Has anyone had pins and needles or ne... - British Heart Fou...

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Has anyone had pins and needles or nerve problems after heart attack?

Callie456 profile image
14 Replies

When I had my HA, as well as chest pain, dizziness, shortness of breath & nausea, I got lots of pins and needles all down both arms and into my hands/fingers.

Ever since then I've become very prone to getting pins and needles in my arms & hands, way more often than normal.

I've also lost some sensitivity to touch/pressure, so sometimes I drop things. I can't feel extremes of heat/cold as well as I used to either and have burnt my fingers as a result. I've been told it seems to be a sort of peripheral neuropathy, but no one can really explain it to me or tell me if it's temporary or permanent.

I'm 4 mths post HA now. Has anything like this happened to anyone else?

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Callie456 profile image
Callie456
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14 Replies

I get this as a side effect of colchicine, is it listed as a side effect of any if your medication?

Callie456 profile image
Callie456 in reply to Captain_Birdseye

No, it's not listed on any of my meds. Is there anything that you've found helps with your side effects?

Captain_Birdseye profile image
Captain_Birdseye in reply to Callie456

Only coming off the medication... which I can't do just now. Normal painkillers don't touch it. My GP advised that I bear with it last time I was on this.

If yours isn't medication related, hopefully there's something your doctor could look into for you?

Callie456 profile image
Callie456 in reply to Captain_Birdseye

Thanks, Dr doesn't really have any suggestions, except to wait and see and try physio exercises, which I'm doing, but it's frustrating to have no proper answers.

Ethel14 profile image
Ethel14

Hi, do you have any neck problems it could be a slight trapped nerve or peripheral nerve damage are you diabetic !!!!

Callie456 profile image
Callie456 in reply to Ethel14

Thanks for the thoughts, I'm not diabetic, I do have a neck problem but it's been checked and it's not that. I think peripheral nerve damage sounds right, I just don't know why.

Bigheart58 profile image
Bigheart58

I occasionally get pins and needles in my legs when I sit on the toilet. I have no idea if it’s related to my medication or just coincidental.

Callie456 profile image
Callie456 in reply to Bigheart58

Ok, thanks, yes it's just hard to know if something is a side effect or not really.

Thanksnhs profile image
Thanksnhs

Hi since my transplant I have suffered badly from this especially at night, my GP said it was peripheral neuralgia and prescribed a low dose of amitriptyline to take at night it really works for me and the symptoms have practically disappeared. Char

Callie456 profile image
Callie456 in reply to Thanksnhs

Oh, that sounds promising. Do you know what exactly caused the neuralgia? Or any further explanation about it?

Thanksnhs profile image
Thanksnhs

Hi they never said and to be honest I probably never asked, I am quite bad for that. I was just so glad when the meds worked and I could sleep without getting woke up with the pains, char

Callie456 profile image
Callie456 in reply to Thanksnhs

Yes, it's great the meds worked so well. Thanks for sharing the information and hoping you're having a good day.

Bran_flow profile image
Bran_flow

Hi Callie456 yes I've had this down both arms at night only my hands feel like my mouth feels after being numbed at dentist no feeling at all. I do have spine and nerve problems down my right leg for years but this has only started happening down both arms and hands since my HA last May. I wa taken off Amitriptyline at hospital after my HA after about 8 years on it, waiting on my cardiologist follow up appointment in few weeks to ask more questions about it I haven't been seen by anyone since it happened last year unfortunately so still pretty much in the dark about it all. This forum has helped me so much as I see now I'm not alone or going mad with all these new strange things happening to my body. I would push and push to be seen especially as it has caused you to burn yourself.

Callie456 profile image
Callie456 in reply to Bran_flow

Thank you for your response, it's a comfort to find others with a similar experience. Yes there's so many new feelings, emotions and sensations with these cardiac problems.I was also glad to find this forum and no longer feel like I'm crazy with it all too. I'll see if I can ask drs again. You've had a very long wait, I hope the cardiology appointment goes well. Maybe they'll start amitriptyline again.

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