Hi just joined the forum today.
I was diagnosed five years ago but took Very short of breath on a long haul flight home. On arrival in the uk I was hospitalised for 10 days. Got home on 17.04.18.
Took ill again last week and back on antibiotics and steroids. My o2 levels low. 85 to 87 and I have been given a nebuliser to use at home.
Feel I am not getting any better. Still breathless with no energy.
I do not want to go back into hospital as I am terrified of being put back on a cpac mask. I hated it.
Any advise please?