I have Pulmonary hypertension does anyone else have this, I would like to hear from you

[shwills]

Hello

I have been on this site for quite a few months now I have Heart Failure Nurses I have a pacemaker permanent AF and two leaking valves. I have posted a few times about Heart Failure, pacemaker etc. Recently I received a letter from one of my consultants at Barts Hospital following a scan I had and it states in the letter that I have moderate pulmonary hypertension I have read up about this but don’t know anybody else who has it, it would be really good to hear from anybody else how they manage how they cope dietary tips, I have read that it is good to keep your iron levels up eat red meat dark green vegetables, I don’t eat red meat very often, I do eat lots of vegetables, so wondering if anybody with PH can give me some tips, I do get breathless a lot but I have good days and bad days and have problems bending down that’s the worst and walking upstairs or on an incline. any tips and ideas would be lovely thank you

[vinixxx]

This can be helpful:

phassociation.org/

[shwills]

Hello Jo

Thank you Your reply was really detailed and very helpful, I also have had ablations, four of them for my AF but they weren’t successful. I have a three lead pacemake, as for the heart valves I’m not sure what they’re going to do with them, I also have a couple of holes in my heart caused by the ablations one is largish and I think they may repair it. My AF is permanent but the rate is better with targeted beta-blockers but the rhythm is constantly out. I did not know I had PH until I read the letter in detail it was a four page letter I’ve had many echoes and I guess they’ve measured it by that I also had a scan a stress scan just before Christmas perfusion scan I think it’s called, where they test your heart normal and under stres. No one has mentioned the pH to me other than My Heart Failure Nurses I take diuretics every day as I have a cough a lot of fluid comes up, she said the breathlessness would be caused by my multiple heart problems and the pH.

I have read a bit on PH .Org. I guess my heart consultants treat it as all one. I don’t think the hospital will do any more tests the perfusion scan was complex and showed all.

I have had my appointments cancelled in April which I am very pleased about, I don’t intend going anywhere near a hospital with the virus about.

The breathing I believe is due to multiple heart problems and PH

I do keep a good weight, eat real healthy . Exercise not that great at it, what do you do for exercises ?

Thank you again it’s so helpful to be able to talk to someone else

[shwills]

Hello Jo

I have just looked on the PH website and they say the government are now including Pulmonary hypertension in the extreme risk group, however it does not say if you have to be under a PH Centre so as I am not I don’t know. Like you I am under Heart hospital only.

I have contacted them on their enquiry forms about this but don’t know if will answer