I've seen some discussions on here regarding the pros and cons of statins, Mediterranean diet, going vegan etc. Think I need to learn more before I can make any decision.
However, as a starting point, is there general agreement that having a low total cholesterol level is good for preventing a heart attack and remaining healthy?
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A low cholesterol level is not a guaranteed way to avoid heart problems. My levels have been low for many years ( with the help of Simvastatin) but I have still got HF. However, a low cholesterol level is a lot better than a high one, so if yours is high then statins are a good way to control it. Your doctor will advise which of the many types of statin would suit best. The way I look at it is statins give you much better odds of avoiding some cardiovascular problems but, of course, nothing is certain in life!
British Heart Foundation give all the up to date info on cholesterol levels and how to keep those levels at a healthy level in their free email course and also on their website. Hope this helps.
Hi, had a HA in 2015 and prior to that had high cholesterol so I’m sure it was a contributory factor, among others. Now follow a very low fat vegan diet which has enabled me to quarter my statin dose! Have been to many heart conferences and without fail have heard numerous eminent experts say statins are effective and safe drugs which can., in addition to cholesterol lowering, prevent arterial plaques from rupturing and causing heart attacks. So for me taking a statin and having a low fat vegan diet gives me confidence.
I think the data shows that of all the people who have heart attacks, more than half have normal levels of cholesterol. Your body needs and makes cholesterol, especially the brain. I wonder why station use and dementia has increased dramatically . SC is right it's the insulin that is the problem.
It may depend on your age. There is evidence that, in the elderly, the higher your level of "bad" LDL, the longer you live. bmjopen.bmj.com/content/6/6...
I am not medically trained, but I'd like to point you to a thread at healthunlocked.com/bhf/post... which will take you to an article about questions on statins at
Norman Lamb has had side effects from statins and is raising their efficacy as an issue.
My own experience:-
Statins do seem to stabilise plaque from the reading I have made so far. But why has the original research data on the efficacy of statins been withheld from general scrutiny?
The body needs LDL and HDL - without them, we die, but what is the 'correct' level?
Talking to friends at rehab classes, phase4, some have had side effects, just as I have. I have stopped taking statins for a trial period, which I agreed with my doctor. Also, why does my doctor say that he has had similar conversations to the one he has had with me many times?
I also know a retired pharmacist who was told to take statins and this was totally refused?
I could go on, but I don't believe that would help you as the decision about drugs you take must be for you and your medical advisors.
I would like to suggest that taking/not taking statins is a decision that can be revisited.
You might like to read up on the subject as many have done (whilst taking statins) and make your own mind up.
A thought (or two)- I am wary of taking drugs for life because there can be cumulative effects. Also, as I now count as elderly, there are so many life threatening issues, it can be next to impossible to really understand cause and effect.
I take drugs to prolong my life, but where statins are concerned, this fundamental point seems to sometimes get lost.
I hope that the investigation into peer reviewing of statins doesn't take long. For pharmaceutical companies to do the research is fine but we have no idea of what the raw data actually showed. It will be very interesting but I bet there will still be those that refuse to believe any outcome and blindly follow current guidelines - that's entirely up to them. I halved my statins due to muscle pain and feel much better for that as I can exercise properly now.
It has already been clear that some people i.e. mostly "elderly "people, who never needed the drug were prescribed unnecessarily.
Statin as anti-inflammatory. If it was, why would that cause muscle pain, a contradictory side effect in some men/women? OK, "it is anti-inflammatory, but you'll get other issues in return".
Statin is probably a lifesaver for a certain group of people, who "Need" it.
But it should not be "Mass Prescribed" with financial incentives to GPs, who are already getting paid well.
Sadly, I doubt it will be quick; I also wonder how clear cut an answers/information will be. I suspect that we all need to do our own research and form our own opinion.
The answers almost certainly be based on the statistics of the outcome for all those taking any particular pill. Given that there are a number of different statins (different chemical formulas) in use, there could be variation just because of that fact.
We, too, are all very different in our response to drugs. The trial regimes don't seem, in general, to try to identify the difference in performance due to differences in all of us.
Am I being old fashioned to expect that consultants who have trained for over 10 years might have a better understanding of research and how valid any given study is?
That’s not to say I shouldn’t raise research items with her, but I do think they know more than me.
