Hello Everyone I have one or two posts about this AEROSURE MEDIC but not many from users with COPD So anyone using this device with COPD I would value your thoughts .
Please me if you have used these breathing devises and if so have found benefit or not , Many thanks
Hi
I’am stage four, and been using the device for several weeks, once or twice a day for five minutes each session. Although the benefits are marginal, nevertheless a improvement.
Probably more beneficial to stage three or less.
Not used the mucus clearance, only slightly bronchi, but several members have reported good results in mucus clearance.
If considering purchase go to main website for better deals.
Further feedback
healthunlocked.com/blf/sear...
Hello stone uk Im sorry to hear about your condition but thank you for taking the time to respond and so quickly and share your experience .My enquiry was actual for both my in laws who aren't on the internet , He has COPD ( not sure which stage ) and she has Pulmonary Fibrosis. Along with the other comments its a great help .
I have an aero sure and started to use it 5 mins at a time. Unfortunately I have an incisional hernia and on reading the instructions again it advises against using it. Hope you get more replies as I think it’s a good device
HelloI'm sorry to hear about your condition but thank you for taking the time to respond and so quickly and share your experience .My enquiry was actual for both my in laws who aren't on the internet , He has COPD ( and also has an inoperable hernia for 5 years ) I wasn't aware about not using it with a hernia as it is not listed on their website so your comment is a great help .
I use it for mucus shifting when I have a cold. It does help then.
Hello Im sorry to hear about your condition but thank you for taking the time to respond and so quickly and share your experience .My enquiry was actual for both my in laws who aren't on the internet , He has COPD ( not sure which stage ) and she has Pulmonary Fibrosis. Along with the other comments its a great help .
Yes I have been using an Aerosure for about 18 months now, every morning and again in the evening, 15 times on each setting. You say you have COPD but what lung disease do you have? GP's are misleading patients by just saying you have COPD, but that is not a disease, its a lung condition. There are over 16 different types of lung disease, and if your Consultant or GP hasn't informed you what lung disease you have, they are misleading you, and you have a right to know, don't just let them get away with calling it COPD! I have stuck a couple strips of elastaplast just under the air intake of my Aerosure, and just before I use it I apply 3 or 4 drops of Olbas oil, and inhale that at the same time.
I have Emphysema, and Pulmonary Fibrosis, both of which my GP and COPD nurse tried to conceal from me, and just call it COPD. But I found out when I took a sneaky look at the COPD nurses computer this time last year. Anyway, I have a simple test, I first started to get breathless about 5 years ago, when out on my 20 minute morning walk, and found I had to stop for a rest at least twice! Part of this walk is uphill, and I am in my 77th year, so some difficulty was to be expected physically.
However, the other day I walked into town to post an important letter, but got distracted after going to the bank, and walked back home. That was 8 minutes in to town, and 10 minutes back. When I got home I realised I had forgotten to post the letter, so repeated this, but when I got back home, realised I had left my cash card in the bank ATM! So I repeated the trip once again, and found some kind soul had handed my card into the staff, who gave it back to me. So all in all I walked some 54 minutes, half of which was uphill, and I am sure I could not have done that two years ago! Hope this is of benefit.
Hello Im sorry to hear about your condition but thank you for taking the time to respond and so quickly and share your experience .My enquiry was actually for both my in laws who aren't on the internet , He has COPD ( plus Hernia and Positional Hypertension) not sure which stage or what form of lung disease but I know to ask more now She has Pulmonary Fibrosis which gives her a persistent cough/breathlessness at the moment . I am encouraged that you have used and find benefit it as I rang the customer service number and despite Pulmonary Fibrosis /Hernias not been listed on there 'not to use if you have list' they advised unless there GP approved it they probably shouldn't use it I think they were just covering themselves to be honest and sure the device may give them each some benefit . I think from your moment I need to get them to go to our local support group and contact the local Pulmonary nurse also found on this site to discuss all their options for help and advice. Your comments have been a great help . Thank You
I suggest you save your money!! My husband got one some months back and religiously followed instructions daily and it has made absolutely no difference to his breathing. He has advanced copd/emphysema and is on 5 - 7 litres oxygen 24x7 and suffers from really acute breathlessness on the slightest bit of exertion. He doesn’t generally have cough/thick mucus problems so used the Aerosure on the non-mucus setting. He showed it to his copd nurse who visited the other day. Although the BLF seem to approve it by putting their name on adverts for the machine, our nurse just shrugged her shoulders saying it’s a bit like a flutter machine (whatever that is?) and said she really couldn’t comment. I can understand people will try literally anything if it will help them to breathe, but it’s a lot of money wasted if it does nothing. Good luck though, whatever you decide to do.
Hello Im sorry to hear about your husbandscondition but thank you for taking the time to respond and so quickly and share your experience .My enquiry was actually for both my in laws who aren't on the internet one with COPD one with Pulmonary Fibrosis, Your comments regarding the COPD nurse have been a great help . Thank You
You can get a flutter machine on the nhs. Basically it’s a things you blow onto and helps release the mucus ❤️
thank you
Hi misstickle , although BLF's logo does appear on some of their material, this is because the manufacturers Actegy are part of BLF's Living Well Alliance ( blf.org.uk/take-action/lets... ) , it's not an endorsement or approval of the product itself.
I have been using mine for over three years for mucus clearing and when the mucus seems to be stuck and difficult to get up. I could not live without it and find it a huge help to keep my chest clear and the chest infections to a minimum.
Hello thank you for taking the time to respond and so quickly and share your experience .My enquiry was actually for both my in laws who aren't on the internet one with COPD one with Pulmonary Fibrosis, Your comments telling me the benefits you have found using the device have been a great help . Thank You
I have found all this very interesting. I don’t think my condition responds to anything much so I skip posts about these devices. But I have just seen a full page advertisement in The Times for the REVITIVE Aerosure. And what caught my eye was the use of the BLF red ballon and logo very prominently in the ad. It looks very plainly as if BLF endorses the device. So I contacted Ben Admin and he has put me in touch with the corporate partnership team. I sent them a photo of the ad. The company that makes the Aerosure has made a donation to BLF and is part of the ‘Living well Alliance’ which entitles them to use the BLF logo but not I think quite as blatantly as they have. I shall be intertested to see what happens next.
K
thanks for the info when I spoke to BLF they wouldn't comment on the device . So having direct feedback from users/sufferers is the only way forward and from from the comment so far it seems the benefit is down to the individuals condition and needs ..Mine field
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