Is upset / sour stomach a symptom of interstitial cystitis?

[Piscesdreamer]

Hello everyone, is lack of appetite, sour or upset stomach, stomach distention a symptom of interstitial cystitis?

Thank you ♡

Irene

[Happyrosie]

I do not think that we on this forum should be diagnosticians.

[Piscesdreamer in reply to Happyrosie]

Thank you, maybe I should have worded that differently?

[pelvicpain123 in reply to Piscesdreamer]

Hi Piscesdreamer.

I am so glad that you posted this. I have not seen upset stomach or sour stomach on any of the symptoms list for IC but it is something that I have been suffering with for a long time and wonder if it is a symptom which affects some of us!

I have a bloated stomach (which is a common symptom) but I also have severe nausea and have an upset stomach 90% of my day.

I also vomit bile when my symptoms are bad. I ended up in a&e this week and was given some tablets for the nausea and they have made a big difference.

If it is bothering you, definitely speak to your Doctor and feel free to message me privately if you want to. I have been trying lots of different things to help with mine and would be happy to share them with you to see if they help you, not as a diagnosis but as a fellow sufferer and support network ♡.

Have a fab weekend x

[Piscesdreamer in reply to pelvicpain123]

I am seeing the Urogynecologist this week, then a new rhuemetologist the next day. I plan on asking both oc them about this. I have a lack of appetite, but I am hungry. No food is appealing to me. I start eating then have to force myself to finish. This has been going on since March. I have lost 20 pounds.

[pelvicpain123 in reply to Piscesdreamer]

I hope that your appointments go well and that they can give you some answers x

My appetite hasnt been affected but I am scared to eat the foods which irritate my bladder because of the pain of IC.

Ps. I have found it helpful to write down my questions beforehand as as soon as I sit down with Doctors I forget everything I wanted to say lol :).

[Piscesdreamer in reply to pelvicpain123]

I usually arrive at my doctors appointments with 3 pages of questions lol I am lucky if I get 5 questions answered. I feel like I need to schedule a special appointment just for Q & A. Maybe I will start doing that!

[Pte82]

Piscesdreamer these links contain information about the vagus nerve functions and connections in the gut and bladder. It also brings out a deficiency affecting the nerve resulting in a variety of health concerns. Once you have become familiar with them, add questions it may have raised to your list of questions for your appointment.

eonutrition.co.uk/post/when...

eonutrition.co.uk/post/thia....

eonutrition.co.uk/post/thia...

[Piscesdreamer in reply to Pte82]

These articles were certainly an eye opener for me! I will ask for my thiamine and B levels to be tested. Thank you so much!!!

[Pte82 in reply to Piscesdreamer]

Piscesdreamer take note of the test method for thiamine in this link to request as other "one size fits all" B tests may not give you the answers your looking for.

mayocliniclabs.com/test-cat...

[Piscesdreamer in reply to Pte82]

Thank you!!!!