Which is how the younger generation are now encouraged to practice along with respecting the role of the expert patient.
Even the GMC's guide to good medical practice expects doctors to practice this way.
I always email my Cardiologist of 7 years before an appointment and include any recent research articles which he reads.
I take my list of questions which he frequently tries to pinch off me as he is so keen to look at them.
When I am in hospital at least once a year it is quite often the younger doctors who know more about my condition than the older more mature Consultants.
They may have taken time out to become research fellows to complete a PhD which involves them carrying out research themselves and being published. Their research is hot off the press.
I agree. It must be very difficult to keep up with the latest research but I would have hoped they would listen. My GP doesn't like me anymore as he was adamant it wasn't statins causing my muscle problems - I'm now satisfied it was.
The art of actively listening much undervalued I agree.
All care is offered it is not a compulsory. You need to able to have the opportunity to discuss it with an engaged doctor so you can truly make an informed choice.
A challenge with a 10 min appointment a bit like speed dating😂
I see that Milkfairy has given an answer, but I would like to expand on what he has written from a slightly different perspective. Sorry it's so long, but you make an excellent point which I feel deserves a serious answer; (this sentence added when I had finished typing).
Most importantly, the medical profession and those involved with the professionals, like consultants, have to follow accept medical practice and ideas although they have a degree of latitude. To do otherwise causes problems. We all post here on a BHF website and I am very grateful to be able to do that. I therefore have to take care not to abuse that privilege. I am only prepared to go so far in expressing my views. I am also conscious that I have no control over who reads any of my posts and the conclusions they draw and their subsequent actions. Therefore I must take care to do no harm.
But, consider the role of experts. In the late 19th century physicists believed they knew pretty well all there was to know and were wondering where their research could go. Everything looked as if it was wrapped up. Then, along came Einstein. All the ideas that were taught suddenly were shown to be incomplete, partially true; the experts were caught flat-footed.
Consider also the history of stomach ulcers. When I was young, ulcers needed an operation and it was thought they were caused by stress. But one man thought differently - that they were caused by a bacterium and he was right, the experts were wrong, totally wrong.
I have a researchy, non-medical background. I was taught to question pretty well everything (it makes me hell to live with sometimes, I'm sure). So, I continue to question even though I am retired.
At the start of my heart problems, I did what I was told by the doctors, but I also started reading. I now have questions about my treatment, that's all. Yes, the experts undoubtedly know more than I do and have a vast amount of experience, but that surely means that any queries I have should be answered easily by them. My queries, however, did not elicit the firm answers I expected.
Research needs transparency to work; everyone needs to be able to read ALL the relevant information and see all the associated data. And that is what worries me so much about statins - it apparently seems from what I have read that one of the pieces of work done in the past is not freely available to other experts. I have no way of knowing if this is true, but it worries me.
So that now leaves me glad that I could take statins when I first had problems and with the knowledge I currently have, I would do the same again. But, now about a year on, I am thinking about the rest of my life. Will I be taking statins for the next 20-30 years (being hopelessly optimistic) and could statin use over such a time scale cause me other health issues.
CAD may be controlled, but what effect does having low cholesterol for so long have on my body? My cholesterol went from about 6.4 down to less than 2 where it seemed to have settled. What I read made me think that, being over 70, I might be opening the door to other medical issues in a few years time.
And that is the question to which I have had no really convincing answer. It is a topic on which it seems there is research on-going. So what to do? Statins were giving me side effects that were getting worse. I had to choose. I chose to stop for a time in the firm knowledge that I could always go back on them should the need arise. Others might have acted differently.
Just a thought though, to end this rather long piece, it is me swallowing the pills, not the consultant.
It's your body and you are best placed to make decisions about your quality of life nobody else.
I wish researchers were compeled to produce plain English summaries of their research articles to help us meer mortals understand the research more fully.
I question it all too, very regularly. I wish I had the confidence to just take whatever pills I’ve been given. Unfortunately or maybe fortunately. . I don’t. I do hope it will become clearer soon for everyone as it’s such a worry.
Yes, I worry too about the decisions I have made. I also know it would be all too easy to flip-flop; taking pills / not taking pills as the mood takes me. I suspect that would be the worst of all worlds.
