Attending an adult congenital heart s... - British Heart Fou...

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Attending an adult congenital heart surgery care workshop

Nic25 profile image
9 Replies

Hey everyone. I hope you're all looking after yourselves. I haven't posted here for a while - evidence that my post-AVR life is going well I'm pleased to say.

This is just a short post to say I've been asked by Guy's and St Thomas's (the hospital where I had my AVR in 2018) to take part in a virtual research workshop next week on adult congenital heart surgery care. I was very pleased to be able to say yes and so hopefully offer at least something useful back after the excellent care I had there.

Having said that, no idea what's going to happen, what it'll be like or lead to or how useful or not it'll be. But if anything comes out of that seems of use here I'll feed back. Just thought people might like to know.

Stay safe. Nic x

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Nic25
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9 Replies

Good luck and well done! Research is so important.

Nic25 profile image
Nic25 in reply to

Well in a way it's just yet another Teams call to add to the normal working day! But hopefully it'll be interesting and I won't make a complete idiot of myself! Hope you're keeping well btw? Nic x

in reply to Nic25

Hi Nic

I’ll be waiting for your interesting data!

I am thanks until today’s little episode. Maybe you could read my story and see what you think. Would love your input.

Regards

Maisie

Nic25 profile image
Nic25 in reply to

Afraid I can offer absolutely no 'input' Maisie, just sympathy. That seems totally odd! Almost a sort of temporary delirium? But at least it was only temporary I suppose, not that that is a very useful observation I appreciate. Rest up, take it easy and let's hope the blood test offers an answer. Nic x

Nic25 profile image
Nic25 in reply to

Except just saw your earlier post, so evidently not! All sounds very weird. Hope they get to the bottom of things for you. Take care and take it easy. Nic x

francesw47 profile image
francesw47

Good to hear how well you are doing.Taking part in research always a worthwhile 'thing' and glad you have the chance to help out. Even if nothing much of interest, do let us know what happened.I've taken part in several projects - both prompted by the inclusion of my name on surgical waiting lists - and on both occasions I met the researchers post surgery - they kindly came up to say hello! One project was particularly interesting - involved iron transfusions (double blinded RCT so no idea whether iron or placebo) as I was slightly anaemic prior to surgery.

Enjoy!

10gingercats profile image
10gingercats

I would be very interested to know the outcome of any discussion about tricuspid valve replace and the dangers of having this done surgery for people in their 80's.The team at The John Radcliffe Hospital in Oxford where I attend for this and Afib are wary of doing this.In part they appear to lack experience full stop plus not for the older age group. It could only be minimalistic surgery should this go ahead and even then it could all go pear shaped .They do not want to have to go for open heart surgery whils operating should they hit trouble.

Bishop1 profile image
Bishop1

Good luck with the workshop. We'll be waiting to hear how things are for you. Take care x x

Alisbabas profile image
Alisbabas

Hi Nic,

Good luck. Keep us posted

Ali

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