Lipoprotien a: Just found out I've got... - British Heart Fou...

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Lipoprotien a

Fionalane profile image
5 Replies

Just found out I've got inherited lipoprotein a, bad cholesterol. I also have chronic kidney disease stage 3 and had half my thyroid removed 3 years ago, now on 100mcg Thyroxine daily. Doctors want me to take high dose Atorvastatin, I'm worried as since my hypothyroidism i have high Creatine Kinase levels. Will statins help? I am 60 and never smoked, or drank and I am usually active( I teach exercise). Any advise welcome, especially if you also have Lipoprotein a.

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Fionalane profile image
Fionalane
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Superdar profile image
Superdar

My lipoprotein a is 240.......On 80 mg atorvostatin....HDL 100.....ldl 54.....1 stent at 49......three way bypass at 59.... 2 more stents at 60 .... carotid artery cleaned out too....30 is normal lipo . Anything else is elevated......the higher the worse.....have seen 500 In some. Does atorvostatin work.....God only knows.......anti sense clinical trials starting now.......check it out on line.... lipoprotein a foundation. Good luck👍

Fionalane profile image
Fionalane in reply to Superdar

Thank you. Sadly my Lipoprotein a is 733!

sandybrown profile image
sandybrown in reply to Fionalane

Hello,

You may find some in formation here in the link below:

heartuk.org.uk/downloads/fa...

When you say 733 what is the unit of measurement for "Lipoprotein a"

Did you get the test done with NHS?

What about your cholesterol and other lipid levels?

Do not stress yourself, take in easy.

Fionalane profile image
Fionalane in reply to sandybrown

Yes a NHS blood test, they said double the mmax of the range. My triglycerides are way too high too, low hdl, high ldl. I exercise everyday, averaging over 12 miles a day on my bike and lots of hills!.

JennyRx profile image
JennyRx

I have elevated lp(a). Which is believed to be responsible for my atherosclerosis and my recent CTO. Any close relative has to be tested too. There is no treatment currently except to lower LDL below 2. This seems to prevent lp(a) from going around sticking LDL to the walls of vessels at its simplest explanation. Ironically high lp(a) has some inverse correlation to T2D. Sadly not in my case. My lipidologist thinks I might have a form of metabolic syndrome. On low carb diet and have got my HBA1C down 3 points but not quite back to normal. I’m on Letrozole for breast cancer which can skew the entire hormonal and endocrine systems.

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