fed up with unstable life

[Loomes]

i have unstable angina i phone 111 for advice and they send ambulances fed up with this condition bloods done ecg and sent home each time i went see cardiac nurse at hospital and ecg abnormal again admitted to hospital no stents yet sorry but am fed up

[fishonabike]

I am sorry that this is happening to you, it must be very distressing

@milkfairy often responds to issues like this and I hope they see this soon. Meanwhile, in response to a similar post recently they wrote about a Care Plan being written for these situations. Would not solve your immediate problem but would be a helpful strategy for the future.

[Loomes in reply to fishonabike]

Thank you for your kind words no care plan ever i recently had another angiogram and said heart ok no stent but when they do ECG abnormal i have been rushed to hospital many times blue lights sirens and taken to stent theatre none put in and latest was cc something for two days this year as emergency not me asking for any of this i am not a dramatist just fed up

[fishonabike in reply to Loomes]

The uncertainty is very hard to deal with and of course you are fed up, anyone would be

A care plan is something which needs to be requested specially - if you are having repeated A&E visits and admissions it helps to save them and you time and distress because it outlines the treatment you need and what they need to do - your cardiologist should be able to prepare this for you

[Loomes in reply to fishonabike]

I have not seen cardiologist since jan sorry but find it very hard at moment they do ecg abnormal hospital ecg traponin sent home

[fishonabike in reply to Loomes]

One of the reasons for drawing up a care plan is to ensure better treatment for you - another is to make more effective use of (scarce) NHS resources

Push for an appointment with you GP and or Catdiologist and ask for one to be drawn up - it is in your interest and theirs

[Milkfairy Heart Star in reply to Loomes]

Have your Cardiology team explained to you why you haven't needed a stent or what maybe the reason for your ECGs being abnormal?

When I have severe coronary vasospasms, I have ECG changes that look like I am having a heart attack.

I have an agreed careplan, it guides the staff how to care for me in A&E and on the Cardiology ward.

Anybody with a long term condition can ask for a careplan.

Mine was co designed by my Cardiologist, Pain Team, Nursing staff and myself.

[Loomes in reply to Milkfairy]

I had chest pain last night went phoned 111 explained how i felt i didnt want ambulance but no one was called again abnormal ecg i went and sat in waiting room for hours no traponin test no ecg this time ieft i never lie i feel a fake

[Milkfairy Heart Star in reply to Loomes]

I am sorry this is happening to you.Your pain is real. Have you got anybody who can support you?

[Loomes in reply to Milkfairy]

Nope. Have daughters but no interest im alone with it and its gaving an affect i am seeing my gp today but feel it will be fryitless

[Milkfairy Heart Star in reply to Loomes]

Perhaps give the BHF helpline a call and speak with one of the cardiac nurses? 0808 802 1234

[Loomes in reply to Milkfairy]

Many thanks i will today apreciate

[Loomes in reply to Milkfairy]

I just spok

[Loomes in reply to Milkfairy]

I just spoke to a wonderfull nurse who understands my concerns and sudgested meds i should be on and that i need to be seen by a cardiolgist soob many thank you for number and advice

[Milkfairy Heart Star in reply to Loomes]

Great to hear you had a positive and helpful conversation with the BHF nurse.

[Loomes in reply to Milkfairy]

Thank you for the help she was nice very helpfull

[SuddenShock]

Sorry that you are feeling so low about this situation. I think that most of us feel this way or have done recently, I know that i have.

You have made a good move to contact the group, even though we cannot fix many problems at least we can empathise and sometimes even raise your spirits.

I always recommend this because of the relief that they gave me when I was first diagnosed: try talking to the cardiac nurses on the bhf helpline, you don't need to book and they have answers for many of the questions that we all ask. Look at the web page and either call or on-line chat with them 9-5 monday to friday.

bhf.org.uk/informationsuppo...

Chat / reply to some of the others on here, if nothing else it gives you something to take your mind off your troubles for a while.

Good luck!

[Loomes in reply to SuddenShock]

Thank you so much its not been easy i have no support with this so yiu are very kind

[SuddenShock in reply to Loomes]

Thats no problem, we are all in it together!

[Loomes in reply to SuddenShock]

Night hun im going bed thank you

[Milkfairy Heart Star]

Hello,

Do you know what is causing your angina?

I have lived with unstable angina due to coronary vasospasms for over 10 years.

I acknowledge just how challenging it can be living with uncertainty.

[Loomes in reply to Milkfairy]

i have unstable angina coronary heart and ischemic diseas they say i have had bad time recently with it and up down hospitals geeting me down

[Loomes in reply to Loomes]

Thank you for kind words they never give any feel like a fake at hospitals

[Milkfairy Heart Star in reply to Loomes]

Have you discussed with your Cardiac nurse or GP how you are feeling? I found seeing a Clinical Psychologist helped me cope with the uncertainties of living with unstable angina.

