G'day Adelaide and welcome to the 'Family"
So sorry you needed to find us but glad that you did.
My wife, Susan, was diagnosed with IPF in may 2014, and we have "run the race" and received the "gift of life" on the 15th July this year. A bilateral lung transplant.
We reside in Australia and during our frequent trips to the hospital for regular check ups we meet many who are suffering with this "beast" of a disease, some on the wait list and others who do not qualify due to other medical problems.
The one thing they all share is their hope and belief that a cure will be found. And more importantly is their will to endure and live their lives to the fullest.
The prognosis, if you will believe what is written on the net, is not good, but in many cases is incorrect.
We have met people who have been battling with lung disease be it IPF, COPD,just to name 2 of the list, for many,many years and they are still with us.
All agree, keep a positive attitude, stick to a healthy diet, and most importantly..... exercise.
No... not running or swimming , but exercises controlled by a qualified lung physiotherapist, designed to keep your lung function as good as can be.
If you are not already in a rehab exercise group, ask your Dr to help. He/she should know of such a group in your area.
Lung fibrosis does not necessarily mean an early end to life, providing YOU are prepared to look after yourself.
A lung function test (Spirometry) every 3..6 months will show how your lungs are coping and that the meds you are taking are helping.
Please use this forum as there are many who can give you good advice