Now I am not taking statins, every twinge is sensed, memorized and effectively digested to the extent that I have a sort of emotional indigestion about the whole affair. At night, the doubts seem to breed, but somehow each morning I leave the atorvostatin on the medicine shelf, growing older and I am hoping they may reach their sell by date. But I still don't know if it is the right decision
There is some logic behind it. I re-read the articles, and the chapters in the books I have bought and then the referenced papers that I have been able to download. It helps, but it doesn't remove that nagging doubt, but it does keep me on m chosen path. I hope I will keep to it but that GTN spray is still there in my pocket waiting to be called up, like an Army reservist, called into action when things get desperate.
But there is also this website. I don't know what happens, but when I am here, reading or writing (it doesn't matter which), I feel calmer. It helps, it helps straighten out my thoughts writing this and reading about other people's experiences, thoughts and ideas.
I don't know if it helps you to know but my husband has been on statins for 15+ years & he has no side effects. He also has regular blood tests which show that he has no damage or issues with his liver.
I don’t think anything removes that nagging doubt, whether you’re taking the pills or letting them sit on the shelf untouched. I too choose to leave mine on the shelf. I’ve changed my lifestyle to get all my blood results optimal but of course we can never truly know how healthy we really are inside.
There are always shadows following us around once we have health issues. No one pill will destroy that shadow for me.
I am not comfortable sharing personal stuff here, if anyone says anything against the norm they get made fun of, ridiculed and even reported!! So I’d rather not.
I have discussed cholesterol with 2 of my surgeons and they both told me that changing my lifestyle is more effective than statins , as cholesterol ( by itself) isn’t the cause of our diseases. One said. .
Firefighters are at every fire, but they don’t cause them
I completely understand why you want to keep your personal stuff private, but pleased be assured I don't think there's anyone on this site who would ridicule or make fun of your medical condition. I think most people post their medical condition as they're looking for advice & support. If ever you feel you you would like to take advantage of that help & support then I am certain you would get that.
I would hope the forum is a safe place to share our experiences and support each other without judgement.
We all have different approaches to how to live well with the challenges we face. I am often blown away by the dignity, generosity, kindness and resilience of everyone who contributes to the forum.
However I am not sure how I would feel if an individual without the shared experience of living with or being a carer of some one with a heart condition decided to post their particular beliefs about heart disease.
I’ve seen too much judgement on here though! Too much “ ganging” up on folk who dare to express their opinion if it’s different. I’m sorry but it doesn’t feel safe to me.
I doubt anyone would have joined this forum if they weren’t as you say “ living with or caring for someone with a heart condition “ that would kind of strange, and I’m not sure why it would enter your head.
Me and my medical condition are one though and now trust has been completely lost. I’m a counsellor by trade, I never expected support but I didn’t expect the judgements I’ve seen either. Not all aimed at me, but that doesn’t make it acceptable.
Now it’s a lovely day so I’m going for my usual 2/3 mile walk. Enjoy the sunshine everyone 🔆
Henry, have you ever had or considered having counselling? Having a heart condition is very difficult to come to terms with & to accept. You are right the Dr's look after our hearts but don't take into account the effect it has on our minds & how vulnerable it makes us.
" Consider also the history of stomach ulcers. When I was young, ulcers needed an operation and it was thought they were caused by stress. But one man thought differently - that they were caused by a bacterium and he was right, the experts were wrong, totally wrong "
I've twice had a duodenal ulcer without having had H. Pylori. One time my doctor prescribed triple therapy just in case it had been missed. The cure actually gave me more problems than the actual ulcer.
My wife has had a long history of ulcers going back as far as 1961 that all have been caused by prescribed medications including an overnight stay in hospital this weekend. None of her several endoscopies found H. Pylori
Yes it does. I suspect that any other meds we are taking for extra ailments would also need to be taken into account.
I understand why we are prescribed medicine after a heart problem, what I find difficult is the next thing the patient does is to question the validity of this treatment in a forum and not directly with their doctor, especially when everyone is so different. If one cared to do their own research on Cholesterol and Statins their position would become clearer since there is a clear path between elevated levels of Cholesterol and artery blockage and that blockage going on to cause other devastating outcomes.
