Hello Everyone ,
This is like a second part to my story a few weeks back.a few weeks have past now and finding life diffucult at times, I admit I am depressed at times, and still in tears at time. I feel so damm scared and the not knowing.
18th March I was once again diagnosed with lung cancer . I have COPD and on Oxygen for activity In 2016 September 12th I had a left lung lobectomy bottom half removed , because of two cancers on lung, operation was successful, recovered from that, i also have fibrosis and emphysema , cannot have SABR treatment.
The suggested course of treatment is Radiotherapy, problem is it is the treatment which will scar a proportion of my lung and make my breathing worse with having to use Oxygen continuous, where at present i use it for activity. so yes can get rid of he cancer ,but will be left with even more breathing problems, this I am petrified of if this happens,
so i have decided to have CT scans every 3 months and see if the cancers get considerably worse , than make a decision on treatment of Radiotherapy, it is about quality of life at present , this has hit me very hard . Next CT scan beginning of June. My breathing has got worse since January as I just had a lung function test , I have asked the lung specialist Doctor if there is a drug which can slow down the decline of my fibrosis, he say there is ,but are complications with it , so he will not recommend, he offered me Pallitive Care only that's it , he said it is not for end of life only , but for those who last year's too , meaning me, came out of the room devastated to be honest ,
Coping over the past few months have taken there toll, I feel I need something but don't know what, so frustrating. My wife has been strong for me , we get through each day , but I am scared. Thanks for reading this and any comments welcome