phone consult: hi guys a few of you... - British Heart Fou...

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phone consult

Shoshov profile image
16 Replies

hi guys a few of you asked if i post how it went with phone consult today. for those who don’t know i’m very symptomatic to most cardiac meds(so far). forever the optimist. i have to say it went very well and it was my cardiologist himself. upshot is he’s changing me from isosorbide to diliatazmin. really don’t know how you spell it sorry. isosorbide was giving me too much problems including the usual one of dropping my bp to much causing dizziness and fainting. my thallium test i had in february showed slight reduction in blood flow which could be the cause of recent breathlessness. apparently this drug will help with this and reduce my heart rate a bit which has started to climb slightly recently. the hope is that it won’t drop too much. can anyone give any input on said drug. at least he’s willing to work with me to find something to keep me upright. hope this makes sense. i don’t seem to be able to write short posts. sorree 🤣❤️shiona

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Shoshov profile image
Shoshov
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16 Replies

Hope it sorts you out Shiona, I know a few people on here take it and have good results with it.

Shoshov profile image
Shoshov in reply to

fingers crossed james❤️

Lezzers profile image
Lezzers

Can't help with the meds, but really hope it works for you x

Shoshov profile image
Shoshov in reply toLezzers

morning. hope you and kevin are well. it went better than i expected lesley. i’m usually quite stuttery on the phone and can explain things better to a face but i think because it was my own doc i was fine❤️

Lezzers profile image
Lezzers in reply toShoshov

Glad it went well for you, it is easier when you know the person you're talking to.

Oncologist has told us they can't operate on Kevin due to his heart and quite possibly won't be able to do radiotherapy for the same reason, so they're contacting his cardiologist to talk it through. Very difficult discussing this on the phone when I have hearing problems. English wasn't the oncologists first language so we had difficulties with her accent.

So, we raised the question as to how the cardiologist is going to assess Kevin for radiotherapy via a phone call, as he's not gonna be able to listen to his heart, take blood pressure etc!! The cardiologist appt has now been changed to a face to face!

SpiritoftheFloyd profile image
SpiritoftheFloyd

Glad it went well today. I love the way you describe it:- "he’s willing to work with me to find something to keep me upright. "

Shoshov profile image
Shoshov in reply toSpiritoftheFloyd

🤣i’m just so used to getting told “it’ll drop your bp. we can’t give you it”. this one is trying small doses of different things ❤️

Milkfairy profile image
MilkfairyHeart Star

Really good to hear your appointment went well.

Always good to be kept upright😉

I have been on high doses of Diltiaziem for many years.

I am lucky no swollen ankles which is a common side effect along with constipation.

I hope it works for you.

Shoshov profile image
Shoshov in reply toMilkfairy

it really is🤣. horizontal living has its limitations. don’t know if i fancy the side effects though. i’m only starting on a small doze so hopefully won’t be too bad❤️

dunestar profile image
dunestar

Hope it works out for you Shiona.

Shoshov profile image
Shoshov in reply todunestar

thank you❤️

Shoshov profile image
Shoshov

oh poor kevin. really sorry to hear this. i know nhs is under pressure but common sense has to prevail. i hope you get your appointment soon honey and you get some answers. you’d think he was suffering from a runny nose or something! did your heels in and insist on what you need. for BOTH of you. love and hugs❤️

Lezzers profile image
Lezzers in reply toShoshov

We've got the cardiologist appt, Friday the 13th! 🙄

Shoshov profile image
Shoshov

Ahhhh 🤣be the scouts. be prepared. good luck❤️

Handel profile image
Handel

Hope everything goes well and you do stay upright!!! ❤️❤️

Shoshov profile image
Shoshov in reply toHandel

thanks. i’ll try🤣

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