Tricuspid valve dysplasia

[kazbell]

Tricuspid valve dysplasia

My unborn granddaughter has tricuspid valve dysplasia. Anyone have experience or information on this please? Thank you

[MichaelJH Heart Star]

Hello and welcome to the forum!

I am afraid I have no personal knowledge of this condition but would suggest you ring the BHF nurses on 0300 330 3311. They are open weekdays 9am - 5pm.

[kazbell in reply to MichaelJH]

Thank you 😊

[Cat04]

There is a member on here with tricuspid atresia - not sure if that is the same thing?

[kazbell in reply to Cat04]

I'm not sure to be honest.

[Cat04 in reply to kazbell]

Maybe she'll pick up your post x

[Qualipop]

How worrying in a baby not yet born. I understand your worry. I hope the nurses can help.

[Exie8]

I hope that paediatricians are involved and they are the best source of advice.

[Milkfairy Heart Star]

Hello,

I am sorry to hear that your unborn grandchild has a heart problem.

A worry for you all.

Antenatal screening now means that babies with structural heart problems can be more often detected before birth. This has improved the care that these babies now receive.

There are a few support groups for parents whose children have heart problems.

I suggest you get in contact with them.

tinytickers.org/

chfed.org.uk/how-we-help/