I survived COVID - barely: My husband... - British Heart Fou...

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I survived COVID - barely

Tobias10 profile image
9 Replies

My husband was not feeling well mid-December and two days later I started with his same symptoms - headache, upset stomach, fatigue. We both thought possibly we had picked up a bug from eating out and that it would run it's course. On 12/19 my PCP told me to go to the local ER to get a rapid COVID test. After 4.5 hours in the ER with blood work and a chest x-ray the ER physician told me that I had CHF and I should go home and call my PCP two days later on Monday for follow-up - this made no sense and the nurse practitioner in the ER went over my blood work and said she did not concur with the ER physician's diagnosis. At that time my chest x-ray showed "acute pneumonia" but no one ever mentioned this to me. On 12/24 I called my PCP's office and said I was still not feeling well - I had not gotten dressed for a week and had basically stopped eating because nothing tasted good - my husband was also experiencing loss of taste but we just did not correlate it with COVID for some reason. The PCP ordered me some anti-nausea meds and then told me that my COVID test from 12/19 had come back positive. On 12/25 I was dysfunctional - my kids said I could not walk down the hall straight and I was not forming words correctly. They called an ambulance and I was admitted into the hospital with "acute covid pneumonia". I was asked for permission to put me onto a ventilator if needed and that is the last I remember for at least 3 days. I was put on remdesivir and 80 liters of heated oxygen for several days and the lung specialists told me the next week that they had not expected me to survive. I finally was able to come home after 18 days and am now considered to be "COVID Recovered". Had the ER staff picked up on the possibility that I might have COVID on 12/19 it is very likely that I would not have gotten so close to death that my husband had to ask my girls what funeral arrangements they wanted in case I did not survive. Fortunately, I was not aware just how sick I was until a week later when I was shown my chest x-rays and my lungs were almost completed whited out due to viral pneumonia. I have written to the health care provider for the first hospital I went to so that I can discuss how mismanaged I was on 12/19 but have gotten no response after 10 days - in addition, that same hospital never notified me that my COVID test was positive.

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9 Replies
Rose54 profile image
Rose54

I am totally lost for wordsMakes you wonder how many others have had problems with treatment

wishing you both a speedy recovery

Stay safe

Milkfairy profile image
MilkfairyHeart Star

Tobias10

I am sorry to hear you have had such an ordeal. I wish you speedy recovery.

Are you based in the UK?

Tobias10 profile image
Tobias10 in reply toMilkfairy

No, I am in the US and have access to some of the best physicians around but they still did not get it right. Fortunately when I went to the ER the second time they did not have an ICU bed so they transferred me to a sister hospital where I received outstanding care. They are the reason I am alive today.

Milkfairy profile image
MilkfairyHeart Star in reply toTobias10

The US has been hard hit by Covid too.I hope you continue to make a full recovery from Covid.

Do you live with an underlying heart condition too?

Milkfairy profile image
MilkfairyHeart Star

Did you raise your concerns with the Patient Advisory Liaison Service PALS ?

Milkfairy profile image
MilkfairyHeart Star

I have raised issues about my care on several occasions.I received formal written apologies from the Trust and the Cardiologists involved.

Perhaps if you feel the hospital's PALS service is inadequate you could contact the Parliamentary Health Service Ombudsman, your local Healthwatch or Patients' Association?

Milkfairy profile image
MilkfairyHeart Star

What I find inspirational are the individuals who despite many obstacles bring about change.James Titcombe for one.

avma.org.uk/resources-for-p...

Qualipop profile image
Qualipop

Not true. I have had very good results when using PALS and full answers to everything I have raised

Qualipop profile image
Qualipop

Absolutely not meant to be rude; just fact- our PALS is excellent

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