Inverted T Wave: Hello has anyone had... - British Heart Fou...

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Inverted T Wave

Feralberyl1 profile image
19 Replies

Hello has anyone had an inverted t wave? I have had echo, heart scan and another heart scan just to check, a belts and braces approach, anyway I have now thankfully been discharged from cardiology but told I have had a previous infection that has given me some minor changes to my heart. I have been told to carry a copy of my ecg with me just to show that I have an inverted t wave. Just wondering if anyone else has to do this

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Feralberyl1
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19 Replies
Heartandy profile image
Heartandy

I’ve had an inverted T wave previously. It’s one of the symptoms of myocarditis (heart inflammation caused by infection) which I’ve had a couple of times.

Feralberyl1 profile image
Feralberyl1 in reply toHeartandy

Hi yes the cardiologist mentioned myocarditis. Did y get discharged and did y t wave correct itself at all? Could it b a bad flu virus that can cause this? Hope y well and thankyou Jolie x

Heartandy profile image
Heartandy in reply toFeralberyl1

I’ve been hospitalised with myocarditis twice. Normally it’s caused by a viral infection and normally resolves itself particularly if heart function is okay (sounds like yours is - as was mine). Many common viruses including flu can cause it. The second time (early August) my T wave inverted but a few weeks later had mostly resolved itself. ECG showed some residual t wave inversion on the limb leads but not on the main cardiac leads. Because I’ve had repeat events the cardiologist thinks there is also an auto immune issue which I’m currently being tested for. My myocarditis was diagnosed with MRI. Have you had an MRI?

Ruth8 profile image
Ruth8

I have inverted T waves, they become more prenounced when I have chest pain.

Always carry your ecg or paramedics tend to panic. Mine is damage from underlying heart problems too!

Feralberyl1 profile image
Feralberyl1 in reply toRuth8

Hiya Ruth thankyou, they say I have minor changes due to a previous inf myocarditis, hope y well x

Cricket23 profile image
Cricket23

I have these caused by hypertrophic cardiomyopathy, which is the result of a hereditary heart defect. This was stable for the many years, but has deteriorated recently to the point where I now have a pacemaker & ICD fitted.

Feralberyl1 profile image
Feralberyl1 in reply toCricket23

Hiya I didn’t realise the common cold or flu could cause myocarditis, I must remember to carry a copy of my ecg, thankyou hope y well x

Milkfairy profile image
MilkfairyHeart Star

Hi Feralberyl1

I also have permanent altered T waves on my ECG due to my heart condition too.

I have vasospastic angina and my recent MRI showed that I have had myocarditis in the past.

I always carry a copy of my ECG's with me too.

It helps the staff see further ECG changes when I have chest pain.

Feralberyl1 profile image
Feralberyl1 in reply toMilkfairy

Hiya thankyou I was thinking of having a bracelet I might not b good at always carrying my ecg with me, thankyou hope y well x

Milkfairy profile image
MilkfairyHeart Star in reply toFeralberyl1

I wish you well too.

I take a picture of my ECGs and put them on my phone.

Last time I was in hospital the On call Cardiologist loved it!

Sunnie2day profile image
Sunnie2day

I don't have the inverted T-waves, I have other 'hidden' conditions that can confuse First Responders.

Rather than carry around test results (which can be a bit bulky and once in a car wreck my handbag went flying in a different direction, wasn't found for weeks) I wear a MedicAlert bracelet with my 'top-two' conditions engraved on the disc per GP and cardiologist recommendation.

I'm so much more confident wearing that piece of jewellery! It not only lists the conditions First Responders should know about quickly, it has a telephone number (manned 24/7/365) and my membership number - access to vital medical and next-of-kin information immediately available to paramedics, A&E (or ER if abroad) staff and any consultants required in an emergency situation. Even if I'm unconscious/delirious/separated from wallet/handbag/rucksack, owing to the bracelet, all First Responders can render aid so much more efficiently.

Milkfairy profile image
MilkfairyHeart Star in reply toSunnie2day

I have thought about having a bracelet .

I have my Admission plan ( which I also carry with me at all times) on the electronic records system of my local hospital which is the heart attack centre.

You can also have your care plans on 'Coordinate my care ' and this gives access to paramedics and other healthcare professionals to a patient's care plans.

coordinatemycare.co.uk/

Sunnie2day profile image
Sunnie2day in reply toMilkfairy

We need that up here! Sadly it can be a bit 'hit and miss' (NE Scotland, not saying anything against NHS Scotland as the service, all things considered, is great) so the GP and cardiologist both urged me to go for the bracelet.

bee2 profile image
bee2 in reply toSunnie2day

I'm in Scotland and never had a problem in A&E. As soon as they access my files they have my info even down to allergies.

Sunnie2day profile image
Sunnie2day in reply tobee2

Absolutely - once they access your files they have all the info they need.

My concern (and the concern of the GP and cardiologist) is primarily for the time from onset of emergency to arrival to A&E. Thanks to the bracelet the responders can take decisions on-the-spot even if I'm unable to speak or gesture. Bonus: my membership number is linked to my CHI (NHS Scotland number) so my complete records can be 'up and ready' on arrival to A&E - no waiting

Feralberyl1 profile image
Feralberyl1 in reply toSunnie2day

That sounds a good idea

Sunnie2day profile image
Sunnie2day in reply toFeralberyl1

I love mine, it's gone a very far way towards restoring my confidence. I was afraid (and I'm not embarrassed to admit it) to leave my front garden for a while there for fear of collapsing on the pavements. Now I know I'll get swift proper care if I do collapse, I'm out there twice a day for exercise plus the quick nip to the shops if I need something.

Alison_L profile image
Alison_L

Hi FeralBeryl. I have permanently inverted t-waves following a heart attack last year, but don't have to do anything specifically for that, and when I've been in an ambulance since then, the paramedics have been more interested than worried.

Feralberyl1 profile image
Feralberyl1 in reply toAlison_L

Hiya Alison thankyou for y reply, apparently I have had previous infection and have minor changes myocarditis, I did not realise the common cold and flu could affect y heart, hope y keeping well x

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