Sinus pause

[Sinuspause]

Hello, my 15 year old has sinus pause and has had a pacemaker for the last 4 and half years. He has grown a huge amount in this time and the lead has moved in the heart a bit. He is in for surgery mext month but in the meantime he is trialling the pacemaker being turned off to see if he has grown out of sinus pause. Has anyone else been in this situation? We had never been told this is a possibility until out last appointment so we quite shocked. Obviously I am a nervous wreck waiting for him to faint, but slightly hopeful he has outgrown it. Thanks

[Stanley18]

Hi

I received a pacemaker in 2018 after several heart pauses.

I have no experience of the device being turned off. I am, however, a member of a wonderful Pacemaker UK Facebook group. A quick search has unearthed a few posts that are relevant to your son’s situation, including one from the parent of a child with a pacemaker (there was mention not of turning the device off completely, but switching it to “backup” mode).

Please head over to Facebook if you’re not already a member of the group. You will receive a warm welcome and lots of support.

[Sinuspause in reply to Stanley18]

Thank I will go and have a look at that page.