I am over a year since infective endocarditis left me needing a mitral valve repair.
It will be a year in May.
Some days feels like a very long time ago other days just yesterday infantilised in a hospital bed addicted to their custard. 😀
I was very lucky and the support I had from the NHS amazing plus being able to be a member of this community and read everyone else’s stories. So thank you.
I have been cardiac med free since September, back at work full time and spent the morning bodyboarding. My only gripe is that my dog wanted to stay on the beach with the friends he had made rather than leave with me… 😝
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HeartSketchBristol
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hi. You had a lucky escape as endocarditis is very nasty. I had it in January last year and it left me with heart failure. It’s uplifting to hear that you are doing so well and it gives me hope, so thanks. I don’t think I could manage bodyboarding although it sounds great, I did go shark cage diving last October though and hopefully doing it again in January, maybe with great whites this time 😱
Thank you for sharing your experience, HeartSketch, and your gorgeous photos! It's always really inspiring to read about successful recoveries. (I'm a bit jealous though - we didn't get custard while I was in hospital last year - mind you, we did get offered a tub of ice-cream!) Carol😆
My gp heard the murmur and referred me to heart institute, They confirmed via a echo that it was a leaky mitral valve.
I did not know that having a leaky valve could leave me open to such serious damage once I had a blood infection. Apparently the valve not functioning properly allowed the infection to latch on.
Source of blood infection never confirmed but chief suspect was a serious gum infection.
Thank you for replying and sharing.Waiting game here, still no sign of echo appointment, but it's only been a few weeks, I'm just worried and trying to keep a lid on it until I know more, easy said than done!
Well done on your recovery and thanks for sharing your story of shopping a hospital bed for a bodyboard! Also for the beautiful photographs which make lots of us wish we were on the beach with you and your dog too.
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