I haven’t been on for a while for various reasons, but I am so pleased to see that Midge has taken over Don’s poem writing, although I expect some paw holding is going on from Don!
I had an exacerbation at the beginning of December which failed to clear, so had a second rescue pack at the end of the month with a different ab, but became completely breathless and ended up in hospital for nine days with fluid on the lungs (pulmonary oedema) probably caused by my very severe pulmonary hypertension and heart failure, but while there I was also diagnosed with type 2 diabetes. Is there anything else they can find for me? Hope not. I am now having to check my blood sugars twice daily, have been referred to podiatry and will be checked for diabetic retinopathy. I am already going to hospital for my eyes, but think perhaps the undiagnosed diabetes was causing problems all along.
I am a bit worried about the pulmonary hypertension because my breathlessness has got worse again. At 76 I am having palliative care for my heart problems, so have not been sent to a specialist centre for PH, and wonder if I should push for it. Something to discuss with my GP, respiratory nurse who I see tomorrow, and cardiologist who I see next week. I am already on 24 hour oxygen therapy. One piece of good news is that my lung disease is stable. I saw the consultant last week and he doesn’t want to see me again unless I start getting worse, but he has changed me on to Trimbow.
I would find it really helpful for comments about the PH.
Thanks for reading this longish post!