Banging my head against a brick wall

[Truffles2]

I am feeling so tired and breathless. Just had a telephone appointment, my year follow up after ablation with a nurse, I haven’t once seen or heard from a doctor apart from the day of ablation to sign consent. I have since ablation, had a CABG because of triple vessel disease all through my private health insurance and those doctors have finished with me too. NHS failed me by just treating for AF and not investigating further. I still feel rubbish, it was all supposed to give me a new lease of life. I’m sure my medication is making me feel like this but all the doctors and nurses say you need beta-blockers to protect your heart, your need blood pressure pills, you need blood thinners, you need diuretics, but I feel rubbish and no one is listening I’m getting really down and heading for depression so what do they wanna do put me on more meds to make me feel more tired. I’ll take quality of life over quantity so I guess I’m just gonna have to take matters into my own hands and stop my bisopazol I’m only on 1.25 anyway. And I’m sorry but just need to rant cause no one it listening

[BeKind28-]

Hello

I am sorry I have no answers but I must say I could relate to how you feel as if I had wrote it myself

I hope others will be able to tell you what their next step would be as I will be interested to know x

[Truffles2 in reply to BeKind28-]

BK you’re always there listening. Thank you X

[BeKind28- in reply to Truffles2]

Hello

I do know how you are feeling and if just one person listens to us it does not solve how we feel but I always thinks it helps

I really hope you get the answers you need x

[WardijaWardija]

Hi Truffles.I can literally hear your frustration jumping out of the screen, and I get it 101%. We must almost be twins - I'm going through something very similar, and am pulling my hair out with the stress I'm under and again, nobody is listening.

As I have multiple complex issues, that overlap medically, I get passed from department to department, they all pass the buck and no one wants to take any responsibility. I'm so fed up with the hours spent ringing around, being put on hold for 50 minutes, only to find out that there's no one available to talk to me. Leaving messages that NEVER get returned, and worst of the worst, being held to mental ransome of an automated telephone system, the options of which, do not tally up to my enquiry and then just cuts you off, smugly saying "thank you for calling"

I could SCREAM 😱😱 and I do !!

All I want is a HUMAN BEING to talk too . . .

I'm definitely a quality over quantity kinda gal. I refer to this often in my postings n' replies, so I'm with you on that too.

Sometimes I feel like throwing in the towel . . But somehow the love of my dog, keeps me going . .

Just be careful when thinking about the role of the Bisoprolol . . Your dose is very minimal. Is it really causing you major problems? Can it be changed to something else?

I have to take 8mgs of it to keep me stable. I started on the low dose and it's gradually had to be increased 🙄 but I'm still ticking over - just.

I hope you manage to find a way forward.

🙏🙏🙏

[Truffles2 in reply to WardijaWardija]

Hi wardija. I really don’t know if that is the cause of me feeling rubbish but the medical profession are not listening so I figured I would start with that as you say it’s a small dose, I just want to be able to function. Had a rough day at work yesterday, we were short staffed and I would normally (18mnths ago) I would of stayed on to help out as really it was unsafe for me to leave but I just couldn’t put another foot in front of the other. I need to exercise to aid wait loss and to recover from CABG but I had 15 mins on a bike and a 20 min very slow swim. I was so messed up I had to get my husband to pick me up. I to have complicated health issues but your right the medical professional don’t communicate with each other or their patients. I am getting so frustrated don’t know who to turn to it’s like they think I should just take what they say and just accept it. My ablation was supposed to help me it stopped the AF 🤞but just ended up having CABG which was supposed to give me a new lease of life but I just feel worse than ever. Thank you for listening to me I just need to rant am feeling very angry with myself as much as the professionals

[Truffles2 in reply to WardijaWardija]

I too have a lovely beautiful Beagle who I can’t walk at the moment it is crucifying me. Luckily my Son takes him everyday but my husband and I always took him out at the weekends

[WardijaWardija in reply to Truffles2]

You don't need to be so hard on yourself hunni, our medical conditions are hardly of our own making. This is certainly not how we wanted our lives to turn out.Take some comfort if you can that your not alone in this, and that you do have family around you. Sadly all mine have passed away.

If you want to talk, you can always PM me any time.

🙏🙏