ASD, hole in the heart. : Hi all, I’m... - British Heart Fou...

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ASD, hole in the heart.

Scho1 profile image
11 Replies

Hi all, I’m 60 yrs old have suffered pericarditis since 2006 but during a CT angiogram performed three weeks ago the cardiologist found a 10x14mm (moderate sized) hole in my heart. I’ve always had a heart murmur from birth which they say is clearly linked to the hole.

Has anyone on here ever been diagnosed with this and was it repaired?

thank you in advance for any replies.

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Scho1 profile image
Scho1
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11 Replies
10gingercats profile image
10gingercats

Yes. I was found to have a hole in the heart at 70.Then a TIA followed so Cardio surgeons quickly closed it. One day in hospital and out the same day.Up and about the next day.Nobody picked it up and life had been very full.AFstruck and this alerted cardio. to the hole.They enter through the groin and slip up a device that they guide through the hole to close it on both sides.A few hours rest and then it is finished.I am now 86 and so far in pretty good shape and very active.

Scho1 profile image
Scho1 in reply to10gingercats

Thank you so much for your reply. I’m hoping they will offer to patch it as Ive currently got symptoms from it such as breathlessness and terrible fatigue. Until last year I’d had no symptoms .

10gingercats profile image
10gingercats

By the way. Closure is not always offered but I saw it as a positive step . A hole in the heart,I was told, can prompt strokes so why refuse the procedure which is simple and very low risk?

sandandkev profile image
sandandkev

I was diagnosed with hole in heart last year,I'm 67,it was a shock as never had a murmur which makes mine a large hole,they aren't going to fix as am ok

Scho1 profile image
Scho1 in reply tosandandkev

Thank you. I’m hoping they will patch mine. No issues until last year.

Silvertail profile image
Silvertail

I have a PFO and atrial aneurysm but they are not going to close it.

Scho1 profile image
Scho1 in reply toSilvertail

Does it cause you symptoms? Why aren’t they closing it?

Silvertail profile image
Silvertail in reply toScho1

First, rightly or wrongly, my cardiologist said he wouldn't put metal in his heart and he wasn't going to put it in mine unless I wanted to take part in scuba diving. Re symptoms - For years, before takotsubo episodes appeared in my life I used to get SOB and chest pains when walking up any inclines which has been put down to microvascular dysfunction. I also used to get symptoms like a TIA but never saw a doctor about them because they would disappear after a few hours. I don't get the TIA symptoms since I've been on my heart meds. Any cardiologist I've seen in the last couple of years hasn't mentioned it.

Scho1 profile image
Scho1 in reply toSilvertail

Thank you for your reply. I’ve only just started having symptoms though I’ve had a heart murmur and clearly the hole since birth. As I’ve no other coronary disease and calcium score of nil I’m hoping they will patch mine. Time will tell I guess.

Silvertail profile image
Silvertail in reply toScho1

Good luck with it. Hope you have it closed.

Scho1 profile image
Scho1 in reply toSilvertail

Thank you. Take care

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