Hi everyone just thought I would give u an update. I’v been back hospital with my Afib. I’m back home and I’v Cardioverted myself. I’m feeling really rough I’m holding onto a lot of fluid in my abdomen. I feel constantly nauseous and have no appetite. I need to ring my cardiologist when I go back into Afib. Also I had a shower yesterday and nearly blacked out. I frightened my poor mum half to death. I was unresponsive and had no idea what was going on. I’v decided not to have anymore Cardioversions. My cardiologist is on my side with my decision as I’ve had 11 all together and my poor heart is giving up. It wasn’t all meant to happen this fast but there was always a chance. Covid is really not helping as everything is put on hold. Sorry for for the offload
Been back in hospital : Hi everyone... - British Heart Fou...
Been back in hospital
Oh Tory you are not having much look in 2021 so far, your parents are being great supporting you at this time. Please take care and keep safe. sending love to you and your parents. xxxxx Ruth
Thank you Ruth. My parents are amazing. Unfortunately I will be like this this till I get a new heart now. So it’s going to be one hell of long and rough road xxxx
You are amazing.
If anyone is entitled to a wee vent now and again, surely it is you. I'm so sorry to hear things are going a bit rough for you the now, I'm just so glad you're not alone thanks to the super support your parents are giving you, and that the cardiologist respects your decision not to put yourself through another cardioversion.
Too right - there is always a chance and we're all here hoping yours comes up sooner rather than later.
You are entitled to vent xxxx Hope you get some good days and feel better soon xxx. You never know, that heart may be just around the corner xxx
Oh Tori Sorry to read your going through such an awful time at the moment. Glad to read your cardiologist is being so supportive, you are an amazing young woman so brave.
Take care
Pauline
Sorry to hear you have been in hospital again, it is hard to go through what you are having to deal with. I hope the reduction in Covid cases means hospitals will soon be getting on with other things again and that you will get what you need soon. Helen xx
Sorry to hear you’re having a rough time. We all need to vent at times and it feels good to get it out. Stay strong and positive. We’re all wishing you well and a speedy resolution. Take care.
That’s lovely Jo thank you. My team are doing are doing a fantastic job looking after me. I can call the cardiology department anytime xxxx
Hello Tori. I keep saying this but you really are an inspiration! Just feel so helpless at this end and want you to recover quickly. Keep smiling (and venting!). Love and virtual hugs coming your way for you and your mum and dad. xxxx
Hi Tori,so sorry to hear that you are having a tough time again. Please hang in there. You have people thinking about you and I will say a prayer for you and ask for angels to be around you. Good that you have such a good cardiology team looking after you and your parents of course. Focus on the good things you have. You are an inspiration to us all.
PS: Hope the fish have settled in well.
I’m so sorry to hear that. Offload all you like here. It’s the very least we can do is listen and try to support you.
I cannot image what you’re going through.
Keep strong and hoping you get positive news soon.
I’m glad your Cardiologist is so supportive too.
Sending love ❤️
You sound so brave. I don't suspect you really are. must be on your mind at all times.. please please tàke thing's slowly thinking of you xxx
Everyone has said what I would have said. You have had such a tough time dear. I so so hope a new heart comes along xxx
I was rather hoping for a report on the fish 
are they happy ?
sending you lots of virtual hugs and positive thoughts xxxx
I'm sorry to hear about your health. I pray you get better soon.
Hello Tori,Im sorry to hear about your health, i pray to God for your wellbeing and health. Im usually really stuck with words when i hear something like this.
Just be strong, you have beautiful parents who supports you all the way. Also your cardiologist is very supportive and on your side.
And you have all our support on this wonderful site, you have wonderful supportive who will give you words of encouragement- this will help others like myself to have confidence . I am on journey, we all are. Be strong and confident.
You take care and all the love and support from me.
Thank you
Sami
Hi Tori
I'm so sorry you are having to go through this, especially at this time. I am thinking of you and make every wish that things improve for you. X
So sorry to hear that you are feeling so poorly. Sending lots of love xx
Hi Tori
I can not add much to the amazing words support from everyone else.
Just to say take care and you are in my thoughts.
Hi Tori
What a time you are having .
Hoping your feeling a bit better now .
