Lansoprazole: For years I've had really... - British Heart Fou...

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Lansoprazole

Quesswho profile image
27 Replies

For years I've had really bad pins and needles in my arms and legs. Had tests and was put on Isosobide. I was reading an article about Lansoprazole how it can give you body aches, pins and needles. So I thought I'd stop taking them. I now keep getting gerd. Bought some Gavisone, only just started taking it, but it's not having any effect. Any suggestions appreciated. Thank you BHF Community.❤

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Quesswho
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27 Replies
Happyrosie profile image
Happyrosie

what about a chat with your pharmacist?

JHutton1994 profile image
JHutton1994

There's alternatives to PPIs like H2 blockers that work differently and have different side effects. Worth talking to the GP about.

PadThaiNoodles profile image
PadThaiNoodles

I take famotidine (an H2 blocker instead of a PPI) for GERD. There's an over-the-counter version (Pepcid AC) so you could see if it does anything for you. (My prescription dosage is the same as Pepcid AC Maximum Strength, but I think that's over-the-counter only in the States.)

Quesswho profile image
Quesswho in reply toPadThaiNoodles

Will definitely look into that👍🤓❤

Qualipop profile image
Qualipop in reply toQuesswho

I also take famotidine. The PPIs make me feel horribly sick

For over 15 years I have taken a PPI at a relatively high dose primarily for reflux disease. I have taken lansoprazole for nearly six years and, fortunately for me it generally keeps my symptoms under control and I don't get any apparent side effects from it or any other medication I take. You are struggling on two fronts, you may have side effects from lansoprazole although that could be caused by any of the other meds you are taking, and the lansoprazole doesn't not appear to be working for you. I suggest, as have others, that you talk to your GP or at least a pharmacist for their opinion perhaps with a change of medication in mind. From my own experience I would not consider taking Gaviscon or similar long term, it is a short term remedy. And also based on my experience there might be things you can do to reduce your reflux symptoms by avoiding foods that are not reflux friendly, such as irritants (spicy and alcohol), bloating/gas forming ( e.g onions), sphincter relaxants (coffee and chocolate) and acidic (citrus & tomatoes). Also don't eat large meals try little but often and avoid eating 3 hours before you go to bed. And I make sure I don't pressurise my abdomen as far as possible . Hope this helps.

Quesswho profile image
Quesswho in reply toLowerfield_no_more

Thanks for your advice. I only intend to take Gavison short term. I've stopped taking Lansoprazole because of the long term use of PPI,s.

jayjay10000 profile image
jayjay10000

Hi Quesswho, sorry you are having trouble with Lansoprazole. Iam also taking this medication as well twice a day 30mg. Iam experiencing the same effects as you pins and needles sensation and joint pain, this has been going on for some time now, if I stop taken it for a few days I have no more pins and needles sensation and no more joint pain, maybe as your doctors to change your medication to something else. Take care.

Quesswho profile image
Quesswho in reply tojayjay10000

👍🤓That's my symptoms. I'm going to have a word with GP.I've started to take enteric coated Asprin replacing the disposable. That's the reason I take Lanso. But it does say when you stop, (cold turkey) you get acid build up so I'm really hoping I don't need another Tablet🙄❤

Murderfan58 profile image
Murderfan58

I was on Lansoprazole for acid reflux first thing the AF nurse did was take me off it because of the swelling in my legs and ankles . I take Gaviscon mainly in liquid form the double action one but sometimes have to take another dose for it to go . I always have the tablets with me just in case . But I found out what foods triggered the acid reflux and cut them out of my diet Found stress made the acid reflux worse especially if my PAF kicked in . So I try and relax and do my pre natal breathing and just be still for a while and found that works .

Quesswho profile image
Quesswho in reply toMurderfan58

Thank you for your reply. Your probably correct about stress causing acid reflux. My husband has Myeloma and unfortunately it wasn't picked up early, so it's now incurable. His now having heart issues apparently a side effect from the chemo. But also stopping Lansoprazole also causes Gerd. ❤

Murderfan58 profile image
Murderfan58 in reply toQuesswho

My husband had grade 4 malignant melanoma diagnosed in 2001 and we were told he wouldn't live 5 years. When he was terminal in October 2003 he had 6 tumours and have palliative chemo . He wanted to get to his 47th birthday in February promised I would get him there . He died 4 days later at home with me and the children.. I had to tell him to stop struggling and we would be ok . He died few minutes later.

So fully understand the stress and worry you are going through. Which has a knock effect on your health as you concentrate on looking after your husband. Sorry you are both going through this . I know my husband hated feeling useless and dependant on me as he got weaker.

