 2 stone in weight in 9 weeks, due to the stress. Have not had a good nights sleep in months.
We have been refused a Blue Disability badge on the grounds he is not ill enough so requested he be seen by a medical person and not a paper chaser.
All in all we feel totally alone, I am 70 years of age and if we do not get any help soon it will kill me., then my husband will have to go in a home.