Yes diet is important however there is no quick fix since we are all different and I for one am not a fan of a Mediterranean diet. Surely the watchword is to eat sensibly and if you don't know how to, do your research and find a range of foods you like to eat.
Exercise is so emotive here, Some advocate the gymnasium, some running, some walking, some swimming but again the watchword is preferred choice. Do what you enjoy doing but don't think you have to kill yourself. A little exercise is also very good for you, if done regularly.
We all came to "our" heart condition through different paths, probably with a smattering of abuse (for ones health!) along the way. Our bodies are different, as is our weight, BMI, incentive and outlook on life. There are a "generalisation" of drugs given to treat heart matters, but some don't work, some work badly and some are extremely good.
Take your medicine, if you get side effects, talk to your doctor and/or your pharmacist and do some research or read the paper that comes with the drugs and see if there are any associated areas of concern, so that whoever you choose to see will see you have valid concerns.
Good luck and enjoy your new found health.
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You are basically saying, this is called, "Individuality".
"We all need to listen to what our body says."
Our body is far more intricate than "medicine" made out to look like.
Eventually, NHS will have to provide certain testing methods that are available abroad for a much closer analysis/evaluation that current ones fall flat.
Genetics, too. There's been a concept for personalised medicine: some commercial DNA testing has been available for years, not that I am saying these would be totally "valid".
There are people who had high "bad" cholesterol and lived up to 102/105. No heart disease, no statin.
So how do we account these people?
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Well then, let me leave you with this conundrum: - For many many years, and certainly when my wife was a child she used to love bread and dripping, sugar sandwiches, treacle sponge, never anything grilled, jam on Yorkshire puddings or even blackberry vinegar. Then there was full fat milk, cod liver oil and all the other sorts of things that people had in the 1940s 50s. They used to get a bottle of pop on a Friday as a treat and pocket money if they wanted any sweets. We now live in a world of blame - however the reality of this blame is a bit closer to home than one might think. ADHD and a whole raft of childhood illnesses are now the accepted way of life, however hyper activity could be due to the amount of pop children drink, certainly something is rotting their teeth prematurely. It used to be said that Granny knew best - children are lucky today to have a Granny, let alone a mum and dad. Then along comes weight and then obesity and then all the illnesses that entails. Just have a look at the figures of the public in general when you see people on the news - its really quite sobering to think what we will be like as a race in 100 years.
Most of the problems of today are because we are too rich, have more to spend on food and take away that ever before where children and young adults cannot cook for themselves, unless of course the sound ding is in the recipe. Where has common sense gone, being advised on ones diet by the doctor or high cholesterol and come away with - I don't believe it and those pills I only had them for a few days, made me so ill, so went to McDonalds to cheer myself up.
If I go to the doctor and he tells me to jump, I would never dare to ask why but rather "How High" and do what they told me to do. They have spend a good portion of their lives dedicated to learning and to help make people better. HectorsDad in the next post got it spot on with his view of the situation and that most drugs will probably make one feel different, after all they are trying to make us well and may well make us feel queezy.
So much illness could be avoided if people just stood back and evaluated their lives and how things might pan out for them if they don't. We are all in charge of our own destiny to a great extent and to be fair, I do believe there is a great deal of truth when someone says that God helps those that help themselves! End of rant - sorry.
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We are lucky to have this hub. . . please do rant away!
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As for DNA test, it's now used at the main research centres attached to NHS hospitals up and down the country. I have had a few. We're no longer living in 1980s.
It's no longer "expensive".
I had my own commercial DNA testing kit several years ago, not so reliable, they say.
But the medication profile was useful.
However, I must add that my family has several members of having "rare conditions".
If you are constitutionally robust and well all your life, then
I do see that there was no need for extra worries.
It's interesting to read your post, thank you, ticking-ticker.
And you as a "Heart Star" should know better than to be dragged into pointless criticism of another, where there is obviously no malice what so ever intended. But again, it is not the first time you have had a nasty word towards me. Are you really so anti new people that contribute - or is it something else perhaps?
Homophobia. : irrational fear of, aversion to, or discrimination against homosexuality or homosexuals.
You have read something into that statement that has nothing to do with homophobia and perhaps it is yourself that has the problem and have noticed that a small group of people will try and pick holes in anything to make trouble for someone. Instead of your attempts to antagonise and disrespect another, if you have a genuine gripe, then perhaps the thing to do is to make your feelings known to the Administration.