[JHutton1994 in reply to Milkfairy]

What exactly does a clinical psychologist do?

[Milkfairy Heart Star in reply to JHutton1994]

A Clinical Psychologist can help you to find stratergies to respond in a less emotionally harmful way to your pain.

[Rubia6]

Hello I know exactly how you feel, so much so I now refuse to go to hospital. I'm not being clever it's just as you say they do tests which I'm grateful for but after another 4\5 hours I'm normally discharged. I feel uncomfortable as in, they may think it's all in my head. It's not!. I was diagnosed in 2021 with lung cancer and heart failure at the same time which includes A.F. and LBBB. I had a pacemaker fitted in 2022 to help with the A.F. I also had an Ablation. This may sound crazy but I feel more ill now most of the time and have done for over a year. I have no idea what stage heart failure I'm at, my fault, at the time didn't know anything about any of this. These questions I need to ask. I'm not under the cardiologist nor the heart nurse team anymore just my G.P. My symptoms which wear me out are tightness from one shoulder to the other which runs up my neck and down the tops of my arms. I am overly tired all of the time, short of breath at times extremely cold to the point I no longer can leave the house as I am unable to control my body heat making lots of excuses to stay behind. I was once a very fit person now I feel like a lump of lead. I would love to know if anyone else suffers with these problems.. I never ever know if I dare make plans as there's episodes just appear from nowhere. I really would appreciate any info.

[Loomes in reply to Rubia6]

I too have lots of those symtoms i dont go out much now im too tired and get chest arm pain when shopping now as well as at rest i go to hospital and put in general pipulation used to be in majors cubical now left to rot i stopped going they asked me go see cardio nurse i did ecg abnoal then put in hospitak so you are not alone ask for review i am going to good luck im here for you

[Rubia6 in reply to Loomes]

Thank you it's good to know I'm not alone with these symtoms not that I wish you any harm. I hate going to the doctors as it's always the same, bloods etc. And you know they are coming back clear I have a good doctor who is really helpful but I can't get to the bottom of why I feel so ill nobody has an answer I ask the same question when I have my pacemaker checked. I mean if my heart is getting worse I'd like to know as this could be the reason I feel so ill. I just want to know why I no longer have any type of life. Thank you once again take care

[Loomes in reply to Rubia6]

I had a reveal device fitted few years ago as they was going to fit me with pacemaker but i had for over a year and could not operate it so had taken out and no pacemsker fitted my heart stops sometimes lol and alarms go off and they come running with crash cart i was in cc something orher week special emergency department now i go into normal population so you are nort alone in this honest and i am here for you excuse my bad typing

[Rubia6 in reply to Loomes]

It's good we can laugh about it, that helps so much, I've had a real bad painful day today hence my moaning. You have reminded me I do have a sense of humour, it might be a little quirky but I do have one. So thanks for the giggle.

[Loomes in reply to Rubia6]

I am not unhappy always just tired at moment of pain i dont even stay for ecg or traponin now i leave discharge each night i say to myself if i die in night hope i go to hell had it

[Loomes in reply to Rubia6]

You seem a nice person so keep pushing to get answers it will happen for you

[Rubia6]

Hi there sorry to hear you so down and frustrated it seems to me to be par for the course which is no good to anyone. I do hope you are feeling better now, keep your chin up in my case many chins. All we can do is keep plodding on and hope things improve. Have a good day.

[Loomes in reply to Rubia6]

I am because i have decided no more ambulances or drs or hospitals i will stat in my flat and hope i do have a third heart attack or 4 th stroke and finaly pass thank you for contact hope you get well good lyck

[Rubia6]

I really sympathise with you I do know how you feel it's all a bit too much and it's a daily occurrence. I'm now thinking of trying counselling as I've gone from being a very independent person to someone I don't recognise. I now prefer to hide away from life which is not good. I like you refuse to go to hospital now as you know the routine and the answer. I do appreciate everything they do for you and am grateful they are there I just choose not to go. I'm sure someone else needs the bed more than me. I just rest up for a few days keeping my fingers crossed. Are you like me in as much as you need to know why you feel as you do. I just think if I knew I could possibly help myself more. I never thought getting old could be such a drag we should be issued with a Beware Old Age notice as to what it could really be like. It's definitely not what you imagine if is that just me?

[Loomes in reply to Rubia6]

Im so like you its a nightmare i dont get kept in now last time no ecg or traponin done just sat for hours in general public waiting room 4 hours then i left walked home early hours of morning. Feeling ill they phoned 4 hours later was i still in the hospital grounds i answerd in french i have realy given up hope you carry on