Thinking of you you are so brave . Keep strong my love Hopi g and praying youget your new heart very soon xx
Oh buddy2blue l am so sorry to hear your having such a rotten time with your health l hope and pray you can soon get your new heart and start to have better times sometimes l dont know why but we have to go through bad times to come out the other side all good and l truly believe that will happen to you so take care stay safe keep your chin up your a remarkable young lady X
Everyone has said what I would say!! Stay strong girl, we are all wishing you the best. Have you heard anything from Newcastle yet, can you give them a boot up the backside 🤣. Hope your fish are bringing you smiles 😊😊😊. Love & hugs xx
It's all been said ❤ you are amazingly brave and it puts what I am feeling like into perspective. Looks like you have lots of people behind you. Keep your chin up and hope for a new heart in the very near future. ❤
Sorry to hear that buddy2blue. So pleased to hear that you have loving and supportive parents, though I appreciate it must be tough for them too. You are truly amazing and they must be so proud of you 💖Like you say, the dreaded covid isn't helping matters. Stay strong and positive and we hope that that heart with name on it will be with you soon. Much love ❤️💖❤️
Hang on in there! xx
I just want to wish you all the best. From your post coped with so much, but still appreciate those giving you support. Loving thought to you and your family.
Can I just add my words of support to all the others above. I can't imagine what you are going through. All the best.
Sending a hug, best wishes and keeping fingers crossed for you. Jane
It is good you have so many people that love and care about you. You make us all pale into insignificance - you amazing, brave and wonderful person. You will be in my prayers asking for your healing. I send you all the best wishes in the world for you to soon get better. God Bless you and keep you safe.xxxxxx
I’m so very sorry you’re having such a tough time my dear friend. You are the bravest person I have ever known xxx I pray for better health for you and a healthy heart very soon. You so deserve it. God Bless you & keep you safe🙏🙏🙏 Sending all my love & heartfelt thoughts❤️❤️❤️xxxxx
You need an offload, no need to apologise, that's one of the things we are all here for, and thank goodness you have such brilliant parents. I always thought there was a limit to how many cardioversions you can have and it sounds as if you've reached that and your cardiologist does listen to you and agrees, and I'm sure he is pushing for you as much as he can. Obviously, apart from your family everyone here (extended family) too is hoping so much that you'll have good news about surgery soon. You are an amazing inspiration to other people, no doubt at a considerable cost to yourself keeping positive, and it would be good to think that you can draw on our love and good wishes to help you along this hard journey
There is a limit on the amount of cardioversions I can have. And I’m very close to it now. They only do one now if an emergency situation. Hopefully that won’t happen but at least 1-2 left in the bag. My cardiologist is really good xxx
Good morning Tori, sorry to hear you have had another relapse. Hang on in there, you are one of the bravest people I know.
How about telling an old bugger what a cardioversion is 🤔🙆♂️🤣🤣 xx
It’s where they stop your heart and then shock it back into a normal rhythm xxx
Gosh, I understand why you don't want too many of them!!!
Hi, presumably you are saying that you did a self cardioversion with medication ? I think you need to be investigated more thoroughly, as you possibly need an electric shock to correct it followed by appropriate medication. You may need an ablation as well. I had a very successful ablation but had to contiue with 60mg Tildiem twice a day. Whilst i was waiting for the ablstion I kept going into AFib so was given 90mg Tildiem three times a day which proved too much and a recorded 208 bpm I dropped to 45 bpm and on a couple of occasions as low as 35 bpm, I really felt ill, it was reduced to 90mg twice a day and that controlled things until the ablation. I have had virtually no problems since, I wish you an end to your problems, good luck.
I bet Tori wished it was that easy !!!
Vaccinated Hands Face Space to Stay Safe
Yes I do wish it was that easy Prada lol xxx
I can’t have an ablation my team have done all they can now. I need a new heart
I am very sad to hear that. I couldn't read all the posts due to lack of time so may have picked that up. Due to my AF and very fast heartbeat I have had many strokes in the brain, they don't affect you very much but have a cumalative effect. I wish you the very best and hope your doctors can give you what you need ASAP. God bless.
Thank you. It’s going to a long road but I will get there. I hope your ok
Thanks for your sentiment s, I am not OK as I have several co-morbidities but in comparison to many of my fellow travellers I am in pretty good nick ! If you stay positive I am sure your courage will see you through, keep safe.
Think of you and the difficult time you are having. Hopefully, at the very least, your repeated hospital visits and treatment needs are helping to speed your progress, through the NHS, to your new heart. You are part of so many people's lives here on the forum. You are amazing.
Back in hospital 
