Ive been on here for about a year since being discovered as having aortic stenosis. I have always had a heart murmur but it was never monitored. I am now 60 and my Mum is 88 wit a heart murmur so I thought all would be okay.
However over the last 2 or 3 years Ive had a few weird symptoms which were disregarded a bit until I had an echocardiogram last November. It was discovered I had severe aortic stenosis. I was referred immediately to Kings and they ran some more tests. It was decided after a TOE or TEE that my figures had been done incorrectly and Im moderate/severe. I was put on watch and wait until next March.
Because I don't really have any symptoms now other than a bit of breathlessness, I truly wouldn't pursue anything because I feel so well. Obviously I am very grateful that this has been found when it has and I am a bit daunted by it still.
Classic symptoms of severe aortic stenosis are breathlessness and inability to lay down etc. Lack of energy etc etc and pain, dizziness. For some reason these are gone - I walked around Bruge on Friday for 6 hours and it was a long day.
Apparently this cannot improve but it does make me wonder sometimes.
However brave I feel, when it gets to night time, like now at 1.30am, Im really scared. Am I overdoing it? My surgeon says I can still fly/travel and Im planning on going to the US in January. I know Im not perfect and I am being careful but it really is a huge black cloud that I don't properly understand.
Can some of you tell me how you were with this? Is the moderate/severe likely to last a long time before I need surgery? is there any way it could become very severe before March?
The valve size last November was 0.5cm but in June it was 1.1cm. As I said Ive improved but thats meant to be impossible and I think people assume the first reading was a mistake.
Last but not least, has anyone else had their surgery at Kings? I don't seem to come across anyone who has.
p.s In the last couple of weeks Ive been allowed to start taking hrt and that has made me feel even better.
Many thanks in advance