It's so hard watching the other half of you suffer and no doubt he tries to shield you from what he is going through I know my husband did. But we had been together 29 years married 22. So knew him very well. He couldn't hide anything from me.

Stress doesn't just effect you mentally but physically. Not a good combination. I hope your husband isn't suffering too I much and you have a good McMillan nurse. Ours helped us so much . 💐

Quesswho profile image
Quesswho in reply toMurderfan58

Thank you for your thoughts and kind words. They mean so much. We've been together for 52years, (a blind date. 😍.) We try and talk about all the happy and good times. Yes he tries to shield things from me, but I know.

The Nurses are amazing God Bless Them. Thank you again.💝🤗xx

Murderfan58 profile image
Murderfan58 in reply toQuesswho

My husband had asked my brother if he would get his sister to go out with him. If I did he will buy him a couple of pints. 1975 a pint was 17p so my brother sold me for 34p. With my disability never through it would last . But even when my mobility got worse when our children were 4 and 6 months nothing phased him . He just said we alter our way of life to suit what you can do. And be a normal family he kept his word until the day he died .

We are very lucky we found the other half ourselves the only person in the world who knew the real you and you then. Some people live their whole lives and never know such love and feelings of being complete .

52 years that must have been some blind date . 😊. He's like my husband me man me take care of woman like some silver backed gorilla. Glad you have good nurses. as they not only look after and care about your husband but they care about you to. 💐

Quesswho profile image
Quesswho in reply toMurderfan58

Thank you. I love your story. Your right some people never get to experience a True Love. I guess we're the lucky ones. 💝🤗x

Fifille profile image
Fifille

Bicarbonate of soda

Bennieblue profile image
Bennieblue

I am on pantaprazole for gurd. It works well. Been on it for years, no side effects.

Quesswho profile image
Quesswho in reply toBennieblue

👍🤓❤

july2020 profile image
july2020

Hi there are a range of Protein Pump Inhibitors (PPI) like lansoprazole that your doctor can prescribe as an alternative. If you still get side effects then as someone else suggested you could try a H2 inhibitor.

As an no tablet alternative you should look at the many resources that suggest diet changes to minimise or eliminate GERD.

Bennieblue profile image
Bennieblue in reply tojuly2020

Unfortunately I cannot take inhibitors. Thank you for the suggestion though.

mesally profile image
mesally

It has to be Gaviscon Advance. It can be as effective as Lansoprazole apparently, as it forms a raft to prevent gerd/gord

Eddie64 profile image
Eddie64

I stopped taking them months ago but it doesn’t stop the pins and needles or numbness

TheJazzSinger profile image
TheJazzSinger

Unfortunately PPIs have side effects, like most drugs. I’ve suffered with Gerd for years but decided to find other ways to control reflux, and on the whole, my Gerd is under control. I take a very good liquid probiotic in the morning which has helped my gut bacteria enormously. Some people take digestive enzymes which are said to help. I also now know what can trigger an episode. Eating a main meal early in the day or evening helps. I used to find I would wake at 1 a.m nearly choking on acid. Horrible!! My oesophagus would get inflamed which was uncomfortable & can lead to Barrett’s Oesophagus. Not mixing certain alcoholic drinks with fatty or rich desserts. Taking a walk after eating helps digestion. Everyone’s different. You just need to find your personal triggers and try and manage them.

Quesswho profile image
Quesswho in reply toTheJazzSinger

Thank you. ❤🤗

polenta profile image
polenta

When you have taken PPIs for a long time, you need to wean off of them slowly or they will cause acid build up and make you think you need them. You can find lots of articles about getting off of them on the internet. My Daughter also had the same problem when stopping them suddenly, but was able to slowly stop them and eventualy not need them anymore. PPIs are not for long term use to begin with unless you have barretts esophegus, or other chronic conditions. My Daughter was able to control her GERD by making better food choices and chewing on a occassional tums when needed. Your pancreas NEEDS some acid to work properly and taking them long term can cause other issues and very serious problems.

Quesswho profile image
Quesswho

Thank you and your Daughter for that advice. I've been on them for 4years. I believe if I take Asprin with food (The Asprin was the reason I was prescribed them) I would be ok. I just feel so much better from not taking them apart from the acid reflux. Thank you both again.🤓🤗

Dance_queen profile image
Dance_queen

PPI’s reduce stomach acid which is needed to digest some vitamins such as B12. A deficiency in B12 can cause pins and needles and numbness as it is needed for the myelin sheaths among other things. PPI’s are not for long term use. I used apple cider vinegar diluted, half an hour before eating, which helped.

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