I am also a member of other groups and I can say without hesitation, this group has a very bitter and twisted core that does wear thin occasionally - especially when I am only trying to do my best for others.
I am new here and not in any way out to put anyone down. But I fail to see what your comment on the gender of a child's parents has to do with the likelihood that that child will grow up to have heart disease?
I'm tired of people becoming defensive when they are called out.
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Actually I am not saying that at all. What I am saying is that everyone is different and therefore will have different reactions to some medication where a discussion with the doctor is appropriate to discuss alternatives. I totally accept your comments that we are all different, however there is no economical way of testing someones DNA and run tests to decide what drugs might be appropriate for say, statins. Prior to my HA and because I am diabetic I was on 40mg Atorvastin for cholesterol and after the HA the hospital upped the dose to 60mg. Not long afterwards I became aware of pain in my hip joints that appeared to get worse. I went to the doctor where we discussed this unjustified pain. I was told Atorvastin can cause joint pain and suggested we try lowering the dose to the pre HA amount. Hey presto - pain goes. Medication really is trial and error and with the best will in the world, sometimes needs tweaking to get just right.
There has been a lot of sensationalist reporting on statins, which is really not helpful. Almost all the ‘anti’ opinions relate to, or draw data from, the effects of ‘blanket prescribing’, and very little to treating people with heart disease etc, so upsetting and irrelevant to most of us on here.
The ‘gain-sayers’ are probably tilting at windmills, but let them tilt- if they find giants the medical profession will respond very quickly.
All drugs have side effects for some, so ‘don’t take it because uncle Fred started limping’ is ignorable advice (sorry if I offend- just being rational). If it hurts you, and you are SURE it is the statins, then ask questions- otherwise keep taking the pills.
The most important thing, imho, is to work with what your consultant says (that might be via your G.P.). His advice on statins will be part of a strategy that you must follow and have faith in. You are far more likely to be among the thousands that this works for, than the 5 who it doesn’t ( even if they shout louder).
If the Statin Pharmaceutical Company's are legally and willfully holding back trial data, one should be skeptical, you can't make an informed decision if the information available to everyone, including Doctor's and Educators , is incomplete. Release all the data obtained from inception to the present, to unaffiliated peer review. We live in a age of information, gone are the days of innocence, in reality we must be our own advocates.
I have read all the replies and they are very interesting. I have refused to take statins. I have SVT and AF. Heart block and suspected heart failure, echo in a few weeks to know either way
My GP surgery said I should take statins. I asked my Heart consultant and he said no need, therefore 2 different opinions!!
I have low BMI and good cholesterol 4.1 which most is good Cholesterol.
Look at the drug companies how much they are making out of statins, all drugs in fact.!!
I chose not to take statins as I don’t want the side effects
My main think is that no one knows the long term damage they may do to you, look at other drugs that are forced on us and later on the health professionals then tell us they have now decided that the side effects are worse or more
We are in an age of some much information but so much that is kept from us as well
Your individual circumstances and personal choice are important and should be recognised and respected. Given your details, I can’t see why you would have been prescribed them, he says, speaking as an ex-musician turned theologian. Doesn’t sound like your surgery’s finestbhpir
However, not all your logic stands up. There has been quite a lot of research into long term use: agreed that some has not yet been released, which might be suspicious or might be protecting reputation because it showed bad testing procedure, rather than anything about the drug. Either way, it would be comforting to know.
As for the money side, there is a lot of old and false information being repeated. Atorvastatin, for example, came out of patent in 2011 and the NHS aims to pay £1.67 for a month course, regardless of strength. There is very little money made on this. (It’s different in the US, where companies can push branded versions, and there is no price cap).
Atorvastatin and simvastatin were out of patent I thought and are a lot cheaper now. . But there are over 8 million people on statins in the UK so still a lot of money.
They are now talking about a 6 monthly injection? And a polypill? Both even more confusing.
It’s confusing who they are aiming these at and what exactly is in them.
My aunt had FH and was given drugs to control it, I can’t remember the name though, it was only discovered when she was 85 she died last very suddenly of cancer so I can’t ask her.
