.....................................The last couple of weeks
First of all there was Breathe Easy week,What did you or your BE group do help promote Breathe Easy. Breathe Easy Nottingham had a stand for a week in Nottingham City Hospital
by the Respiratory Unit. I manned the stand on the Tuesday and Thursday mornings during respiratory clinic times.
I attended my local 38 degrees campaigning group when I was able to introduce Breathe Easy,COPD.COPD after care and research to the new local Chair of Healthwatch Joe Pidgeon.
At a meeting of the Nottingham North and East Clinical Commission Group's COPD Strategy Group it was explained how things were progressing since the new moves that have taken place since April 1st in the NHS .One of the things discussed was the withdrawal of the self help mamagement plan .This to be replaced with individual plans equated to each individuals needs.
I attended a meeting in Leicester of the Patients and Public Improving Healthcare Research.
It was an 'Open Space' style event for ,patients the public,researchers and healthcare professionals,giving everyone the chance to share experiences,and work together to solve each others questions around how the patients and public can get involved and improve the impact of healthcare research.It gave me a great opportunity to promote Breathe Easy and the BLF and how could we help in COPD and COPD aftercare.
The event was supported by:-
OThe Health Foundation.............Inspiring Improvement
NIHR CLAHRC..........Making it real
KiP..................Knowledge into Practice
NHS.National Institute for Health Research
Simon Denegri Chairman of Evolve introduced the event
Nottingham North and East Clinical Commissiong Group's meeting 'No decision about me without me',that I attended at the Civic Centre was about the furtherence of the NNECCG since April 1st
They are know working in league with ,The Red Cross,Salvation Army.Age UK enabling them to be closer to people in need of specialist help and treatment thus reducing hospital admissions.These are operational in Nottinghamshire area only at the moment but having been successful so far they are expected to be rolled out Nationwide
During carers week I went to Sherwood Hall for a carers meeting'Medicine for Members'
A Focus on Supporting Carers
There was an introduction from Peter Homa,Chief Executive
Presentations were given by
Carering for Carers at NUH- Katie Moore-Head of Patient & Public Involvement
Trish Cargill-Chair of Patient Participation Group
Sarah Deakin-Practice Development Nurse-Dementia
Virtual Health clinic Presentation - J Tabreham
Carers week is a partnership of nine national charities.The partners support carers in a variety of ways.For more information visit carersweek.org
Age Uk 0800 169 6565
Carers Trust 0844 800 4361
Carers Uk 0808 808 7777
Independent Age 0845 262 1863
MacmillanCancer Support 0808 808 0000
Marie Curie Cancer Care 0800 716 146
MS Society 0808 800 8000
Parkinson's UK 0808 800 0303
The Stroke Association 0303 3033 100
Ten steps to help you prepare to care
1 Don't be afraid to ask questions.
2 Find out more about the condition and treatments/medication
3 Think about your finances
4 Talk to your emplyer
5 Find out about valuable support
6 Find a balance
7 The best laid plans-planning for emergencies
8 Make Time for you
9 Talk to other carers
10Be prepared for change
visit carersweek.org for more information
This meeting was by Nottingham University Hospitals
Market stalls were by:-
Adult Social Care Healt -Nottinghamshire County Council
Dementia Group Radford Care Group
Department for Works and Pensions
Dissabillities Living Centre
GP Champion Project
NUH Carers Support
Share your ideas
All in all it has been a very interesting two weeks(4 days in bed)
Organisations are now listening and asking for the public voice which can only be for the good.
BREATHE EASY= FRIENDSHIP
Support your British Lung Foundation And Breathe Easy
03000 030 555 For details on joining Mon-Fri 10am 6pm