I believe the poly pill is targeted at developing countries where medical care and a healthy lifestyle is minimal, the belief being something is better than nothing at all. I don't believe it's intended for the UK etc. It will be interesting to see how a 6 monthly injection will work & who will be the intended targets...maybe it'll only be rolled out to those who already tolerate statins well.
It was back then but like many others the patent may have run out if so there will be generic versions.
I used to take Securon S.R. a slow release version of Verapamil. Eventually my GP just prescribed Verapamil Modified Release and every month a different makers version from remote parts of Europe.
Had I not applied to get on to Professor Thom's new BP trials for renal denervation in 2011 my Aortic Stenosis would probably have continued unnoticed. When found my valve was already 76% closed and I was still not symptomatic.
Wow, sometimes luck is on our side. I worked with someone who applied to participate in all types of trials regardless of what they would be for. We asked if she never worried that she could be harming herself and her reply was no because while she was taking part she was getting the best medical care and all the most up to date health checks and she got paid for it, not that that was her motivation.
I did not get on his trial as he said that my blood pressure was not consistently high enough. I once applied for a trial of a new BP drug but did not proceed as you had to stop your other medications for two months to get them out of your system.
I had my prostate surgery done during trials of the Green Light laser procedure for BPH at The Freeman in Newcastle in 2004.
The only trial my husband has been asked to participate in was for people who were on medication to stop fluid from entering their lungs. The hospital put his name forward but because it would involve MRI scans anyone with an ICD couldn't take part. My husband has an ICD so was slightly worried the hospital put his name forward!! He's currently taking part in research regarding tiredness in those who have a chronic medical condition but that's just paper based
I was told that I needed an MRI the week before my pacemaker was fitted but could not fit it in. I did get an MRI compatible one but many hospitals did not have a protocol for doing my one. It was actually three years before they did and I had long since had one privately elsewhere.
My dad had 2 heart attacks by age 59, the 2nd one being a major HA resulting in CA 3 times. My mum was also type 2 diabetes and had angina. My grandfather died of a HA in his 60's, my sister was born with a heart condition. I follow a healthy low fat, everything in moderation diet mostly, I don't have any heart issues. There is no evidence of any heart conditions in my husbands family but he had a major HA at 42 and his brother had a mild stroke aged 26 both of their diets & lifestyle were appalling. Luck of the draw? are we just all different?
Thank you for your kind comment's. However, please don't feel you were lacking humility in any way, I was really only pointing out the parallels in our lifes and how our different diets have worked for each of us. I understand you lost your daughter recently, I'm very sorry for your loss. I hope you can find peace & acceptance in time.
This thread is quite interesting not about Statins per sae but about how we approach/attitude to Medication we have been prescribed. I am starting a thread/discussion on what Medication anyone has been prescribed and then changed or stopped and why, with or without any reaction.
Medication Changes is just trying to see what's going on with Heart Meds
Thank you for the clarification. My father, his brother and their father all died prematurely of heart attacks. From what others told me years ago I suspect my grandfather was an undiagnosed Type II diabetic. I have Type I from my mother's side - a double whammy!
There would appear to be a request for an enquiry into cholesterols effects on the heart and statin use going to parliament backed by a number of reputable medics including BMJ editor (I think). Unfortunately I have not noted down references.
There also appears to be a growing online library of heart specialists/public health specialists questioning both the use of statins and the link between high cholesterol levels and heart attacks. There are YouTube videos of reputable discussions that have taken place between 'experts' that are easily accessible - one of the videos is - 'Big Food and Big Pharma: Killing for Profit?' which is a European parliament discussion of this issue involving heart specialists, public health specialists and data analysers - very interesting re why we are still pursuing cholesterol as a main driver to heart health when much research discounts it, Again diabetes, pre diabetes and sugar appear to be being seen as a likely contributor to cardiovascular problems.
It appears that there are a number of major issues with how research is conducted, open access to drug research findings and how research is often wrongly interpreted. The video makes a good case for putting more transparent frameworks on these areas, teaching medics how to interpret data more effectively and how to ensure that those with vested financial interests don't get to take part in supposedly neutral bodies tasked with making public health decisions.
I find it worrying that it has to be a government directive to get transparency on the studies of statins. Don’t they realise that’s why so many people won’t take them.
If they are such a lifesaver why not let everyone see that and kill the conspiracy 🤔
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